Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook. There will be updates about Brandon as often as we can sit down and do it.
Brandon was diagnosed with Duchennes Muscular Dystrophy at the age of 6, August 2001-officially in September 2001. It has taken a beating on his body. He relies on a power chair for getting around. He has lost most movement to his arms and legs. He has a very hard time feeding himself, brushing his hair, and brushing his teeth. He relies on us to do almost everything due to his weak muscles. He is a fanatic over cooking. We tease him that he would make Chef Ramsey look like the Pillsbury doe boy! He would make the most amazing chef if only the disease would leave him alone. He still love to try and make stuff, although his arms just cant stir up the batter, cut things, or flip things anymore. He is a real good inspector though! He LOVES his video games, and has mastered going on line and playing games with others, some who share this disease. Since his dad is in the army, Brandon has lived in many different places. Once we got to Texas, we decided that we loved it. Brandon was happy, and has access to sidewalks and streets that he can easily access with his chair. He loves his school, and the people here LOVE BRANDON! He is like a celebrity at school! We decided that we wanted to make Texas our home for good. We built a completely wheelchair accessible home for Brandon (and us). Although its horrible being away from his mom, we are able to work together to make it a great experience for both of his families. Brandon continues to deteriorate at such a rapid speed. Just when we get used to one thing, something else happens. DMD is a horrible and cruel disease, and I can only pray that some day we will have a cure for it so that no one else will have to go through what we and many other families have.