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Mi historia

Ava was born on 01/04/13. She was born with Ebsteins anomaly, pulmonary artresia, severe tricuspid valve insufficiency and tricuspid valve dysplasia.Her heart is extremely complicated. She is currently 7 1/2 mos old and was in Cardiac ICU for 130 days and had 3 heart surgeries thus far. Ava is our lucky bean!



it begins with going to find out the sex of the baby. Then with a phone call the world changed. i had to go back to a high risk dr, because they needed better pictures of Ava's heart. I went and there i sat being told she may be still birth or may not make it.She may also have downs syndrome. We did an amniocentisis and found out she was clear of Down's but we were transferred to Childrens for the rest of our  care and had to see a cardiologist. We went and were told Ava had a severe case of Ebstein's Anomaly not knowing what else was wrong with her heart.Ava at 4 days old received her first surgery where they placed 2 shunts in her heart. Then at 10 days old they went back in and removed one shunt and opened the pulmonary valve and put a patch over it for better blood/oxygen flow. She was on Ecmo(life support) for 10 days, was resuscitated 3 times and continues to fight!

Fuente

Cayla Klumb posted a new journal entry, "appointments, fundraiser, and so much more".

Last week Ava had a GI appointment. She weighed in at 20 lbs 7.5 oz's and is 29 3/4" long! They are happy with her growth but because she is over a year now we just ... Lea más

Love You Ava! signed Ava's Guestbook.

Lord, I come before you today in need of your healing hand. In you all things are possible. Hold Ava's heart within yours, and renew her mind, body, and happy soul. You ... Lea más

crazy auntie uncle justin taylor surge signed Ava's Guestbook.

Happy ONE year Ava of being home! Love you and we are so proud of you little lady!! Love you to the stars and then some! Lea más

Matthew Zellmer signed Ava's Guestbook.

Dear Ava, Since I last wrote you had your first birthday, were exposed to bowling and we had Valentine's Day. I am fine with two of those three, but I will always be okay ... Lea más

Camisha Miller signed Ava's Guestbook.

So proud of you & that you walk with The Lord by your side every day! Keep up the hard work little lady! Love you to the moon!!! Your crazy auntie! 1 in 100 :) Lea más

Lisa mother to william former 26 wk preemie now 11. signed Ava's Guestbook.

Ava,Well I just read your entry from your mom and that is wonderful news you have gained and grew.  It is very important to eat. Frustrating for mom and dad Im sure with ... Lea más

Cayla Klumb added a new photo.

Lisa mother to william former 26 wk preemie now 11. signed Ava's Guestbook.

Ava and family,I am sure glad everything is going good.  I read about you all the time Ava and you and mom and dad r in my thoughts and prayers as you continue to ... Lea más

Cayla Klumb posted a new journal entry, "Officially 1 year old!".

I cannot believe it! One year has gone by and in a couple days will be 1 year since Ava's first open heart surgery. So much has happened in this first year and we are just ... Lea más

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