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My Story

On May 27, 2008 @ 10:40 PM Brayden earned his angel wings. We would like to thank everyone that has followed Brayden through this journey, and to ask everyone to keep praying for our family. God bless all of you!



On May 27, 2008 @ 10:40 PM Brayden earned his angel wings. I would like to thank everyone that has followed Brayden through this journey , and to ask everyone to keep praying for our family. God bless all of you!

This is the story about our son Brayden Kenseth Harrell born March 19, 2003. He is 5 years old and lives in Pelham, Georgia. Brayden was diagnosed on July 18, 2007 with a tumor on his brainstem. The type of tumor he has is called a Pontine Glioma it is highly aggressive, highly malignant, treatment resistant and recurrent. This is an exceedingly rare form of terminal cancer that mostly affects children between the ages of 4-9 years old. Brayden began radiation treatments in Atlanta at Piedmont Hospital on Monday, August 20, 2007. He received 33 treatments 5 days a week for a total of 6 weeks. This is the only treatment available for Brayden. Although there is a very small chance the radiation will help, the prognosis remains poor. There are only about 200 cases diagnosed each year. Due to the diffuse nature of the cancer there are no surgical options, and current chemotherapies have been found to be ineffective. With treatment, the median survival rate is less than 12 months. The chance of continued survival beyond 1 year is less than 8%. Brayden had his 1st follow up MRI since radiation on November 12, 2007 and the tumor has shown significant shrinkage. We are pleased with the results but the type tumor Brayden has usually begins re-growth 6-9 months after radiation so we need your continued prayers for Brayden's complete healing. This type tumor is treatment resistant and recurrent. Brayden began taking part in a clinical trial at NCI/NIH in Bethesda Maryland December 2007. A Phase II Study Of Pegylated Interferon Alfa-2b (PEG-Intron (TM)) In Children With Diffuse Pontine Gliomas http://clinicalstudies.info.nih.gov/cgi/wais/bold032001.pl?A_02-C-0193.html@PEG-Intron.

Please keep up with our journal and Please, Please say a prayer for our little angel.

We will keep everyone up to date by using this website so please sign up to receive updates by email when we update the Journal and drop us a line in the guestbook.

In Christian love,

Darren and Roseanne Harrell

Feed

Roseanne Harrell posted a new journal entry, "Brayden's 11th Birthday".

Sorry it has been a while since I updated Caring Bridge.  I take for granted that everyone has Facebookand is keeping up with us through there. We have been doing ... Read more

Sheila Jones signed Brayden Kenseth's Guestbook.

Remembering Brayden's and your journey...Oh how I know how much you miss him!!  Our Sam's Angel anniversary was #6 on Feb. 25th.  He was 5 also.  I can't help but think ... Read more

Kim Vaughn signed Brayden Kenseth's Guestbook.

Holding your family in my prayers, especially on this special day. Happy birthday to Brayden...May your family be surrounded by love and comfort. Read more

Amy Reynolds from Piedmont Hospital signed Brayden Kenseth's Guestbook.

Thank you for posting an update. March 19 is my birthday also and I do always think of your family on this day. Read more

Roseanne Harrell added a new photo.

Roseanne Harrell added a new photo.

Roseanne Harrell added a new photo.

Roseanne Harrell added a new photo.

Roseanne Harrell added a new photo.

Roseanne Harrell added a new photo.

Roseanne Harrell added a new photo.

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