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My Story

Welcome to our CaringBridge site. It has been created to keep friends, family and anyone else who ever wonders about Brandon, updated

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook. There will be updates about Brandon as often as we can sit down and do it.

Brandon was diagnosed with Duchennes Muscular Dystrophy at the age of 6, August 2001-officially in September 2001. It has taken a beating on his body. He relies on a power chair for getting around. He has lost most movement to his arms and legs. He has a very hard time feeding himself, brushing his hair, and brushing his teeth. He relies on us to do almost everything due to his weak muscles. He is a fanatic over cooking. We tease him that he would make Chef Ramsey look like the Pillsbury doe boy! He would make the most amazing chef if only the disease would leave him alone. He still love to try and make stuff, although his arms just cant stir up the batter, cut things, or flip things anymore. He is a real good inspector though! He LOVES his video games, and has mastered going on line and playing games with others, some who share this disease.  Since his dad is in the army, Brandon has lived in many different places. Once we got to Texas, we decided that we loved it. Brandon was happy, and has access to sidewalks and streets that he can easily access with his chair. He loves his school, and the people here LOVE BRANDON! He is like a celebrity at school! We decided that we wanted to make Texas our home for good. We built a completely wheelchair accessible home for Brandon (and us). Although its horrible being away from his mom, we are able to work together to make it a great experience for both of his families.  Brandon  continues to deteriorate at such a rapid speed.  Just when we get used to one thing, something else happens.  DMD is a horrible and cruel disease, and I can only pray that some day we will have a cure for it so that no one else will have to go through what we and many other families have.

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Catie Rice posted a new journal entry, "1st Angel-versary...".

Sorry..I tried to post this last night but couldn't do it.So last year on 3/20/12 we spent the day at home with Brandon at his bedside.  His teacher had come as she ... Read more

Catie Rice posted a new journal entry, "1st Angel-versary...".

Sorry..I tried to post this last night but couldn't do it.So last year on 3/20/12 we spent the day at home with Brandon at his bedside.  His teacher had come as she ... Read more

Catie Rice posted a new journal entry, "The Start of the End".

So today is such a hard day to face for me, and the whole family of course.  A year ago today, Brandon took a sudden turn for the worse.   Although he had been ... Read more

Catie Rice posted a new journal entry, "Still Coping.".

So my beloved son has been gone for 8 months.  It still seems like it just happened.  The sting is still there.  The emptiness is ever present.  I thought that by ... Read more

Catie Rice posted a new journal entry.

So wishing I could sleep-still.  I miss my Brandon so much.  We are working on a few ways to keep his legacy alive and renewed.  i will post more as soon as things are ... Read more

Catie Rice posted a new journal entry.

So wishing I could sleep, but the thoughts of Brandon not being here is keeping me wide awake.  I still miss him as much as they day he left.  I still listen for him to ... Read more

Catie Rice posted a new journal entry.

For everyone who sent flowers, cards, recipes, notes, cakes, cookies, chocolates, and just well wishes in general...I have to say again Thank you.  I am in the process of ... Read more

Catie Rice posted a new journal entry.

So its been over a month, and I still await for Brandon to come in after school, (even though he had not been going for months.)  I look at the last pictures I took of ... Read more

Catie Rice posted a new journal entry.

Dearest Friends, I can't believe Brandon has been gone for almost a month!  It still seems he will be coming home any time from school, or camp, or vacation.  I think it ... Read more

Catie Rice posted a new journal entry.

2 weeks, and 30 minutes....i still cannot believe he is gone...i guess i should delete this page, but it has been my therapy for so long.  i miss him so much.  i don't ... Read more

Catie Rice posted a new journal entry, "Obituary....".

Just so you know, this is an obituary to thank the people who made such a huge impact on Brandon's life.  Please don't get "butt-hurt" that there are no family ... Read more

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