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My Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about our loved one, Braden Todd Blair.

My Story is the introduction to our CaringBridge site.

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.

Braden was born on April 29, 2008 at 9:33 a.m. From about 23 weeks into the pregnancy, Jeff and I were told that there were complications with the pregnancy. We were told that his bones in his arms and legs were not developing like they should. We have gone through various genetic testing and eventually the specialists were able to locate where the problem was located. Essentially, Braden has a genetic mutation in his COL2A1 gene which has affected his bone development during the pregnancy. This mutation affects the development of collagen, which is necessary for his bone development.

Prior to his birth, the doctors were able to narrow his diagnosis to five different skeletal dysplasias. All of these diagnoses indicated that Braden would have respiratory issues when he was born. Thus, we were able to meet with doctors and specialists to try to prepare for what was going to lie ahead.

Immediately following his birth, Braden was put on a ventilator because he did have the respiratory issues. His lungs are underdeveloped and his rib cage is small, which is limiting the ability of his lungs to function. Since his birth Tuesday, his stability has been tenuous and there have been ups and downs. The doctors as of today's date have only been able to narrow his diagnosis to one of two conditions. The key issue is going to be whether his rib size and lung condition will ever make it possible for him to breathe on his own.

The doctors at Kosairs have enlisted the assistance of experts at Cedars Sinai at UCLA. This facility has a world recognized database for skeletal dysplasias. We have received guidance from this facility during the pregnancy, and now are awaiting their continued guidance. They are going to review his x-rays and we are hopeful that they will be able to provide a diagnosis. Once we have a diagnosis, then the doctors will be able to give us a prognosis for Braden.

We are hopeful that the diagnosis which he receives will also be accompanied by a hopeful prognosis. We only ask for everyone's prayers right now to help him get through this time, and provide us with the support to take care of him.

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Jeff and Dawn Blair posted a new journal entry.

Our little Braden fought as hard as he could since being born, but he has passed away today at about 5:30. His little lungs did as much as they could, but it was not ... Read more

mindy dennis signed Braden's Guestbook.

Dawn and Jeff, I wasn't aware of this site. I am so sorry for your loss. He is such an adorable baby from the pictures. Mindy Dennis Read more

lissett reyes signed Braden's Guestbook.

Sorry for your lost. God be with you and with all your family. I will keep you in my prayers. Lissett Reyes Read more

david amos signed Braden's Guestbook.

Dawn, I just heard about your loss and wanted to express my sympathy. He is a very handsome little man and i know he will be missed by all. My thoughts and prayers are ... Read more

Linda Ziemke signed Braden's Guestbook.

To Braden's Family & Loved Ones, Even thought we've never met, I feel that I somewhat know your family through my sister in law, Dianne Panknin. She has kept me ... Read more

linda brinegar signed Braden's Guestbook.

You have such a beautiful son. My thoughts and prayers are with each of you during this time of loss. Just remember GOD takes his angels first and the rest of us remain ... Read more

Recka Elder signed Braden's Guestbook.

Jeff & Dawn, Your and your family are in my thoughts and prayers. I have put you on our prayer list at church . You need to celebrate each minute you had with little ... Read more

Terese Pace signed Braden's Guestbook.

To Braden's mommy, daddy, and family- Words are inadequate at times to express what needs to be said. We were so deeply sorry to hear of the death of your precious little ... Read more

Misty Clark signed Braden's Guestbook.

The Blair Family: We are so very sorry to hear of your loss. It's very difficult to even know what to say. We would like for you to know that we are praying for your ... Read more

Debra Breseman signed Braden's Guestbook.

In this time of Sympathy and Sorrow... I am so sorry for the loss of this beautiful baby boy, and it sounds like Braden was such a little fighter. God needed this angel, ... Read more

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