Gavin Warren
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At 5 months old, Gavin was diagnosed w/a very rare Genetic disease called Malignant Infantile Osteopetrosis. This disease would eventually cause bone marrow failue which would result in death. The only known cure for MIOP is a Stem cell/Bone Marrow Transplant. On Dec. 19, 2007 Gavin under went his Stem Cell transplant and he has done miraculously.

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  THURSDAY, JULY 10, 2008 02:51 PM, CDT
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Day +204. I am sorry I have been slacking on the updates, the kids and school have been keeping me pretty busy. I am taking an English class which is 6 weeks long. Normally the class is 16 weeks so everything is being crammed into 6 weeks. Its one essay after another. But I really like the class and I am learning lots about how to write the right way.

So I'm sure you want what you came for. News about Gavin! Gavin is doing great. We went to Memphis July 6th-8th. His counts were awesome and everything looks great. The results from the scans he had last time came back that his bone density is improving.

Gavin starts his therapies next week. He will be seeing a Physical Therapist, a Speech therapist, and a Visual Therapist. We are excited that he will get the help he needs to excel. He is doing amazing at home, but we feel he will do even better having the experts there to help.

He is talking more and playing lots. He loves to clap his hands and touch his head. He is even bouncing on his legs and standing for a few seconds. We still haven't made much progress in the eating dept. but we hope with the help of the Speech Therapist that he will be eating solid food in no time.

We had a good 4th of July, we bbq'd and lit fireworks. The boys enjoyed it. Gavin slept through the whole thing :D I hope everyone else had a good 4th too.

The fires are still raging and have gotten worse the past few days. When you walk outside your eyes burn and all you can see and smell is smoke. It is like the fire is in your own back yard. The air is now even unhealthy for regular healthy people, so needless to say we are still stuck in the house, and except for a couple of trips I have made to the grocery store, we haven't left. Dad did attempt to take the boys to the zoo on Monday when we were gone, this was the day before the fires started up real bad again. But it was in the 100's and just to hot, but they did enjoy their short time there.

That is about it from us. Hope all is well with everyone. Please continue to pray for our buddy Sully, he is having a difficult time right now. Our prayers are with them always.

Happy and confined :P

~Team Gavin~

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EMAIL AUTHOR
mikey2smom@yahoo.com

HOSPITAL INFORMATION
St. Jude Children's Research Hospital
332 N. Lauderdale
Memphis, TN 38105
United States