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Mi historia

Welcome to our CaringBridge website. We've created it to keep friends and family updated.

Visit often to read the latest journal entries, visit the photo gallery, and write us a note in our guestbook.  We treasure each and everyone of you and your support!

After experiencing some wrist and hand weakness during the summer of 2011, I decided to go to the doctor with what I thought was carpel tunnel.  At the initial visit the doctor couldn't decide whether or not to send me to an orthopedic specialist or a neurologist.  After spending about 10 minutes with the orthopedic doctor, she sent me to the neurologist who spent a lot of time looking at my nerves and muscles.  I spent the next six weeks having tests, including EMG's and MRI's, and on October 24, 2011 was given the diagnoses of ALS or Lou Gehrig's disease. 

For the last 5 - 6 months, I have been seeing a doctor at Washington University in St. Louis for a second opinion.  I've under gone a variety of additional tests, and in April 2012 the diagnosis was confirmed.

Becca and I have been pretty guarded about this information because we hadn't told the boys (we'd been advised not to say anything until the "official" second-opinion diagnosis).  Now that we have had a conversation with them, we are comfortable talking about it in the open.  For those of you who don't know much about the condition (and we certainly didn't prior to the diagnosis), there is no real time line for how it progresses.  Every person is different.  We'd like to stress that if you have questions, come and talk with us.  We are not uncomfortable taking about it.   Although typical to our relationship we are dealing with this through our sense of humor, so you may have to deal with some of my bad jokes.

So for now we are taking things one day at a time, getting things in order and spending quality time together.  Becca or I will post updates periodically and we look forward to your messages.   

Fuente

Benjamin Rudin posted a new journal entry, "HOPE".

I have been meaning to write an update for quite sometime and couldn't find the right words.  Ben was the eloquent one and once thought about becoming a sports journalist ... Lea más

Michelle Woods signed Ben's Guestbook.

Thank you Becca for the updates:). The ice bucket challenge is truly amazing making people aware of ALS. I am sorry I was unable to attend Ben dedication cermony. I wanted ... Lea más

Benjamin Rudin posted a new journal entry, "Services".

Visitation for Ben will be on Sunday, June 15 from 3:00 to 6:00 at Butler Funeral Home. Please wear one of your Truckin' with Ben shirts. Ben always said he would somehow ... Lea más

Carolyn Cox signed Ben's Guestbook.

My deepest sympathy to the family on Ben;s death.  May you be comforted for all the love and supportyou always gave.May you be blessed with comfort and peace, knowing ... Lea más

Benjamin Rudin posted a new journal entry, "Goodbye - DBT".

It is with a broken heart that I am writing this last post.  Ben passed away this afternoon shortly before 1:00.  He went very peacefully and was surrounded by ... Lea más

Kathy LaCamera signed Ben's Guestbook.

Praying for your family, Becca, for comfort, peace, and for God to wrap his arms around all of you. Lea más

Benjamin Rudin posted a new journal entry, "The Luckiest - Ben Folds".

I am using the same title again because it really is how I feel about Ben.  I am the luckiest!  We got to hear this song live when we took the boys to ... Lea más

Benjamin Rudin added a new photo.

Benjamin Rudin posted a new journal entry, "Something's Gotta Give Pretty Soon - DBT".

Now that we have had conversations with the boys and our parents, we want to be open and honest with all of those who mean the world to us.  Ben has all along said that ... Lea más

Benjamin Rudin added a new photo.

Benjamin Rudin posted a new journal entry, "Hanging On - DBT".

If you haven’t seen Ben is a while the first thing you will notice is how skinny he is.  When we were at the doctor the beginning of January he weighed 113 pounds.  I ... Lea más

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