A couple of weeks ago, Brett's "button", the connector for his g and j feeding tubes, began to leak. It has been 9 months since Brett had his surgical procedure to change to this more advanced button, and we were warned to expect to have to change this new button out every 6 months. Going 9 months before needing a new button is a testament to the care that Mommy gives her kid. Brett went to Scottish Rite this morning to have his GJ button replaced. Everything went well - Brett has a new button, the folks in radiology feel like the internal tubes are successfully in their right places, and Brett didn't seem to be in any pain. The staff at Scottish Rite continue to exceed our expectations. Not only are they good at what they do, but they are very caring. I have to admit that when these folks compliment us, we really take it to heart. You can tell that they feel like we are good parents. I guess they see all kinds in their facility, but I can't imagine giving Brett less care than what we do. Shame on the people that don't care for their children. Brett went back to school last week. He is scheduled to go M,W, and F. His first day back he slept through class, which is what he does at home. After a day off, he went back to school and the teachers and nurses were ecstatic to report that Brett stayed awake the entire time. To us, that is a strong indication that he is engaged in the class and that he is paying attention to what is going on in the classroom. That makes it worth the risk to take him to school and expose him to germs. It is always a guess as to how much we should allow him to be exposed to, and even how he is feeling at any given time, but occasionally, occasionally, we get validation that were doing it right. And it is a good feeling. Dad
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