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My Story

Carly was diagnosed with embryonal rhabdomyosarcoma stage 1, in 5/07 at 10 months old. Her plan was 48 weeks but she was diagnosed with recurrent disease in 1/08 after 7 months of chemo.  Carly has had a second relapse in 10/09 and is now considered stage 4 but we stopped chemo in 10/10 and she is currently cancer free thanks to radiation and another major surgery.  Keep praying that it stays away for good!!!

 

 



My daughter is so strong and brave. The surgeons had to remove her uterus, cervix, fallopian tubes, vagina and one ovary. They were able to save one so we are very grateful for that. Carly has been such an inspiration to our family. She truly is my hero and everyday is such a blessing. I am so proud of her and I know she will beat this once and for all. I prayed for god to do whatever it took to make her cancer free and he did. Now we just have to make sure it doesn't return. Carly should be done with chemo in Feb. 09 if there are no set backs. They are using stronger chemos now since she had anaplasia (more aggressive) and it relapsed while on chemo. I know she has won the battle already I can feel it. I love you Carly!!


Journal

Notifications

February 7, 2013 9:13am

Things are going great.  Carly is loving dance and doing awesome in school.  She is so proud of being Level 2 in math.  She is also way ahead in her reading and spelling.  Her favorite book right now is judy moody.

She has an upcoming dentist visit where she is getting a crown and filling.  She has been getting cavities and having some issues with her teeth.  We found out she is missing a few so she will need adjustments in the future. 

Her next set of scans and heart, blood checkup are 3/28.  Please pray for continued NED, clear blood work and a healthy heart.  She will see a dermatologist in May to check her skin part of her routine checkups. 

If you could also send out a prayer for Brady he is getting an EKG and echo done on 2/15 to check a heart murmur.  The doctor isn't worried just wants to check it out and make sure.  Also, I have been sick off/on and getting my tonsils out.  Its a busy next few months.  We are pushing forward and so thankful for all of you blessings. 

Please send out prayers for Vinny as well!!  His family is amazing and he is such a trooper.  Pray for healing to him and his whole family.  www.caringbridge.org/visit/vinnydigerolamo



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