Day 103…A VERY VERY GOOD DAY!!

To quote Brady’s Dr. – “This is a day to celebrate!” The results were called in while we were there this morning in the actual room with his Dr. We learned the news right along with her…Brady’s bone marrow/blood products are 100% DONOR!!! His blood type has changed to O+…he is filled with baby cells and lots of cells that make new cells…everything looks young, fresh, and healthy! There is no evidence of leukemia in his bone marrow and his chest x-ray was clean – not even a dark shady area where the old nodules were! Plain and simple…this is the BEST news we could have received at this point in the game and we are overjoyed to say the least!

The plan going forward is to get him off the last anti-rejection/immunosuppressant drug. This is a minimal 2 month process. If he shows signs of GVHD the wean will be slowed to a pace he will be able to tolerate.  And we are waiting for his liver enzymes to fall within the normal parameter from their last jump…once this happens the dosage will be decreased for the first time. When he is finally off this specific medication and not needing the extra magnesium because of it, his Broviac will come out! I cannot wait for that day, hopefully, in 3-4 months.

Speaking of extra lines…the dreaded feeding tube is another topic. The speech/feeding therapy evaluations went great the other day. He is showing all the know-how needed to properly eat. So, now we wait…for him to show more interest, for more practice, for him to just get hungry already!

And, that’s it! Thanks for sharing this very great day with us! Have a good weekend!

Love~R