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Susan Johnson
Susan Johnson
Jessica,


I can't believe how big Ava has gotten.  The last time I saw you at LeeAnn's, Ava was taking a nap, so I didn't get to see her.  Also, Nicole looked so grown up the last time I saw her, and she is beautiful.  I would love to see you all again.  Let me know the next time you come by LeeAnn and Rick's so that I can see the girls again.


Sincerely,


Susan Johnson (LeeAnn's friend and neighbor)
Sandra Peters
Sandra Peters
Everytime I read a story about an H, it floors me that physicians just blow it off until they are so big and uncomfortable for these beautiful little children. Our daughter, Elizabeth, was born with an H on her neck and four doctors told us to "wait and see". Finally at age four, after the H had grown, ulcerated, and left some large areas of scar tissue, I dicovered Dr. Waner on Discover Health. I googled him and stumbled upon VBF too.  I called out to New York the next day. We were out there three weeks later and Elizabeth had reconstructive and laser dye pulse on the remaining H, on Valentine's Day 2006 at the age of 4 1/2.
Elizabeth is now going to be turning nine soon. She is healthy and continues to help promote awareness for VBF by passing out copies of Buddy Booby's Birthmark every year and holding a fundraiser for VBF.
I will tell her about Ava and we will keep her and your family in in our prayers. God Bless
janet ibbott
janet ibbott
Hi Ava
My 5 month old daughter Olivia has a large haemangioma on her back which has ulcerated and has caused her problems for months.  She is being treated at Great Ormond St Hospital in London by Dr Mary Glover and is due to start beta blocker therapy this week.  Dr Glover's team were in Cincinnati at the Children's Hospital last week so I was interested to come across your web site.  Im very glad things have worked out for you and thank you for putting the information on the web. - Very useful.
Janet. Manchester UK.
 
richard roy
richard roy
so glad the operation went smoothly and Ava is doing so well.still concerned over Cadence`s hemangioma as i fear she also will have problem with her right ear.doctors are going to make a decision to operate when she is 3 ,a little less than a year from now.have been going to hospital for checkup every few months.she is so smnart and happy and does not let it bother her.can not tell as we see her daily ,but am pretty sure hers is shrinking.will send pics so you can see better.
 Ava looks so happy and energetic
  rich roy
Shelley Delamarter
Shelley Delamarter
Good morning, 

I am so happy to hear how amazing Ava is doing!  I also wanted to thank you and your family for all of the sacrifices you make to support our country.  My husband will be deploying in November.  The military has been an absolute Godsend to our family, especially when it comes to the medical benefits.  We could not have been as successful with my son's treatment without it.  The military has its fair share of hardships and challenges.  You are an incredible mom, and we will continue to keep all of you in our prayers! 

The Delamarters

http://www.caringbridge.org/visit/zacharyh
krystal reasonover
krystal reasonover
Hi, My name is Krystal and I found your website from Google. My daughter also has a large H on her left arm. The doctor was going to remove it but after waiting 2 years she has decided to wait a little more and try to just laser it. I'm not sure what would be better. How has removing your daughters H effected you? I'm interested and I'm wondering if there are any questions I should be asking my doctor on our next visit.


Thank you for sharing your story,
richard roy
richard roy
hi,things sure are looking so much better for ava.does she get th ear infections a lot.do u think they are related to the hemangioma?i ask because Cadence gets them also and is constantly rubbing her ear?well just a short note and hope your loved one is safe in Iraq.am viet nam vet and know the worry people at home feel.


rich roy
richard roy
richard roy
hello,

glad to see Ava is doing so well and learned that most important word lol..pray for u that all goes well in Iraq.vietnam veteran (marine),and i know the worry those at home have and the problems that can overwhelm you ..

Cadence doing fine as far as growing up and being happy,BUT,her hemangioma seems to be growing again even though they upped her on the Propanolol?worries me that we may have to go another route as she will be 2 years old next month.maybe we will get in touch with shriners again and see about the burn center in cinccy.

take care and i`m sure everything will continue to be positive for you and yours

rich roy
richard roy
richard roy
fantastic pictures.she is doing so well.i know you must feel blessed,took Cadence for our weekend hike that i started doing on sat.or sun. about a month ago,good for her and me .shes walking around like she is a queen eh!!loves to hike and be with me(: took Vella with us a couple times in the stroller,wont be to long before she is walking.

Cadence has her first meeting Wednesday with the study group .it will be 5 specialists and 4 other kids with hemangiomas.i am going along as i spend as much time with her as anyone.the medicine still working ok ,but at a slower pace than the first 3 weeks ,you know what i mean?she seems to be rubbing her ear quite a bit lately,not sure if it is because it is getting better or she has an infection.will find out wednesday for sure.

ava looks great and has a great smile .take care

love Cadence`s grampa

richard
Sandra Peters
Sandra Peters
Everytime I read a story about an H, it floors me that physicians just blow it off until they are so big and uncomfortable for these beautiful little children. Our daughter, Elizabeth, was born with an H on her neck and four doctors told us to "wait and see". Finally at age four, after the H had grown, ulcerated, and left some large areas of scar tissue, I dicovered Dr. Waner on Discover Health. I googled him and stumbled upon VBF too.  I called out to New York the next day. We were out there three weeks later and Elizabeth had reconstructive and laser dye pulse on the remaining H, on Valentine's Day 2006 at the age of 4 1/2.
Elizabeth is now going to be turning nine soon. She is healthy and continues to help promote awareness for VBF by passing out copies of Buddy Booby's Birthmark every year and holding a fundraiser for VBF.
I will tell her about Ava and we will keep her and your family in in our prayers. God Bless
Shelley Delamarter
Shelley Delamarter
Good morning, 

I am so happy to hear how amazing Ava is doing!  I also wanted to thank you and your family for all of the sacrifices you make to support our country.  My husband will be deploying in November.  The military has been an absolute Godsend to our family, especially when it comes to the medical benefits.  We could not have been as successful with my son's treatment without it.  The military has its fair share of hardships and challenges.  You are an incredible mom, and we will continue to keep all of you in our prayers! 

The Delamarters

http://www.caringbridge.org/visit/zacharyh
richard roy
richard roy
hi,things sure are looking so much better for ava.does she get th ear infections a lot.do u think they are related to the hemangioma?i ask because Cadence gets them also and is constantly rubbing her ear?well just a short note and hope your loved one is safe in Iraq.am viet nam vet and know the worry people at home feel.


rich roy
richard roy
richard roy
hello,

glad to see Ava is doing so well and learned that most important word lol..pray for u that all goes well in Iraq.vietnam veteran (marine),and i know the worry those at home have and the problems that can overwhelm you ..

Cadence doing fine as far as growing up and being happy,BUT,her hemangioma seems to be growing again even though they upped her on the Propanolol?worries me that we may have to go another route as she will be 2 years old next month.maybe we will get in touch with shriners again and see about the burn center in cinccy.

take care and i`m sure everything will continue to be positive for you and yours

rich roy
richard roy
richard roy
fantastic pictures.she is doing so well.i know you must feel blessed,took Cadence for our weekend hike that i started doing on sat.or sun. about a month ago,good for her and me .shes walking around like she is a queen eh!!loves to hike and be with me(: took Vella with us a couple times in the stroller,wont be to long before she is walking.

Cadence has her first meeting Wednesday with the study group .it will be 5 specialists and 4 other kids with hemangiomas.i am going along as i spend as much time with her as anyone.the medicine still working ok ,but at a slower pace than the first 3 weeks ,you know what i mean?she seems to be rubbing her ear quite a bit lately,not sure if it is because it is getting better or she has an infection.will find out wednesday for sure.

ava looks great and has a great smile .take care

love Cadence`s grampa

richard
Susan Johnson
Susan Johnson
Jessica,


I can't believe how big Ava has gotten.  The last time I saw you at LeeAnn's, Ava was taking a nap, so I didn't get to see her.  Also, Nicole looked so grown up the last time I saw her, and she is beautiful.  I would love to see you all again.  Let me know the next time you come by LeeAnn and Rick's so that I can see the girls again.


Sincerely,


Susan Johnson (LeeAnn's friend and neighbor)
janet ibbott
janet ibbott
Hi Ava
My 5 month old daughter Olivia has a large haemangioma on her back which has ulcerated and has caused her problems for months.  She is being treated at Great Ormond St Hospital in London by Dr Mary Glover and is due to start beta blocker therapy this week.  Dr Glover's team were in Cincinnati at the Children's Hospital last week so I was interested to come across your web site.  Im very glad things have worked out for you and thank you for putting the information on the web. - Very useful.
Janet. Manchester UK.
 
richard roy
richard roy
so glad the operation went smoothly and Ava is doing so well.still concerned over Cadence`s hemangioma as i fear she also will have problem with her right ear.doctors are going to make a decision to operate when she is 3 ,a little less than a year from now.have been going to hospital for checkup every few months.she is so smnart and happy and does not let it bother her.can not tell as we see her daily ,but am pretty sure hers is shrinking.will send pics so you can see better.
 Ava looks so happy and energetic
  rich roy
krystal reasonover
krystal reasonover
Hi, My name is Krystal and I found your website from Google. My daughter also has a large H on her left arm. The doctor was going to remove it but after waiting 2 years she has decided to wait a little more and try to just laser it. I'm not sure what would be better. How has removing your daughters H effected you? I'm interested and I'm wondering if there are any questions I should be asking my doctor on our next visit.


Thank you for sharing your story,
janet ibbott
janet ibbott
Hi Ava
My 5 month old daughter Olivia has a large haemangioma on her back which has ulcerated and has caused her problems for months.  She is being treated at Great Ormond St Hospital in London by Dr Mary Glover and is due to start beta blocker therapy this week.  Dr Glover's team were in Cincinnati at the Children's Hospital last week so I was interested to come across your web site.  Im very glad things have worked out for you and thank you for putting the information on the web. - Very useful.
Janet. Manchester UK.
 
krystal reasonover
krystal reasonover
Hi, My name is Krystal and I found your website from Google. My daughter also has a large H on her left arm. The doctor was going to remove it but after waiting 2 years she has decided to wait a little more and try to just laser it. I'm not sure what would be better. How has removing your daughters H effected you? I'm interested and I'm wondering if there are any questions I should be asking my doctor on our next visit.


Thank you for sharing your story,
richard roy
richard roy
hi,things sure are looking so much better for ava.does she get th ear infections a lot.do u think they are related to the hemangioma?i ask because Cadence gets them also and is constantly rubbing her ear?well just a short note and hope your loved one is safe in Iraq.am viet nam vet and know the worry people at home feel.


rich roy
Susan Johnson
Susan Johnson
Jessica,


I can't believe how big Ava has gotten.  The last time I saw you at LeeAnn's, Ava was taking a nap, so I didn't get to see her.  Also, Nicole looked so grown up the last time I saw her, and she is beautiful.  I would love to see you all again.  Let me know the next time you come by LeeAnn and Rick's so that I can see the girls again.


Sincerely,


Susan Johnson (LeeAnn's friend and neighbor)
richard roy
richard roy
so glad the operation went smoothly and Ava is doing so well.still concerned over Cadence`s hemangioma as i fear she also will have problem with her right ear.doctors are going to make a decision to operate when she is 3 ,a little less than a year from now.have been going to hospital for checkup every few months.she is so smnart and happy and does not let it bother her.can not tell as we see her daily ,but am pretty sure hers is shrinking.will send pics so you can see better.
 Ava looks so happy and energetic
  rich roy
richard roy
richard roy
fantastic pictures.she is doing so well.i know you must feel blessed,took Cadence for our weekend hike that i started doing on sat.or sun. about a month ago,good for her and me .shes walking around like she is a queen eh!!loves to hike and be with me(: took Vella with us a couple times in the stroller,wont be to long before she is walking.

Cadence has her first meeting Wednesday with the study group .it will be 5 specialists and 4 other kids with hemangiomas.i am going along as i spend as much time with her as anyone.the medicine still working ok ,but at a slower pace than the first 3 weeks ,you know what i mean?she seems to be rubbing her ear quite a bit lately,not sure if it is because it is getting better or she has an infection.will find out wednesday for sure.

ava looks great and has a great smile .take care

love Cadence`s grampa

richard
Sandra Peters
Sandra Peters
Everytime I read a story about an H, it floors me that physicians just blow it off until they are so big and uncomfortable for these beautiful little children. Our daughter, Elizabeth, was born with an H on her neck and four doctors told us to "wait and see". Finally at age four, after the H had grown, ulcerated, and left some large areas of scar tissue, I dicovered Dr. Waner on Discover Health. I googled him and stumbled upon VBF too.  I called out to New York the next day. We were out there three weeks later and Elizabeth had reconstructive and laser dye pulse on the remaining H, on Valentine's Day 2006 at the age of 4 1/2.
Elizabeth is now going to be turning nine soon. She is healthy and continues to help promote awareness for VBF by passing out copies of Buddy Booby's Birthmark every year and holding a fundraiser for VBF.
I will tell her about Ava and we will keep her and your family in in our prayers. God Bless
Shelley Delamarter
Shelley Delamarter
Good morning, 

I am so happy to hear how amazing Ava is doing!  I also wanted to thank you and your family for all of the sacrifices you make to support our country.  My husband will be deploying in November.  The military has been an absolute Godsend to our family, especially when it comes to the medical benefits.  We could not have been as successful with my son's treatment without it.  The military has its fair share of hardships and challenges.  You are an incredible mom, and we will continue to keep all of you in our prayers! 

The Delamarters

http://www.caringbridge.org/visit/zacharyh
richard roy
richard roy
hello,

glad to see Ava is doing so well and learned that most important word lol..pray for u that all goes well in Iraq.vietnam veteran (marine),and i know the worry those at home have and the problems that can overwhelm you ..

Cadence doing fine as far as growing up and being happy,BUT,her hemangioma seems to be growing again even though they upped her on the Propanolol?worries me that we may have to go another route as she will be 2 years old next month.maybe we will get in touch with shriners again and see about the burn center in cinccy.

take care and i`m sure everything will continue to be positive for you and yours

rich roy