Ben Baltz's Journal
Childhood Cancer Awareness Month 2013
Written Sep 19, 2013 6:36pm
Ben is doing great! He will probably need a new leg in the next couple of months but other than that “Life is Good”! Measurements are in and the medical necessity letter is in hand, now to let Jack do his magic and make a new leg.
This is the 5th time I have written about Childhood Cancer Awareness month; and sadly in those 5 years not much has changed; here is hoping that the next 5 years we hear of a break through drug or reason for childhood cancer. They don’t even know why Ben or other children get bone cancer; there are hunches, but no real proof.
Ben completed another kids tri on Sept 1st, the Tallahassee Democrat did a very nice article about it yesterday: http://www.tallahassee.com/apps/pbcs.dll/article?AID=2013309180017
In the last few weeks we have been called on to mentor to another family; their son is 10 and was amputated recently at Shands Hospital. We keep Aidan and his family in our prayers as they continue the fight of Osteo and finish up chemo; if you want to visit Aidan’s site, just use his name in the box on CB of “aidanoshea”. Another little girl from Tallahassee was also just DX within the last few weeks; so you see it just continues, children should not hear the words “you have cancer”.
Please visit Curesearch or the Liddy Shriver Foundation or http://www.hyundaihopeonwheels.org or the St Baldrick Foundation to give to childhood cancer research. These non profits give greatly to kids cancer research and they do it in small burst to target promising research.
School is in(thank goodness), Fall is around the corner(thank goodness).
911 … I will NEVER FORGET! God Bless the families who lost a family member.
Here is an article from 3 years ago: http://hub.aa.com/en/aw/cancer-ben-baltz-henry-tucker-disease-nashville
Keep the Faith,JC
Happy Birthday my Son!
Written Aug 1, 2013 5:32amBen is 12 this morning! 5.5 years from all this starting and now he is 12 and starting 7th grade on the 19th of Aug.
He finished out the 6th grade with straight A's, the was a first and he was a bit proud.
June and July have been a very busy fun. The above picture is from the Freedom Springs Tri on July 4th. As you can see it was a soggy July 4th; Ben placed 2nd in age group, His first time placing in a race.
Wounded Warrior Kids Camp in June was an incredible experience for everyone involved. If ever the team comes to a town near you make a point to go see them; Ben will be bat boy again in Panama City in a couple of weeks.
Camp of the Pines came the 2nd week of July and Ben came home tired and full of smiles. He won the Ping Pong tournament and I don't beat him very often any more.
Ben did a first at the Paddy Rossbach Camp last week, he snapped his prosthetic leg in half, metal parts. They put it in a cast till we could get there with his spare leg; never a dull moment. They had 87 amputee or limb loss campers; our hat is off to all the counselors and leaders!
I said it was a camping summer, tomorrow Kim takes Ben to the Boggy Creek Camp for children who have fought cancer in Eustis, FL. It will be his first time to this camp, but he does know a couple of boys going and we have heard nothing but wonderful things about it.
While Ben has had a wonderful summer, many in the Osteo community were battling in hospitals or worse. Our prayers and thoughts are with them.
Keep the Faith,
Jubilee Kids Triathlon
Written Jun 4, 2013 5:24amThe Jubilee Kids Tri was this past Sunday; Ben and so many others had a fun, but challenging morning.Ben is happy with his results. He told me this is the first time he had not finished last or 2nd to last; I keep telling him that is not what matters, but at 11 years old it matters! He was 21 out of 29 boys in his age group.Here is a very nice segment done by FOX10 in Mobile, AL. http://www.fox10tv.com/dpp/sports/inspiring-boys-compete-in-triathlonBen enjoyed meeting Conner after the race; Conner is a bubbly young man and a joy to speak with.Baseball just ended Saturday night and Ben's team was leading till the last inning. The boys were bummed to lose the Championship game, but they A's had a great season!I am taking Ben on 6 Jun to the Endeavor Games in Edmond, OK to run in races on Saturday. Then I have to whisk him back home so he and mom can drive to Orlando for the Wounded Warrior Amputee Softball Camp on the 10th.Oh yea, he is finishing final exams this week and hopefully he has studied enough to keep his straight A's in school. Last day of school is the 6th...busy times!Busy times in a good way are stressful in themselves, but this busy is a cake walk compared to the busy of a hospital. I broke down during the interview with Simone from FOX news; the many other Osteo families are never far from my thoughts, nor how blessed my little boy Ben is for being able to "Live Life to its Fullest"!Keep the Faith,JC