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Autumn’s Story

Autumn Elizabeth Markos was born at 2:56 pm on October 1, 2012. She is 5 lbs 7.5 oz and 17.25 inches long.

Autumn was born with a heart condition called Ebstein's Anomaly. Ebstein's anomaly is a condition in which the tricuspid valve between your right heart chambers is malformed and sits lower than normal in the lower-right ventricle.

Autumn heart was too weak from multiple surgeries and she also has a clotting disorder, because of this Autumn received a heart transplant from her angel on 2/3/13.

Alan and I found out about Autumn's heart condition at a 24 week ultrasound. God was already working in our lives because at my 20 week ultrasound the doctor did not find anything wrong with Autumn's heart. Everything looked normal and she was healthy. Our little angel just happened to be moving around so much we couldn't get good pictures of her heart and the circulation in my placenta (because I had high blood pressure with Aiden) so he had asked me come back at 24 weeks. I said of course; I wanted to see that little girl and get more pictures! Two weeks later I got a phone call from my doctor that changed our lives forever.

That is when we were told that I had to see a specialist at Children's because of this rare heart condition. This is and will be a long journey, but we are grateful for so many things. We are grateful we knew about this condition before she was born, we are grateful we made it to 37 weeks-full term, we are grateful she is a good eater and loves to suck on her nuk, we are so grateful for all of our friends and family who are willing to help us with Alexis and Aiden, food, essentials for Autumn, and so much more.

Thank you so much for the and please pray for us. Thank you very much for your generosity. God Bless!

Latest Journal Update

Yearly biopsy

This weekend Alan and I were able to share Autumn's journey with the St. Alphonsus confirmation students.

It is truly amazing. We also went on retreat in November. This is something I have been doing for the last 12 years.

We know that God gave us Autumn for many reasons. One big reason is to share our faith journey and raise awareness for CHD'S and organ donation.

Autumn's Wish Foundation is getting ready to deliver Christmas presents to the cardiac ICU. We are so overwhelmed with the generosity of our family, friends, and even complete strangers. We have so many gifts to share with those families who will be staying in the CICU over the holidays. We will also we delivering gifts to the CICU in February for Autumn's heart birthday.

I wanted to let you all know that Autumn's yearly biopsy of her heart is scheduled for February, 9th. They will take 3-4 pieces from Autumn's heart and check for rejection. They also check the pressures of her heart to make sure everything is functioning well.

Our next check up for clinic is January,21st and the best news of all....This week Autumn officially has dropped physical therapy from weekly to every other week!!!! Wooohooo! We still have occupational therapy weekly, but we are hoping to do the same thing! It's amazing how well she truly is doing!

We are so blessed. Thank you for all the love and support. Blessings to you all!
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1 Comment

Lois Spaay
By Lois Spaay
What a little miracle! THANK YOU for keeping us updated on her progress. My neighbor just had a baby about 2 weeks ago who underwent heart surgery last Thursday for a known defect during the pregnancy. Ally is doing well and I know God is shining down on her just like he has been for Autumn. I spied you in church yesterday with the confirmants while I was singing in choir and wondered how Autumn was doing. Merry Christmas to you all <3