Ben Baltz's Journal
Written Mar 5, 2014 7:00am6 years later, Ben Baltz is one lucky child, now a young man. We as a family would like to thank everyone for their prayers and generosity through this journey; we could not have done it without your support.
For anyone who finds this page because your child has been DX with bone cancer, please seek out Dr. Mark Scarborough at Shands Hospital in Gainesville, FL. He only wants what is best for your child and his expertise in the field of bone tumors is 2d to none.
Our phone continues to ring and ask if Ben doesn't mind coming and speaking with a new amputee, please continue to reach out, because he smiles and says sure whenever asked. He spoke with a strong special young lady from Chipley, FL a few weeks ago; Ben got her to smile when he told her he could hang from his blade upside down in a tree.
Lastly, we met a very nice man in Curaçao the other day, I was sharing a Ben story and he stopped me mid sentence. "I don't want to hear what he has done, I want to know what he is going to do"; I will continue to encourage all my children with this statement.
Now, back to the baseball diamond, Ben made the varsity team of his middle school and also is playing his last year of little league, so it will be a busy few months!
God Bless and Keep the Faith,
JC and Kim Baltz
Another new foot!
Written Dec 31, 2013 5:50am2013 has been a wonderful year for Ben and the Family!
Ben recieved his CAF foot from Ossur back in Sept, well he snapped that foot very quickly(within days). OSSUR sent out another foot the next week and it lasted about 3 weeks; it even made it through the Sea Turtle Tri in early October.
So the above picture is from late November and this very nice gentleman flew in from Atlanta and fitted Ben with a "Cheetah" foot. Ben enjoys the lightness and flex of this foot; many thanks to OSSUR and CAF going the extra mile to fit Ben with another different foot.
As I said earlier Ben completed the Sea Turtle Tri and thankfully we didn't have any leg malfunctions; he was recognized as the "paratrialete".
Last week he took delivery of his latest socket and it is decorated again with penguins. His new leg and liner fit perfectly, many thanks to Jack and his crew at Hanger!
Also in Nov, his surgeon called and let us know Ben needs to wait to have the plates out in his femur. Basically, they want to make sure his growth plate doesn't get a mind of it's own and start regrowing; Ben was happy not to have it over the holidays anyhow.
Baseball season starts soon; time for a new bat since he is a growing boy.
We pray for all the families we have followed over the years and new families that continue to seek out advice and counseling.
Have a Blessed and Happy New Year!
Keep the Faith,
Childhood Cancer Awareness Month 2013
Written Sep 19, 2013 6:36pm
Ben is doing great! He will probably need a new leg in the next couple of months but other than that “Life is Good”! Measurements are in and the medical necessity letter is in hand, now to let Jack do his magic and make a new leg.
This is the 5th time I have written about Childhood Cancer Awareness month; and sadly in those 5 years not much has changed; here is hoping that the next 5 years we hear of a break through drug or reason for childhood cancer. They don’t even know why Ben or other children get bone cancer; there are hunches, but no real proof.
Ben completed another kids tri on Sept 1st, the Tallahassee Democrat did a very nice article about it yesterday: http://www.tallahassee.com/apps/pbcs.dll/article?AID=2013309180017
In the last few weeks we have been called on to mentor to another family; their son is 10 and was amputated recently at Shands Hospital. We keep Aidan and his family in our prayers as they continue the fight of Osteo and finish up chemo; if you want to visit Aidan’s site, just use his name in the box on CB of “aidanoshea”. Another little girl from Tallahassee was also just DX within the last few weeks; so you see it just continues, children should not hear the words “you have cancer”.
Please visit Curesearch or the Liddy Shriver Foundation or http://www.hyundaihopeonwheels.org or the St Baldrick Foundation to give to childhood cancer research. These non profits give greatly to kids cancer research and they do it in small burst to target promising research.
School is in(thank goodness), Fall is around the corner(thank goodness).
911 … I will NEVER FORGET! God Bless the families who lost a family member.
Here is an article from 3 years ago: http://hub.aa.com/en/aw/cancer-ben-baltz-henry-tucker-disease-nashville
Keep the Faith,JC