My Story

On July 18, 2007 is when our new life began. Baby Charlie was a very energetic 19 month old who loved to explore everything and anything.

Journal

Tuesday, June 30, 2009 7:35 PM, CDT


Not to much goin on here... Its been beautiful out and i took Charlie swimming at my girlfriends house... god how he loves to swim.. he did very well holding his head up and kicking his legs... i have a video to show you... He also is doing this new thing where he scooches on his butt when he is in the kitchen or his little water playmat.. he pushes with his arms and goes backwards or in a circle it is so funny and so cute...
Well yesturday I took him to the doctors because i thought he had an ear infection.. well he dont.. everytime i asked him which ear hurt he would point to the same ear... anyway today I had to take him to the ER cause his G tube site was yucky.. they changed his tube and now he has a mini button which is flatter so it dont get as irritated as the others... i will show you.... he also had granulation... what is it you ask... well it basically is a pile of skin... it is trying to heal the hole in his stomach.. and it just keeps building up... anyway it is not bad so we just have to put some cream on it.. that will help it....  since it has been bothering him while he is on his belly he is trying to move with his knees more.... The ER was sooooo gross sooo many sick people... need face masks... a couple of kids have died from the H1N1 so far in that hospital so it was killing me to get the hell out of there.... talk about purell... the poor kid should of been gagging for as much as i used it.... Thanks mom for risking your life going with me there...lol...
He is supposed to start school on Monday but I think I will keep him home till after the stemcells.. I am to scared to take a chance by sending him... I cant believe we leave in 2 wks.. holy moly...
oh yeah he loves to use his index finger to press and touch things alot more...the control he has is so awesome...
OMG... I almost forgot to tell you... My mom bought him a toddler bed a while ago and we finally put it together... he LOVES it... I think he knows he is a big boy now... he was hysterical on it... he got mad at me when i got him out of bed in the morning... he cried till i brought the bed out to the living room so he could play on it... finally in his bed and in his own room... NEVER thought it would happen... we have slept with him for 2 yrs... i will post video of that too... he is sooo proud of himself...
well thats it for now...
Thanks for all your support and prayers.. they are working...
xoxoxoxxo

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dezert35@yahoo.com