Please pray that the Depakote works for Billy! This is the 16th medication he has been prescribed to beat the seizures once and for all! xoxox

My Story

This site is dedicated to our very special and lovable son, Billy, who is currently fighting Infantile Spasms.

Billy was born October 12, 2004 at 3:15 p.m. along with his twin brother, Tommy. (Nope, they didn't even get their own minute...they were born seconds apart from one another).

They were welcomed home by their awesome older brother, Johnny.

**Read on and join us as we fight Infantile Spasms**

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Journal

Wednesday, May 20, 2009 12:47 AM, CDT


I updated Billy's website again...come stop by for a visit.  www.billysbuddies.com 

The welcome page picture on this website is Billy with his new puppy, "Chip".  He joined our family the day before Mother's Day.  He's a sweetheart and a wonderful addition to our family!

We have a few things going on this week including an appointment with the architect to go over the drawings for the extension!  Truly a fantastic time for our family.  We will keep everyone posted as to when we start construction. 

On a side note, people have asked if we are still accepting donations and the answer is yes!  They can go to Billy's website for details on how to donate.  PayPal is up and running on the website for those that prefer that method instead of mailing a check to the P.O. Box.  Thank you again for always thinking of our family, especially Billy.  It is truly the most amazing gift having such generous and supportive family and friends!  xoxo

We wish everyone a safe and Happy Memorial Day weekend.  We will be marching in the Memorial Day parade honoring all of the brave men and women serving our country and to those that served before them.  God Bless! 


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Please leave a note whenever you visit Billy's site. We love to see that others are learning from our little guy & his courageous fight to beat IS. We would also like to make a book of everyone's entries for him...so sign away!

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HOSPITAL INFORMATION

Morgan Stanley Children's Hospital of New York-Presbyterian
3959 Broadway
New York, NY 11032