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Brayden Kenseth’s Story

On May 27, 2008 @ 10:40 PM Brayden earned his angel wings. We would like to thank everyone that has followed Brayden through this journey, and to ask everyone to keep praying for our family. God bless all of you!

On May 27, 2008 @ 10:40 PM Brayden earned his angel wings. I would like to thank everyone that has followed Brayden through this journey , and to ask everyone to keep praying for our family. God bless all of you!

This is the story about our son Brayden Kenseth Harrell born March 19, 2003. He is 5 years old and lives in Pelham, Georgia. Brayden was diagnosed on July 18, 2007 with a tumor on his brainstem. The type of tumor he has is called a Pontine Glioma it is highly aggressive, highly malignant, treatment resistant and recurrent. This is an exceedingly rare form of terminal cancer that mostly affects children between the ages of 4-9 years old. Brayden began radiation treatments in Atlanta at Piedmont Hospital on Monday, August 20, 2007. He received 33 treatments 5 days a week for a total of 6 weeks. This is the only treatment available for Brayden. Although there is a very small chance the radiation will help, the prognosis remains poor. There are only about 200 cases diagnosed each year. Due to the diffuse nature of the cancer there are no surgical options, and current chemotherapies have been found to be ineffective. With treatment, the median survival rate is less than 12 months. The chance of continued survival beyond 1 year is less than 8%. Brayden had his 1st follow up MRI since radiation on November 12, 2007 and the tumor has shown significant shrinkage. We are pleased with the results but the type tumor Brayden has usually begins re-growth 6-9 months after radiation so we need your continued prayers for Brayden's complete healing. This type tumor is treatment resistant and recurrent. Brayden began taking part in a clinical trial at NCI/NIH in Bethesda Maryland December 2007. A Phase II Study Of Pegylated Interferon Alfa-2b (PEG-Intron (TM)) In Children With Diffuse Pontine Gliomas

Please keep up with our journal and Please, Please say a prayer for our little angel.

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In Christian love,

Darren and Roseanne Harrell

Latest Journal Update

Brayden's 11th Birthday

Sorry it has been a while since I updated Caring Bridge.  I take for granted that everyone has Facebookand is keeping up with us through there. We have been doing well.  Stilltaking every day as it comes.   Darren isdoing well and I still have daily issues with my back.  I think my problems come from having to toteBrayden around toward the end when he was unable to walk anymore.  I had back surgery in April 2010.  Braylee is growing up so fast.  She turned 5 March 9th.  She started PreK this past year.  She has been our little bone breaker.  She has broken her right collar bone in thesame place for the past 3 years in a row. She fell off a slide at our church preschool program first week ofschool and broke it the first time.  Thenext year (first week of school)  Shefell off the couch and broke it again (1 yr. and 2 days from the last one) andthis past January she fell out of the bed and broke it for a third time.  Thank God they haven’t called DFAC’s on usyet Ha… Ha..  The Dr. doesn’t think it ishealing properly and that is the reason it keeps breaking in the samespot.  We go back to the Dr. April 8thto follow up and make sure it has healed completely this time.  If not they are going to send her to aspecialist to find out why she isn’t healing. She was in her first beauty contest this past weekend and WON!!!!!  See posted pictures….  Zane just turned 17 this February.  He has grown so tall and handsome.  It is hard to believe that he was 11 when Braydenpassed away.  He plays golf for LeeCounty High School.  We are takingBraylee on her first cruise (Disney Cruise) for Spring Break. 

Today is Brayden’s 11th Birthday.  We miss him soooo much.  I wish he was here to grow up withBraylee.  Our lives have forever changed.  There is not a day that goes by that we don’tthink about him.  This coming May 27thwill be 6 years since he passed away.  Hewas 5 yrs. old.  It is hard to believethat Braylee is the same age as he was when he passed.    Happy Birthday Sweet baby boy.  We love you so much and miss youforever.   

Please continue to pray for our Family.  Thanks, and much love. I have posted several updated


It's your birthday up in heaven,

 and I'm wondering what you'lldo.

 Will there be a celebration

 And a cake to honor you?

 Are the kitchen angels busy

 Breaking eggs and sifting flour?

 Is the angel choir practicing

 As it gets close to the hour?

Is there ice cream made from snowflakes

 And some candy made from clouds?

 Will it be just you and Jesus,

 Or all the happy crowds?

 I won't be there to hug you

 Or to count and pull your ears,

 And I'm sure I'll feel lonely

 As I shed some birthday tears,

 But I know your heavenlybirthday

 Will be your best one ever!

 Just remember, I still love you--

 On your birthday, and forever!


~ Connie Faust ~