× Estamos introduciendo nuevas características a CaringBridge. Las traducciones al español no están disponibles actualmente, pero esperamos poder agregarlos pronto. Gracias por su paciencia.


CaringBridge Is Funded by People Like You

Make a donation to CaringBridge

Honor Ava with a tax-deductible contribution to CaringBridge today.

Click here to make your donation.

Ava’s Story

Ava was born on 01/04/13. She was born with Ebsteins anomaly, pulmonary artresia, severe tricuspid valve insufficiency and tricuspid valve dysplasia.Her heart is extremely complicated. She is currently 2 years old and was in Cardiac ICU for 130 days and had 3 heart surgeries thus far. Ava is our lucky bean!

it begins with going to find out the sex of the baby. Then with a phone call the world changed. i had to go back to a high risk dr, because they needed better pictures of Ava's heart. I went and there i sat being told she may be still birth or may not make it.She may also have downs syndrome. We did an amniocentisis and found out she was clear of Down's but we were transferred to Childrens for the rest of our  care and had to see a cardiologist. We went and were told Ava had a severe case of Ebstein's Anomaly not knowing what else was wrong with her heart.Ava at 4 days old received her first surgery where they placed 2 shunts in her heart. Then at 10 days old they went back in and removed one shunt and opened the pulmonary valve and put a patch over it for better blood/oxygen flow. She was on Ecmo(life support) for 10 days, was resuscitated 3 times and continues to fight!

Latest Journal Update

quiet is good

As of now there really is nothing new to report. Ava is still resting comfortably. Her O2 sats have not increased. She is still ranging from 79-84. They have suctioned quite a bit of fluid today from her breathing tube and she has peed a ton as well so we are keeping our fingers crossed she no longer has wet lungs! We will know tomorrow morning if she does. As of now we are keeping her quite and comfortable and will hopefully make progress tomorrow
2 people hearted this


2 Comentarios

Lisa Meyer
By Lisa mother to william former 26 wk preemie now 11.
A long road ahead of all of you but god is right beside you. When you are down he is caring you. He loves you and so do allot of other people.
Jennifer matthews
By Jennifer matthews
Fingers and toes crossed!!!! Ava is one tough little girl.