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Braden’s Story

This site has been set up to keep friends of Braden's informed about his current treatment for neuroblastoma cancer.  Braden relapsed in August of 2009 and is currently undergoing treatments.  Please keep him in your thoughts and prayers as we need a miracle!  Thank you so much!

Braden was admitted to Children's Mercy on Friday, December 28, 2007 after a visit to the ER for abdominal pain. A chest x-ray revealed a large white shadow across most of the right side of his chest and extending partially across the left side. A CT scan determined that it was a solid mass, which doctors suspect is a Neuroblastoma, a rare tumor found in infancy and early childhood. Braden is scheduled for a surgery on Wednesday, January 2, to confirm the diagnosis, determine staging and operability of the tumor, perform a bone marrow aspiration, and implant a Hickman catheter to deliver chemotherapy drugs. At this time, the tumor is believed to be too large and too close to vital organs and blood vessels to safely remove. It is hoped that chemotherapy might halt its growth and shrink the tumor enough for it to be removed in its entirety at a later date. Braden continues to undergo testing to determine if it has spread to any other organs or to his bone marrow.

Despite being a very sick little boy, Braden is maintaining his sweet disposition, unless they take his blood pressure, which he hates. Zach is keeping the hospital room free of "bad guys" as his alter-ego Spider Man. Deliece and Brian are exhausted, but hopeful and appreciate all of your love and support.

Please, keep them in your prayers.

Update:

Braden's tumor was determined to be stage four, high risk which confirmed our worst fears. Please pass along this link and password to anyone that you think could help us pray for Braden. We believe in the power of prayer and know God ultimately has a plan in place for Braden. We are charged with making the most of every minute we have with our son! Thanks!!

11-16-08

Braden has completed all chemotherapy and an autologous bone marrow transplant. He is currently beginning the maintenance phase of his treatment and doing well. Our next scans will at the conclusion of Cis-Retnoic Acid therapy in approximately May. Please continue to keep Braden in your thoughts and prayers--he still has a very long road ahead of him but thanks to all of you, he has come a great distance in defeating this cancer. We are eternally grateful to each of you!

On 8-11-09 we learned that Braden's cancer relapsed and there is no known cure for relapsing neuroblastoma.  We were given a choice of either quitting and allowing him to die nor or continuing with treatment in the hopes of prolonging his life a bit longer. We chose to fight.  We began treatments at the Children's Hospital of Philadelphia (CHOP) and Children's Mercy in KC is doing any treatments here that can be doen from home at CHOP's direction.  Braden has had two MIBG treatments in Philadelphia as there are only 5 hospitals in the US equipped to do MIBG treatments.  It is an IV injection of a radioactive isotope that attaches to neuroblastoma cells and can kill them.  Braden's response was favorable but cancer remained.  He is currently going through chemo rounds of Irinotecan and Temodar in the hopes of killing the remaining cancer.  Please HOPE with us!  We need a miracle!

January 26, 2011, we heard the words we have prayed for since Braden's relapse...after his scans in Philly, Dr. Mosse told us that Braden's MIBG scan was completely normal and he shows no evidence of disease.  Thank you God!!  Braden went through immunotherapy and is now on ABT-751 to clean up the hidden cancer cells we believe are there. HOPE!

July 8, 2013, Braden was diagnosed with a secondary cancer called MDS. He received a bone marrow transplant on March 31, 2014 with bone marrow cells donated by his ten year old brother Zach. It is his only HOPE to beat cancer for a final time. 

Latest Journal Update

Scans....

Hi All,
We are at scan time so Braden and I are leaving on Monday for Philly. Zach and Brian will hold down the home front. 

Braden's MIBG injection is on Tuesday and then Wednesday is the scan. We meet with Dr. Mosse after the scan and find out how things look. Every time he tells me his tummy hurts, or his leg hurts, I freak out but he looks good and he doesn't have any bruising which means his platelets are okay and they would be low with neuroblastoma. The MDS is silent and there really aren't signs. It scares me even more.

We will know more after we get his counts on Tuesday. 

Braden started fifth grade and Zach started seventh so it's a pretty awesome month! 

Zach also was featured on Food Network's Rachael Ray's Kids Cook-Off. Zach did a great job and we had a blast in NYC this summer for a little over a week while we filmed. Zach was eliminated last week but keep watching because our friends are still on the show. Each week, on chef is eliminated until there is a winner. The kids and parents we met were amazing and will be friends forever. We feel very fortunate to have had this opportunity.

Zach has been super busy with his chef work since coming home and has had several television interviews and many chef opportunities to cook and learn. It's been quite a deal for Mr. Zach! We are EXTREMELY proud of him. It's pretty awesome to be his mom because you get lots of great food! 

We are getting ready for our Hope Gala on September 26 at the Overland Park Convention Center and Zach is actually going to have something in the live auction. Braden has some artwork which is always fun! He loves to paint!! And Zach is going to offer someone an opportunity in which he will come into your home and make dinner for 6! He is super excited about that! 

Our Braden's Hope calendars go on sale this week for childhood cancer awareness month and Braden was featured with Dontari Poe from the Chiefs, Alex Gordon and Ned Yost from the Royals, Roger Espinoza from Sporting KC and Andrew Courtney from the Kansas City Mavericks Hockey team. He had SO much fun with these amazing men! They were so kind to all 48 of our Hope Heroes! A different athlete is featured with a childhood cancer hero each month and they are so cute! Calendars will be on sale at www.BradensHope.org

We have one last piece of huge news! Well, two...First, we are dyeing the JC Nichols fountain in KC gold for childhood cancer awareness September 1-3! And secondly, we just went to Topeka where Governor Brownback signed a proclamation in honor of childhood cancer awareness month! But there is more! Governor Brownback and several legislators are going to be lighting the south side of the State Capitol Building GOLD for childhood cancer awareness month on September 1 at 8:00 pm. There will be a lighting ceremony and the Governor and several legislators will present while one of our HOPE Heroes flips the switch to light the State Capitol. We have been working with the Governor's staff for over a year to find a way to light the Capitol building gold and they found a way to make it happen! They will light it for one night only and this will be the first and last time Governor Brownback lights the State Capitol so it's EXTREMELY special. If you can attend, please do. Unfortunately, Braden and I will be in Philly and will have to miss it but Brian and Zach will be there. Thank you to the Governor's office for making this happen for our heroes! 

We will let you know how things go on Wednesday.  It will probably be afternoon before I can post! Thank you for all of your thoughts and prayers! 

HOPE!

Deliece 
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Comments

6 Comments

Tom Baldwin
By Tom Baldwin
Cool stuff for both Zach and Braden! Got to see Zach on TV last week. He handled himself really well and has a bright future ahead. Praying that scans are good for B. Looking forward to the new calendars. Love, hugs, and prayers!
Susan Vogliardo
By Susan Vogliardo
Lots of love and prayers coming for sweet Braden. 😊
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Peggy Jordan
By Peggy Jordan
I watched the show too! Enjoyed it and can not imagine the pressure they felt while filming. So, so glad he had a good time.
Will be thinking of you as you travel, get the medical part taken care of and return home.
Kim Watson
By Kim Watson
Praying for clear scans. We loved watching Zach on the food network. He did a fantastic job!
Michele Jakoboski
By Michele
Sending prayers for All the Hofens!
Safe travels, good news!
💛💛💛💛
Toni Masson
By Toni from San Diego
Watching Zach right now on Rachael Ray ... he did great! What a kid!!
Prayers for Braden ... know he'll do great!