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My Story

This site has been set up to keep friends of Braden's informed about his current treatment for neuroblastoma cancer.  Braden relapsed in August of 2009 and is currently undergoing treatments.  Please keep him in your thoughts and prayers as we need a miracle!  Thank you so much!

Braden was admitted to Children's Mercy on Friday, December 28, 2007 after a visit to the ER for abdominal pain. A chest x-ray revealed a large white shadow across most of the right side of his chest and extending partially across the left side. A CT scan determined that it was a solid mass, which doctors suspect is a Neuroblastoma, a rare tumor found in infancy and early childhood. Braden is scheduled for a surgery on Wednesday, January 2, to confirm the diagnosis, determine staging and operability of the tumor, perform a bone marrow aspiration, and implant a Hickman catheter to deliver chemotherapy drugs. At this time, the tumor is believed to be too large and too close to vital organs and blood vessels to safely remove. It is hoped that chemotherapy might halt its growth and shrink the tumor enough for it to be removed in its entirety at a later date. Braden continues to undergo testing to determine if it has spread to any other organs or to his bone marrow.

Despite being a very sick little boy, Braden is maintaining his sweet disposition, unless they take his blood pressure, which he hates. Zach is keeping the hospital room free of "bad guys" as his alter-ego Spider Man. Deliece and Brian are exhausted, but hopeful and appreciate all of your love and support.

Please, keep them in your prayers.

Update:

Braden's tumor was determined to be stage four, high risk which confirmed our worst fears. Please pass along this link and password to anyone that you think could help us pray for Braden. We believe in the power of prayer and know God ultimately has a plan in place for Braden. We are charged with making the most of every minute we have with our son! Thanks!!

11-16-08

Braden has completed all chemotherapy and an autologous bone marrow transplant. He is currently beginning the maintenance phase of his treatment and doing well. Our next scans will at the conclusion of Cis-Retnoic Acid therapy in approximately May. Please continue to keep Braden in your thoughts and prayers--he still has a very long road ahead of him but thanks to all of you, he has come a great distance in defeating this cancer. We are eternally grateful to each of you!

On 8-11-09 we learned that Braden's cancer relapsed and there is no known cure for relapsing neuroblastoma.  We were given a choice of either quitting and allowing him to die nor or continuing with treatment in the hopes of prolonging his life a bit longer. We chose to fight.  We began treatments at the Children's Hospital of Philadelphia (CHOP) and Children's Mercy in KC is doing any treatments here that can be doen from home at CHOP's direction.  Braden has had two MIBG treatments in Philadelphia as there are only 5 hospitals in the US equipped to do MIBG treatments.  It is an IV injection of a radioactive isotope that attaches to neuroblastoma cells and can kill them.  Braden's response was favorable but cancer remained.  He is currently going through chemo rounds of Irinotecan and Temodar in the hopes of killing the remaining cancer.  Please HOPE with us!  We need a miracle!

January 26, 2011, we heard the words we have prayed for since Braden's relapse...after his scans in Philly, Dr. Mosse told us that Braden's MIBG scan was completely normal and he shows no evidence of disease.  Thank you God!!  Braden went through immunotherapy and is now on ABT-751 to clean up the hidden cancer cells we believe are there. HOPE!

July 8, 2013, Braden was diagnosed with a secondary cancer called MDS. He received a bone marrow transplant on March 31, 2014 with bone marrow cells donated by his ten year old brother Zach. It is his only HOPE to beat cancer for a final time. 

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Deliece Hofen posted a new journal entry, "Day +19...never forget to count your blessings".

Brian and Zach left here at about 1:30 to head back to KC. It was a very short visit but it was just what we needed. While they were here, Brian stocked us up on groceries ... Read more

Deliece Hofen posted a new journal entry, "Day +18...Good Friday".

We are out of the hospital and in a hotel!! WAHOO!! Brian and Zach flew out early this morning and met us at the hospital at about noon and then helped us get everything ... Read more

Maureen Flaherty signed Braden's Guestbook.

Praying that B/P stays down, and "NO" cancer in the test results.  That is just wonderful that you will be able to break out of there, and smell the fresh air!!! God ... Read more

Trudy Strahm signed Braden's Guestbook.

Braden, You are a rockstar! Praying you'll be sleeping in that hotel room tomorrow!! Read more

Deliece Hofen posted a new journal entry, "Day +17....dismissal tomorrow :)".

Tomorrow is a BIG day!! IF all goes well tonight and tomorrow morning...fingers crossed...we are going to be heading out to a hotel tomorrow. We will be there for at least ... Read more

Sue Koslovsky signed Braden's Guestbook.

What a wonderful video! Braden looks so healthy and full of life. Only someone going through the same fight with neuroblastoma or any pediatric cancer can truly understand ... Read more

Deliece Hofen posted a new journal entry, "Day +16...".

Some days deserve very little commentary. I'm tired, homesick and ready to get out of this hospital because Braden is perfectly able, but they can't seem to find a safe ... Read more

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