My Story

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Team brAvery's Story

Avery Gallagher five years old!

Sunday Mother's day 2007 Avery had a stiff neck. We took her to the ER they told us it was probably just a stiff neck. Monday she woke up and vomited. Tuesday still sick. Took Avery to doctors office in Hudson. They ran blood test. Her eyes looked a little cross. Wednesday, still sick vomited just wanted to lay in bed. Took her to Children's in St. Paul. They gave her IV fluids and did an xray of her neck. Eyes still looked crossed even worse. After 6 hours we went home. Thursday Mom laid in bed with Avery all day. She knew something was wrong. Friday went to normal pediatrician. He took one look at her and ordered an MRI stat. He stayed with us for the scan and showed us after that Avery had a golf ball size tumor in her cerebellum. We rushed Avery back to Children's in St. Paul. Friday May 18th is the day our lives forever changed. Our beautiful bright daughter had a brain tumor.

Monday May 21, 2007 Avery had brain surgery to remove the tumor. Pathology report said Anaplastic Medulloblastoma, a highly malignant cancerous tumor. While in surgery the surgeon reported Avery also had Leptomeinigeal Disease (a coating of cancer on her brain) something that is rarely found at diagnosis. The MRI's also found tumors on Avery's spine and another part of her brain. This too is rarely seen at diagnosis. Avery clearly has been given an extremely difficult cancer to fight. Please Pray for our beautiful little Girl.

To date this is what treatment Avery has had.

Port Placement Surgery-

Six weeks of radiation- Full brain and spine. Had to be put under for each treatment. (5400)

Six weeks of daily Carboplatin and weekly Vincristine as a desensitizer during radiation.

Went to Mayo Clinic for second opinion

Merherker line placement

Stem Cell harvesting- got 9 million

Induction Chemo- Zero counts for four weeks.

Port removal because of fungal infection

Merherker line placement but did not harvest.

Hickman line placement and G-Tube placement for feedings.

Two high dose chemo rounds with stem cell rescue suffered from colitis each time.

January 2008 Avery is in remission! Thank You God! We Praise you!

Memorial Sloan Kettering Cancer Center in NY for experimental 3F8 Antibody injections. To fight the leptomenigeal disease and kill any small undetectable cancer cells.

Ommaya surgery - Port in brain for injections

Flow study's and scans to see if Ommaya functions properly.

March 12 2008 Avery's Birthday. Test dose of 3F8.

Had four full does of 3F8. Every other week. 6 week stay in NY.

Starts Metronomic Chemo plan.

October Clear scans! Thank you God!

November 2008- Stroke like symptoms. Loss of vision, right side weakness etc. MRI, MRA, CT angiogram, and angiogram show narrowing of Avery's middle cerebral arteries. 30% and 60%. Her brain is getting deprived of proper blood flow. This damage is from radiation. It is not common so soon after treatment usually several years later. Started aspirin. Looking into options.

November - Hyperbaric Oxygen started. This is to help damaged vessels and arteries in Avery's brain. Her vision and functioning is better. Oxygen is helping. Praise God!

December- Make A Wish trip. Avery had a blast on her MAW trip to Hawaii and swimming with dolphins. Thank you Make A Wish!

December 2008- Oxygen is still helping. Perfusion scan done. Still notable difference in flow. However, most damage from stroke/episode looks healed. Started Metronomic cycle 3.

Clear Scan January 19th. Will finish up Oxygen at the end of the month. Total of 8 weeks.

January 28th had another TIA caught early rushed to ER lots of verbal disturbances and tingles in right arm again. Only one night in hospital. Did blood study changed to Plavix. The aspirin was not helping.

February-Working with Dr. Scott from Boston Children's a Neurosurgeon who specializes in MoyaMoya. He said Avery is very unique and he has not seen a child with radiation stenosis so early on. Watch and wait for now. Also did LP and a draw from Ommaya Spinal fluid was clear no active cells.

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Diane Gallagher posted a new journal entry, "What a day!".

Praise God Avery's scan was fine. NED! No Evidence of Disease. No brain bleed and her arteries have not changed. Breath!! Here is what's up. Avery woke up again this ... Read more

Kelly Wicker signed Avery's Guestbook.

Wow. Glad for NED!! Will pray for quick answers to headaches and vomiting.  Also for Lilly's upcoming surgery.  We missed all of you at the picnic yesterday.Kelly Wicker Read more

Tim Booth signed Avery's Guestbook.

Praise God for a clean scan. Will continue to pray for more answers... And for Lilly too! Read more

Diane Gallagher posted a new journal entry, "Please Pray!".

On our way to the ED with Avery. She has sever head pain. Please pray everything is ok and no evidence of disease. Please pray! Diane Read more

donna bolles signed Avery's Guestbook.

Hello Gallagher's! I am praising God  with all of you for the wonderful results you have received. This is the best news!!! Now you will really be able to go and enjoy ... Read more

Jennifer Larsen signed Avery's Guestbook.

Well, Gallaghers, I am so grateful to hear good news! Both Avery's and my dad's scans went well. I'm sure I will see you, but as I'm currently laid up at home in RF with a ... Read more

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