Hi everyone - We are enjoying being home so much, I just can't put it into words. We sure do miss all of our sweet nurses and other friends at the hospital, but not enough to go back for another stay anytime soon. Maybe we will have to make a non-medical visit soon?!
I'm so pleased to tell you that Brett is doing so much better!! All of the nurses at home are commenting everytime they come that they can really tell a difference. He is sleeping a ton, but he is resting comfortably and just looks to be so much more comfortable and peaceful. It is truly an answered prayer. What a blessing - thank you, God.
He is also still doing well on his BiPAP. He has had a few nights where he struggled a little, but nothing like we were dealing with before - the improvement is greatly appreciated. Little by little, we are getting back into a routine - but, that always takes a couple of weeks when we have been gone for so long. I am still doing hospital laundry!! And there are still a number of you out there that I still haven't returned calls and messages to - hang in there with me - I'll get there. One day, hopefully.
Brett has a follow-up appointment with his orthopedist this Thursday. It shouldn't be too eventful - at least I hope not. I know that we will have to discuss how tight his joints, tendons, etc. all are - and I haven't had him in any of his splints hardly at all this year - with all of the illnesses and the cast and the pressure sore - I just didn't have the heart to put him through that too. Dr. Bruce has heard this mantra several times before, so I'm sure he will not be surprised. Thankfully, he very much understands this Mommy's heart that can't put her child through too many unneccessary things when he is already so challenged with being sick, feeling horrible, and living in the hospital. Dr. Bruce is one of the most compassionate doctors I have ever met - otherwise, I'd be in big trouble!!!
Life is still extremely busy for us - I have so many major "projects" that I am working on right now that sometimes I can't see straight. I am really ready for life to settle down some - I'd like to use cruise control again sometime in the near future!! God willing - that day will come sooner rather than later.
I guess that about covers it - as long as my boy is doing better, so am I - and we are enjoying every day of being at home. What a blessing. Thanks so much for all of your prayers and support. We love you all so much - God's blessings to each of you -
Lisa