My Story

Hello! My name is Ava! I was born with a large hemangioma on my right shoulder that extended to my elbow, and a small on on the back of my neck. I was also born with a type of dwarfism that is genetic called Leri-Weill Syndrome. (see resources tab) I had removal June 12th 2008 at Childrens in Cincinnati. See my journal, photos and be sure to sign my questbook!



"The great Spirit looks at a man and a woman before he gives them a child. If they are brave and strong, and strong in spirit then the Great Spirit will give them one of his special children. These are the ones many white people called handicapped or defective. Indians believe them wrong. These special children are given special gifts from the Great Spirit. The ability to accomplish much for Him...they have a special call for Him and a special heart, joy and Spirit. "

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JESSICA BALL posted a new journal entry.

I cant believe its been over a year since our last post. Here is an updated photo of Ava! Read more

Susan Johnson signed AVA's Guestbook.

Jessica, I can't believe how big Ava has gotten.  The last time I saw you at LeeAnn's, Ava was taking a nap, so I didn't get to see her.  Also, Nicole looked so grown ... Read more

JESSICA BALL posted a new journal entry.

I cant believe its been over a year since our last post. Here is an updated photo of Ava! Read more

Sandra Peters signed AVA's Guestbook.

Everytime I read a story about an H, it floors me that physicians just blow it off until they are so big and uncomfortable for these beautiful little children. Our ... Read more

janet ibbott signed AVA's Guestbook.

Hi Ava My 5 month old daughter Olivia has a large haemangioma on her back which has ulcerated and has caused her problems for months.  She is being treated at Great ... Read more

Meri-Adele Taylor signed AVA's Guestbook.

Jess, Kevin, Ava, What a wonderful article to be published to make so many aware! Ava has grown so much  and certainly been quite the brave trooper!  Always in our ... Read more

Glenda Ethington signed AVA's Guestbook.

Thank you so much for raising awareness. Great article! All the best to you, Ava, and family. Glenda, VBF/SWSC Read more

richard roy signed AVA's Guestbook.

Ava and the family look great ...fantastic!! hope we can get Cadence in for removal by next year. take care Read more

JESSICA BALL posted a new journal entry.

AVA IS IN THE LOCAL NEWPAPER TODAY. WWW.RICHMONDREGISTER.COM  UNDER LOCAL "RAISING AWARENESS"   Read more

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