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Ava’s Story

Ava was born on 01/04/13. She was born with Ebsteins anomaly, pulmonary artresia, severe tricuspid valve insufficiency and tricuspid valve dysplasia.Her heart is extremely complicated. She is currently 2 years old and was in Cardiac ICU for 130 days and had 3 heart surgeries thus far. Ava is our lucky bean!



it begins with going to find out the sex of the baby. Then with a phone call the world changed. i had to go back to a high risk dr, because they needed better pictures of Ava's heart. I went and there i sat being told she may be still birth or may not make it.She may also have downs syndrome. We did an amniocentisis and found out she was clear of Down's but we were transferred to Childrens for the rest of our  care and had to see a cardiologist. We went and were told Ava had a severe case of Ebstein's Anomaly not knowing what else was wrong with her heart.Ava at 4 days old received her first surgery where they placed 2 shunts in her heart. Then at 10 days old they went back in and removed one shunt and opened the pulmonary valve and put a patch over it for better blood/oxygen flow. She was on Ecmo(life support) for 10 days, was resuscitated 3 times and continues to fight!

Latest Journal Update

it was a poop filled day!

Update on Ava:
She is having an ok day. Still cranky but better. She got her new IV put in her arm, and worked with PT on standing and sitting up. She did a great job standing today! She hasn't napped well all day but now that she had an enormous poop after an enema we are hopeful for a restful night. You know it was an issue of not pooping when it was the highlight of the day and the talk of the town here in the CICU once she pooped! Eating hasn't been overly successful but I would say still successful since she ate a half of a turkey meatball and 2 bites of spaghetti for lunch and a half slice of roast turkey and a few bites of mashed potatoes for dinner. What an exhausting day so far.
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Comments

4 Comments

Amber Gannon Medina
By Amber Gannon Medina
So happy for the poop! Okay, that sounded weird, but you know what I mean :) I swear, this is such a test of endurance, I'm so exhausted! Prayers for you guys and Ava, I hope she has a good day tomorrow and you get to see lots of smiles soon!
Jennifer matthews
By Jennifer matthews
Yay for finally having a good poop!!! Hope you feel better Ava and can get some really good rest tonight. Same to you cayla and eric. Much need rest. Hugs to all of you. Praying for a much better day tomorrow 😘
Sara Rosenthal
By Sara Rosenthal
Yay for poop! Us nurses love when our patients poop 😊 hope you feel better soon sweet Ava!
Camisha Miller
By Camisha Miller
Yay beanie!!
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