× Estamos introduciendo nuevas características a CaringBridge. Las traducciones al español no están disponibles actualmente, pero esperamos poder agregarlos pronto. Gracias por su paciencia.

×

CaringBridge Is Funded by People Like You

Make a donation to CaringBridge

Honor Bobby with a tax-deductible contribution to CaringBridge today.

Click here to make your donation.

Mi historia

Lil Bobby was born on April 18th, 2009 weighing in at 5 pounds 4 ounces.  He was born with a heart defect known as Pulmonary Atresia with Ventricular Septal Defect (VSD).  In Pulmonary Atresia there is no pulmonary valve, so blood can not flow from the right ventricle(pumping chamber) through the pulmonary artery to the lungs.  There is a large hole in the wall that separates the two ventricles. (VSD) This allows oxygen-poor blood to flow into the left ventricle and go out the aorta to the body.  The only blood flow to the lungs may come from a patent ductus arteriosus (PDA) a vessel between the pulmonary artery and the aorta or multiple collateral arteries and the aorta or other arteries to the pulmonary artery.  The PDA was the only source of blood flow to the lungs in which Lil Bobby was given prostaglandins a drug to keep the PDA open, with out this drug the PDA would close causing no blood flow to the lungs.  With this being said a baby with this condition needs immediate treatment. Hours after Bobby was born he started to decline without knowing what was the cause the Decorah hospital transferred him to St. Mary's with the neonatal unit coming.  Upon arrival to the neonatal unit on April 19th he received an Echo of his heart and we were told the news of the defect and that he would need to have open heart surgery, letting him get stable enough for surgery would last the next few days, with surgery on April 22nd which they put in a Blalock- Taussig Shunt (BT shunt) and closed off the PDA.  After a week of recovery he was discharged and we have had many check ups and echo's in the last 5 months. 

With this they think that it is time for the next procedure, which will take place at St. Mary's on September 29th, Lil Bobby will be admitted on the 28th.  With the procedure that he is having done they are going to do a complete repair of the VSD and put in a conduit in place of the shunt that connects the pulmonary artery to the lungs this conduit will last 2-3 years.  I will continue to post his progress.  Please pray for Lil Bobby and my family. 

Bobby's 2nd OHS was a success and he recovered well.  We have been monitoring a cyst on his cerebellum since he was 6 days old, neurology referred up to opthomology to check his optic nerve for pressure, while they were went to check the optic nerve they were unable to see back into eyes due to cataracts, Bobby then ended up having surgery to remove these and implant artificial lenses May 2010.  Bobby now has glasses and his eye sight is continuing to get better. Bobby has also underwent a Cath procedure to place a stent in his pulmonary artery conduit.  Bobby also underwent brain surgery in Nov. 2010 to drain the cyst on his cerebellum that was causing pressure on his brain stem and causing projectile vomiting, this surgery was also a success, you can read his journal for more on recoveries of surgeries.  Also in 2010-2011 the opthomoligist noticed a change in his left eye and Bobby underwent a sedated eye exam and it was found that his left retina had became detached so another surgery was planned, fast forward to now Jan. 2012 Bobby has had three surgeries to repair his retina and will have little to no vision in that eye, he does react to light, Bobby has now had 9 surgeries all before the age of three.  Now in 2012 Bobby will be facing another eye surgery to remove the oil bubble from his left eye and to check the buckle to make sure it isn't causing any constrictions to the eye.  Bobby will also be having another heart surgery, we find out the surgery date on January 3rd it is suppose to be sometime this coming Spring.  I update CaringBridge often to let everyone know how Bobby is doing on a weekly basis.  Bobby did reach one amazing accomplishment right before Christmas 2011 he starting WALKING on his own!!  Thorough everything that he is been through he always seems to amaze us!!  As of the end of 2012 Bobby has had a total of 12 surgeries these include more eye surgeries, for his left retina, we are now focused of keeping the eye healthy since we now know that he will not have vision in this eye, we will continue to monitor with sedated eye exams.  Bobby had his 4th heart procudere done April 23rd, 2012 this was also his 3rd OHS and was a great sucess with a quick recovery.  Bobby remains on heart failure meds as well as asprin as a blood thinner.  We see his cardiolosgist every 6 months with echo's and chest x-rays.  Bobby's special heart is healthy!

 

 

Fuente

Kayla Carroll posted a new journal entry, "Busy Bobby".

Bobby has been busy and working hard at school.  He is now making more sounds and communicating more in is him own way.  He does enjoy school and daycare although he has ... Lea más

Kayla Carroll posted a new journal entry, "Bobby's Vision Progress".

Bobby had his eye appointments back in February.  We also had a blizzard that day with no school and roads drifting shut by snow, I had called to see if we could ... Lea más

Kayla Carroll posted a new journal entry, "Bobby's Speech Appointments".

Bobby has started Speech Therapy with a Speech Pathologist at Mayo.  Bobby does not seem too interested in therapy at all, he did work for a short time, I feel that he ... Lea más

Kayla Carroll posted a new journal entry, "Updates".

I just noticed the other day when I went to update about "Naughty Bobby" this summer that my last 6 months of entries have not been posted, I am unsure if this is from ... Lea más

Kayla Carroll posted a new journal entry, "Cardiology Appointment and Christmas".

Bobby had a cardiology appointment with Echo right before Christmas.  Bobby did great with his Echo and laid nice and still while watching a movie.  This is one thing ... Lea más

Kayla Carroll posted a new journal entry, "November 17th".

First off I would like to thank all of you who took time to read my entry on November 17th, your kind words mean so much to me!  We as a family have an amazing ... Lea más

chad gordon signed Bobby's Guestbook.

To  Bobby and the rest of the Carroll Family,After reading your latest post, it just proves to me and everyone else who follows Bobby that all of  you in  his family ... Lea más

Bruce Ring signed Bobby's Guestbook.

Kayla, Please know in your heart that you are doing the right things.  It takes much strength and courage to "open a new can of worms" but you are facing things head-on ... Lea más

Abby Chipera signed Bobby's Guestbook.

Bobby has so much support and amazing parents! You're awesome Kayla. You made me tear up about 30 times, but I'm praying for you guys! Poor little bobby.. breaks my heart :( Lea más

Annette Evenson signed Bobby's Guestbook.

Kayla,saying many prayers for your Bobby and foryou to find strength to deal with all of this!!!It sure is a lot for you to handle, both physicallyand mentally!   You are ... Lea más

christine vitiello tyler s mom signed Bobby's Guestbook.

As I read your new entry... my heart breaks for you.. As a mother all you want is your child to be healthy and happy.. Life is  not easy , and just know your an amazing ... Lea más

Show more recent activity