Elise Ryne Rochman
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Elise's Myspace Site Cure Tay-Sachs

Hello, and welcome to Elise's website. Elise is a beautiful 3 year old girl that is living with Tay-Sachs disease. It is getting more and more difficult to keep up with all the people that care for and love Elise. Hopefully, we can keep in touch with all of you through this website. Please continue to check for updates and drop Elise a note.

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  MONDAY, OCTOBER 06, 2008 09:24 PM, CDT
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Elise continues to do quite well! We're cherishing the beautiful weather and spending time with her outside because we know it is not going to last very much longer. She did a wonderful job at the CFC kickoff last week and only needed to be suctioned once..she probably just wanted to show everyone just how horrible Tay-Sachs is. I am so happy that she was doing well enough to make it out for the day, her presence really helps drive our message home and I know she touched hundreds of lives.

Tim's birthday is coming up on Wednesday and I'm sure he would like nothing more than bragging rights on his babies :) We entered Eden into a cutest baby contest in St. Louis, and she is doing pretty well (although I think a baby with Cardinals gear will probably end up winning, afterall, it is St. Louis!). If you would like to make Tim's day, you can vote for Eden at http://www.thebullrocks.com/pages/babyidol_vote.html?feed=303227&article=4348647 . We think we've been blessed with some pretty adorable baby girls :) If Eden does win, she said she'd donate her winnings ($500) to the Cure Tay-Sachs foundation in honor of her sissy.

We apologize for the lack in updates, but no news is good news on our end. Thanks for stopping by!

P.S.Check out Tim's pillow in the welcome photo. Elise isn't the only one who enjoys a good head support :)

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EMAIL AUTHOR
rochman6@yahoo.com

HOSPITAL INFORMATION
St. Louis Children's Hospital
One Children's Place
St. Louis, MO 63110
United States
314.454.6000