My Story

Welcome! It means so much to us to know that others remember Andrew with us. Andrew's was a brief life fully lived, and we love hearing how he has inspired others to live with smiles on their faces and joy in their hearts. We look forward to the day we will see him again!

Andrew was diagnosed with diffuse intrinsic pontine glioma on October 26, 2007, days after his mother was diagnosed with breast cancer. He lived and laughed in spite of brain cancer for over 25 months before he took his final breath on earth at 1:00 am on December 4, 2009.   

April 2006

The first brain tumor symptom is noticed by a physician during a regular exam.

October 25, 2007

Andrew is taken to the Emergency Room at Sparrow Hospital in Lansing and admitted to the Pediatric Intensive Care Unit after a CT Scan and an MRI show a large area of swelling in the brainstem.

October 26, 2007

Andrew's parents receive the diagnosis of pontine glioma and learn that the prognosis is grim. He has six weeks of radiation treatment to shrink the tumor and relieve symptoms.

December 26, 2007

Andrew is determined to be ineligible for antineoplaston treatment at the Burzynksi Clinic in Houston, Texas. (It has not been long enough since radiation, and the clinic can not prove tumor progression.) His care is transferred to Dr. Burzynksi's private practice, and he starts a sporadic combination of sodium phenylbutyrate, Nexavar and Tarceva. 

February 2008

Andrew's parents decide to stop the treatment recommended by Dr. Burzynski after conducting research and realizing that the children they could find who had been treated at the Burzynski Clinic for pontine glioma had not survived.

March 2008

Andrew's parents begin to understand the importance of involving a neuro-oncologist (a specialist in pediatric brain tumors) and take him to see Dr. Stew Goldman at Children's Memorial Hospital in Chicago, Illinois. 

April 22, 2008

Andrew sees neuro-oncologist Dr. Kathy Warren at the National Institutes of Health in Bethesda, Maryland, and begins participation in her imaging study there. (This is a non treatment study open to children with brain tumors.) She is the first physician to call Andrew's tumor a diffuse intrinsic pontine glioma (DIPG).

September 11, 2008

Andrew's parents learn (as a result of an MRI with multi-voxel spectroscopy at NIH) that there is an area of concern in the tumor.

October 30, 2008

Andrew is hospitalized due to headaches, and a scan shows that the tumor is growing. Andrew's parents and physicians settle on a combination of Vincristine, Irinotecan and Temodar in an attempt to slow the progression of the tumor. 

December 2008

The tumor continues to progress. Andrew's parents and physicians settle on Temodar (full dose) in an attempt to slow tumor growth.

January 2009

The tumor continues to grow. Andrew's parents and physicians settle on Avastin and Irinotecan in a final attempt to slow progression of the tumor.

March 2009

Andrew's parents and physicians are surprised when a scan shows significant response to therapy.

July 22, 2009

Andrew leaves Sparrow Hospital after living inpatient for 5 months and 2 weeks due to complications from the combination of Decadron and Avastin. He has been wheelchairbound since March as a result of those complications.

September 2009

It is determined that Andrew's tumor is no longer responding to therapy.

November 2009

Andrew makes one final trip to NIH where he chooses, with the support of his parents and his physician, to stop treatment.

December 2, 2009

Andrew becomes painful early in the afternoon. There is swift intervention to make him comfortable, and he falls asleep.

December 4, 2009

Andrew draws his final breath on earth surrounded by his family and four close friends at 1:00 am. His tumor is donated for research to the neuro-oncologist Andrew loved at the National Institutes of Health in Bethesda, Maryland.

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shawn smith posted a new journal entry.

It's shocking to realize how long it's been since this website has really been updated--over a year! It was once such an important part of every day of our lives--an easy ... Read more

Sandy Daron signed Andrew Wayne's Guestbook.

HAPPY, HAPPY 13 BIRTHDAY, Andrew!! I miss you!!!Love ya!! C.O.L.E.'s Foundation (Caring Openly, Loving Eternally)www.colesfoundation.orghttp://www.colespages.orgEmail: ... Read more

PAM SCHWARZLOSE signed Andrew Wayne's Guestbook.

I followed Andrew several years ago with a boy that our church followed. There were about 4 that I checked on and prayed for everyday. When I got on computer today, God ... Read more

Hai Nguyen signed Andrew Wayne's Guestbook.

Andrew,Thank you for having such a great mom.  You must be an equally wonderful boy.  Her love for you has touched so many lives.  My niece ... Read more

shawn smith posted a new journal entry.

It's shocking to realize how long it's been since this website has really been updated--over a year! It was once such an important part of every day of our lives--an easy ... Read more

shawn smith posted a new journal entry.

  Pediatric Oncology Support Group offered by parents for parents   providing understanding and support for parents living with the reality of childhood ... Read more

shawn smith posted a new journal entry.

Each year in the U.S. there are aproximately 12,400 children (between the ages of birth and 19 years) who are diagnosed with cancer.    Pediatric Oncology Support ... Read more

shawn smith posted a new journal entry.

Andrew's 10th birthday is Thursday, April 21st. Though it may seem unusual to others, it's important that we mark the day he was born. Andrew loved a celebration! I ... Read more

shawn smith posted a new journal entry.

I have enjoyed writing recently and planned to continue writing more frequently; however, we returned home from vacation. I suppose that says it all. I long for time. I ... Read more

shawn smith posted a new journal entry.

As parents we do all we can to care for our children--to make sure that they are fed, clothed, sheltered and safe. We plan for academics and for life-enriching ... Read more

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