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Journal Update
Total Entries: 45
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  • Jul 21, 2011 9:47pm

    Hey Ava. Just thinking about you now. Have a wonderful day, John.

    John Capps

  • May 31, 2011 8:16am

    Jessica,


    I can't believe how big Ava has gotten.  The last time I saw you at LeeAnn's, Ava was taking a nap, so I didn't get to see her.  Also, Nicole looked so grown up the last time I saw her, and she is beautiful.  I would love to see you all again.  Let me know the next time you come by LeeAnn and Rick's so that I can see the girls again.


    Sincerely,


    Susan Johnson (LeeAnn's friend and neighbor)

    Susan Johnson

  • May 25, 2010 7:04pm

    Everytime I read a story about an H, it floors me that physicians just blow it off until they are so big and uncomfortable for these beautiful little children. Our daughter, Elizabeth, was born with an H on her neck and four doctors told us to "wait and see". Finally at age four, after the H had grown, ulcerated, and left some large areas of scar tissue, I dicovered Dr. Waner on Discover Health. I googled him and stumbled upon VBF too.  I called out to New York the next day. We were out there three weeks later and Elizabeth had reconstructive and laser dye pulse on the remaining H, on Valentine's Day 2006 at the age of 4 1/2.
    Elizabeth is now going to be turning nine soon. She is healthy and continues to help promote awareness for VBF by passing out copies of Buddy Booby's Birthmark every year and holding a fundraiser for VBF.
    I will tell her about Ava and we will keep her and your family in in our prayers. God Bless

    Sandra Peters

  • Mar 31, 2010 4:47pm

    Hi Ava
    My 5 month old daughter Olivia has a large haemangioma on her back which has ulcerated and has caused her problems for months.  She is being treated at Great Ormond St Hospital in London by Dr Mary Glover and is due to start beta blocker therapy this week.  Dr Glover's team were in Cincinnati at the Children's Hospital last week so I was interested to come across your web site.  Im very glad things have worked out for you and thank you for putting the information on the web. - Very useful.
    Janet. Manchester UK.
     

    janet ibbott

  • Mar 25, 2010 12:16pm

    Jess, Kevin, Ava,
    What a wonderful article to be published to make so many aware! Ava has grown so much  and certainly been quite the brave trooper!  Always in our hearts and prayers!
    Much love Great Aunt Meri & Great Unlce Doug

    Meri-Adele Taylor

  • Mar 25, 2010 12:02pm

    Thank you so much for raising awareness. Great article!

    All the best to you, Ava, and family.
    Glenda, VBF/SWSC

    Glenda Ethington

  • Mar 22, 2010 12:23pm

    Ava and the family look great ...fantastic!!
    hope we can get Cadence in for removal by next year.
    take care

    richard roy

  • Sep 30, 2009 12:08pm

    so glad the operation went smoothly and Ava is doing so well.still concerned over Cadence`s hemangioma as i fear she also will have problem with her right ear.doctors are going to make a decision to operate when she is 3 ,a little less than a year from now.have been going to hospital for checkup every few months.she is so smnart and happy and does not let it bother her.can not tell as we see her daily ,but am pretty sure hers is shrinking.will send pics so you can see better.
     Ava looks so happy and energetic
      rich roy

    richard roy
    trukman333@comcast.net

  • Jul 24, 2009 11:17am

    Good morning,  I am so happy to hear how amazing Ava is doing!  I also wanted to thank you and your family for all of the sacrifices you make to support our country.  My husband will be deploying in November.  The military has been an absolute Godsend to our family, especially when it comes to the medical benefits.  We could not have been as successful with my son's treatment without it.  The military has its fair share of hardships and challenges.  You are an incredible mom, and we will continue to keep all of you in our prayers!  The Delamarters http://www.caringbridge.org/visit/zacharyh

    Shelley Delamarter
    hoveshelley@hotmail.com

  • Jun 21, 2009 9:40pm

    Hi, My name is Krystal and I found your website from Google. My daughter also has a large H on her left arm. The doctor was going to remove it but after waiting 2 years she has decided to wait a little more and try to just laser it. I'm not sure what would be better. How has removing your daughters H effected you? I'm interested and I'm wondering if there are any questions I should be asking my doctor on our next visit.


    Thank you for sharing your story,

    krystal reasonover
    kreasonover@gmail.com
    hartsville, TN

  • May 4, 2009 4:19pm

    05-04-09
    Dear Ava & Family,
    So pleased to hear that your follow-up visit went so well and that your progress after surgery has been good.  Always in our hearts, thoughts and prayers!
    Much Love
    Great Aunt Meri-Adele & Great Uncle Doug

    Meri-Adele Taylor

  • May 1, 2009 5:24pm

    AVA,
    Aunt Gina is so glad you are doing so well. I love all of your pictures, you are a babydoll. You have wonderful parents that make sure you have all you need. You are a very blessed little girl.

    Regina Mohr
    cinn_girlangel1@yahoo.com
    knoxville, TN

  • Apr 3, 2009 10:55am

    hi,things sure are looking so much better for ava.does she get th ear infections a lot.do u think they are related to the hemangioma?i ask because Cadence gets them also and is constantly rubbing her ear?well just a short note and hope your loved one is safe in Iraq.am viet nam vet and know the worry people at home feel.


    rich roy

    richard roy

  • Mar 23, 2009 10:34am

    Ava is so lovely. Congratulations on your baptism. Thanks for the update!

    Glenda Ethington

  • Mar 6, 2009 10:21am

    hello,

    glad to see Ava is doing so well and learned that most important word lol..pray for u that all goes well in Iraq.vietnam veteran (marine),and i know the worry those at home have and the problems that can overwhelm you ..

    Cadence doing fine as far as growing up and being happy,BUT,her hemangioma seems to be growing again even though they upped her on the Propanolol?worries me that we may have to go another route as she will be 2 years old next month.maybe we will get in touch with shriners again and see about the burn center in cinccy.

    take care and i`m sure everything will continue to be positive for you and yours

    rich roy

    richard roy
    trukman333@comcast.net

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