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My Story

Ben is an OsteoSarcoma Survivor! Clear Scans 6 May 2013!
DX 5 Mar 08 at age 6, MAP complete 5 Oct 08.  Currently Ben is 12 years old


http://video.today.msnbc.msn.com/today/49400077#49400077 link to Today Show from Oct 2012


Ben was diagnosed on 5 March 08 with Osteo Sarcoma in his upper right Tibia, his amputation was on 16 May 08. Chemo continues thru early OCT. 08


Many ask how we found this problem with Ben. He started complaining his leg hurt somewhere around the first of Feburary. We had just finished a snow ski trip in January over MLK week. I put off his pain as an injury to sking....he took some crazy falls, I taught him how to ski and he was quite the trooper. I figured he had pull something or twisted his knee.


I was very busy at work in Feb and after returning home after my 3d time away and he was still limping I decided it was time to ask our local doc. They did some blood work and shot a few xrays. Nothing conclusive, so they sent us to P'cola the next week. ODD, they sent us to an Onocologist, Kim is a nurse so that didn't sit well.


Well from P'cola they sent us to Shands @ the Univ. of Florida, the next week, we still didn't know nor were we expecting what hit us the first week of March.


We are very grateful for how early it seems we have caught the cancer. But, it did go down his tibia about 10cm which is a long way on a 6 year old. They have to take out all the bone that has cancer and this would not leave enough to work with for limb salvage. His age and this cancer is unusual. Ben has many years of growth ahead and his Doctor and many other doctors all felt limb amputation was Ben's best option.  Hind sight is 20/20, limb salvage would not allowed Ben to be an active fun loving child.  Amputation was a God Send, many Thanks to Dr. Mark Scarborough for taking my son's right leg off at the knee perfectly!


The more I read about Osteosarcoma, the more I know we are doing what is best for Ben. Surgery and rehab and relearning to walk will not be easy for Ben nor our family. But with God's help and some wonderful Doctors all will go well.


5 Oct 2008...Ben finished Chemo. Port removal was on 20 Nov with clean scans same day.. He will do antibiotics every Sat and Sun for 6 months and have scans done every 3 months for a couple of years.


Clean scans 16 Feb 2009.


Clean Scans 5 May 2009

Clear Scans 11 Aug 2009

Clear Scans 23 Nov 2009

Clear Scans 15 Feb 2010

2d leg delivery came on 15 May 2009, one day prior to his one year anniversary of amputation.

He is well on his way to recovery. If he is running around a soccer field next year we would be extactic, only time will tell.

Ben scored a goal in outdoor soccer on November 12, 2009, unbelievable.

Improved his time in the 1 mile run to 9:50 on 27 Jan 2010.

Jan 2010 starting the process of getting a new socket made, insurance is the first call.

Ran the YMCA Country Music Kids Marathon, he ran the last mile of this in Nashville, he did something around a 9:20 mile.

Jun of 2010 Ben ran a 8:49 mile at the Billy Bowlegs 1 mile Sundown Run, his first sub 9 minute mile.

August 25th Ben Slalom skied at All Can Ski clinic at Sea World San Antonio, major sponsor is San Antonio Sports

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Kimberly Hedrick signed Ben's Guestbook.

JC, Kim and Ben,So great to read the happy updates!  We are so glad to see everyone in the Baltz family doing so well.  We know that if Ben is doing well, then this ... Read more

Lee Ann Eurs signed Ben's Guestbook.

Always wonderful to hear updates about amazing Ben! Happy new year to all! My son Evan is coming up on his five year cancer free scans in a week! We are blessed to have ... Read more

JC Baltz posted a new journal entry, "Another new foot!".

2013 has been a wonderful year for Ben and the Family!Ben recieved his CAF foot from Ossur back in Sept, well he snapped that foot very quickly(within days).  OSSUR sent ... Read more

JC Baltz added a new photo.

Ed Deramus signed Ben's Guestbook.

Hey I just wanted to introduce myself I'm Ed DeRamus  nice to meet you!! Read more

Pati Merrill signed Ben's Guestbook.

Go Ben go - you are an inspriation to all - your zest for life gives me something to share with so many - We Love you - Granpati and GPPS - GP is feeling so much better I ... Read more

JC Baltz posted a new journal entry, "Childhood Cancer Awareness Month 2013".

Ben is doing great!  He will probably need a new leg in the next couple of months but other than that “Life is Good”!  Measurements are in and the medical necessity ... Read more

Art Torno - American Airlines signed Ben's Guestbook.

Ben, Thanks to your Dad, a true American hero, and a friend of mine at AA, I have been truly inspired by your story. You are a terrific young man, someone to be privileged ... Read more

Jennifer Peterson signed Ben's Guestbook.

Happy Belated Birthday Ben!!! I hope it was an amazing day. Sounds like you've been very busy. Florida must have a lot of awesome camps, that is great! There is only one ... Read more

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