My Story

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At 5 months old, Gavin was diagnosed w/a very rare Genetic disease called Malignant Infantile Osteopetrosis. This disease would eventually cause bone marrow failue which would result in death. The only known cure for MIOP is a Stem cell/Bone Marrow Transplant. On Dec. 19, 2007 Gavin under went his Stem Cell transplant and he has done miraculously.

Journal

Tuesday, June 30, 2009 4:47 AM, CDT


Hey everyone. It's been a busy few weeks to say the least. Sometimes I just wish I could press a button on a remote and time would slow down. I am sure you are wondering why I am up so late, well me too. It's just been one of those nights where my brain gets the best of me. Where so many things are running through my mind that I can't shut it off to go to sleep. So here I am awake at almost 3 am. I will pay for this when I have to wake up in 5 hours :P

So I saw the movie "My Sister's Keeper," on Friday. I told Michael when I got home that I felt a blogging coming on. I think that the movie was different to watch for the people who have had a child with a life threatening disease. I know the actors are just character's, but watching a family go through this on the screen was just far to real for me. I cried, alot. Cameron Diaz did an excellent job playing this role. I just wanted to reach out and hold her, because I knew what she was feeling, and once you know that feeling you don't want anyone else to experience it. Watching your child deteriorate and feeling so helpless because there is nothing you can do, it's just the worst feeling possible.

Gavin is the light of my life, as are all my boys. I am so grateful and blessed that God has given me even one  more day with them. Sometimes I feel guilty, Gavin is here and healthy but so many others are not. I know I shouldn't feel guilty about it, but I can't help it. So many questions, so few answers. So much faith though. I know that God has a plan, and whether I like it or not, I accept it. I let him guide me and hope that I make the right decisions.

It is so quiet right now that I can hear my thoughts. Which is weird lol. Just the quiet hum of the computer and the occasional sound of the A/C turning on or off, oh and some snoring :P Even though I will need a gallon of coffee tomorrow, I love these times. This is when I like to pray, like to reflect. You ever notice how when you get some time to just take it all in, how all the information you have stashed to think about another time just bombards you? It's amazing to me the capabilities we have.

Anyway, back to the subject. There was a prayer vigil tonight for Mallerie, you can visit the website http://www.believeprayerworks.blogspot.com/ and click on her name to the left. There are many other kids there to that all need our prayers. I wasn't able to be at the prayer vigil because I was in school but I had my own little vigil before I started writing this. If you will please visit these kids' websites, sign their guestbook, let them know you are praying. You can't imagine how uplifting it can be to read peoples messages in the guestbook when you are feeling like there is no bright side, like you can't go on. I have been there, and I have read the messages and it has given me that little push I needed to keep on goin. So stop in and say a little something. It only takes a min, and it will brighten their day.

Ok folks, I should get to bed. Give your kids an extra hug and kiss and tell them you love them. Why? Because you can. Take every oppertunity to let them know just how special they are.
Thanks for reading my middle of the night rambles :P

Blessings,

~Team Gavin


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E-MAIL AUTHOR

mikey2smom@yahoo.com

HOSPITAL INFORMATION

St. Jude Children's Research Hospital
332 North Lauderdale Street
Memphis, TN 38105-2794
United States
(901)495-3300