My Story

Bradley BEAT Ewing Sarcoma, his surgery went great and HE IS IN REMISSION. He is "OUR HERO" and we will NEVER let him forget that!

Thank you Bradley for beating the beast, YOU ROCK little man!

Go to my links you tube link, listen to MY NEW SONG!! It's not my time!!!

Journal

Thursday, July 2, 2009 5:13 AM, CDT


Well Bradley WAS doing really good. He's been on Keppra 500 mg 2x a day and Topamax 50 mg 2x a day and at 10:52 pm he had another seizure.  This one was different, we have never known him to have one during the middle of the night. Thank god I was awake, he was making a weird noise and I look over and he was in a full seizure. Affecting his right side (left side of brain activity) he was moaning, staring into space, drolling, his right arm and leg were cramped right up but twitching and this one lasted a minute. They have only been about 20-30 seconds. I was setting with him, rubbing his head telling him I was right her with him, after he was done seizing he started crying, couldn't use his right arm all that well and was slurring his speech. This one scared me because it seemed like FOREVER before he came out of it. He said he could hear me saying "Brad, its ok mommy is right here" this one wiped him out again.  We are SOOO frustrated, he was doing so good. They say everything happens for a reason so WHAT IS THE REASON THAT MY BABY HAS TO KEEP GOING THROUGH ALL THIS!!!!! Sorry, just a little emotional breakdown coming out. We don't know how much more he can handle, his poor little body is tring so hard to come back to normal after all the poison that he has had.  Our frustration is mainly because they don't know why he is having them, the unknown is what eats you up inside, as parents of young cancer children you know exactly how we are feeling.  Things hopefully will get better, calling dr today to find out next step.

On a more posiive note, heading to Tug hill for the weekend to camp with some friends. Much needed relaxation. Kids are so excited, we will take pics to share with you all. Thanks for stopping in and continue to pray that we find some regimen to help Brad with his seizures.


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Mark 11:24.."Whatever you ask for in prayer, beLIeVE that you have received it, and it will be yours."

www.quiltsoflove.com/quilt_2007/bradley_w/bradley.html

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