In Honor of Avalanna

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After much discussion, Avalanna started radiation on her eye tumor this week. We knew that this was a risky decision to make but we needed to do this. Avalanna was unable to open her right eye anymore so we were left with little choice but to do radiation - despite Avalanna having had a lot of radiation to the same region previously.

I am so happy to tell you that it looks like the radiation is working...she can now open her eye again, after just 4 days of treatment. Avalanna is SO happy / she had been really upset about her closed eye & loosing her confidence.. So glad to see the "swagger" return.:)

Tomorrow we celebrate Avalannas 6 & one half birthday with lots of her little friends... Honestly just a few months ago, I didn't even think we would make it this far.. Please Thank God with me for every single day we have our angel Avalanna with us....

Next weekend is our "Cure ATRT" 24 hr Spinathon & Spa evening. This is going to be a huge fundraiser- I can't tell you all how much we appreciate all your fundraising & genuine love we feel from you. The passion with which our dear friends fundraise to fight ATRT is incredible. Special thanks to Kristen for spearheading the Spinathon efforts & to the amazing A team- you kids Rock ;) thank you thank you.

Keep praying for a Miracle.
Love Aileen xoxo