Elise's 4th annual benefit is scheduled for June 27th at Blue Sky Vineyard in Makanda IL...you should come! www.blueskyvineyard.com

My Story

Elise's Myspace Site Cure Tay-Sachs

Hello, and welcome to Elise's website. Elise is a beautiful 4 year old girl that is living with Tay-Sachs disease. It is getting more and more difficult to keep up with all the people that care for and love Elise. Hopefully, we can keep in touch with all of you through this website. Please continue to check for updates and drop Elise a note.

Journal

Thursday, June 25, 2009 9:19 PM, CDT


Sorry it's been so long, but I wanted to share our exciting news with all of you before the end of the month...Tim already leaked it on his facebook account...you can find out what it is in the news article for the Tay-Sachs benefit this Saturday at http://www.wsiltv.com/p/news_details.php?newsID=7719&type=top .  We promise to post pictures shortly! :)

Elise is doing well, although I'm pretty sure she's tired of being stuck indoors due to this heat wave! She's loving her new role as a big sister to two..Tim loves all the photo ops he's getting and he's gotten some great pictures! 

We're really looking forward to the benefit this weekend, we have family members, friends and hopefully a lot of others that plan to make it!  Tomorrow night we're having dinner with several Tay-Sachs families and we're so excited!!! It's like a mini reunion! Saturday is supposed to be the hottest day of this heat wave...it is projected to feel well over 100 degrees!  Wish us luck with our mostly outdoor event..hope to see you there! :)

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E-MAIL AUTHOR

rochman6@yahoo.com

HOSPITAL INFORMATION

St. Louis Children's Hospital
One Children's Place
St. Louis, MO 63110
(314) 454-6000