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Autumn’s Story

Autumn Elizabeth Markos was born at 2:56 pm on October 1, 2012. She is 5 lbs 7.5 oz and 17.25 inches long.

Autumn was born with a heart condition called Ebstein's Anomaly. Ebstein's anomaly is a condition in which the tricuspid valve between your right heart chambers is malformed and sits lower than normal in the lower-right ventricle.

Autumn heart was too weak from multiple surgeries and she also has a clotting disorder, because of this Autumn received a heart transplant from her angel on 2/3/13.

Alan and I found out about Autumn's heart condition at a 24 week ultrasound. God was already working in our lives because at my 20 week ultrasound the doctor did not find anything wrong with Autumn's heart. Everything looked normal and she was healthy. Our little angel just happened to be moving around so much we couldn't get good pictures of her heart and the circulation in my placenta (because I had high blood pressure with Aiden) so he had asked me come back at 24 weeks. I said of course; I wanted to see that little girl and get more pictures! Two weeks later I got a phone call from my doctor that changed our lives forever.

That is when we were told that I had to see a specialist at Children's because of this rare heart condition. This is and will be a long journey, but we are grateful for so many things. We are grateful we knew about this condition before she was born, we are grateful we made it to 37 weeks-full term, we are grateful she is a good eater and loves to suck on her nuk, we are so grateful for all of our friends and family who are willing to help us with Alexis and Aiden, food, essentials for Autumn, and so much more.

Thank you so much for the and please pray for us. Thank you very much for your generosity. God Bless!

Latest Journal Update

Biopsy

Hello everyone,

I am so sorry I didn't update everyone earlier, but Autumn ended up not having her biopsy because of a bad cold/cough and fever.

Our team didn't want to risk putting her under since she wasn't feeling well. We did have clinic on Tuesday instead. She had blood work and an echocardiogram. Over all everything looked great and they were very pleased.

Our team decided to make a big change with her medicine. They think that we are suppressing Autumn's immune system too much. She was on a very low dose of cellcept. This medicine is a rejection medicine that helps her body not reject her heart. Well, this medicine is causing her white blood cell count to be too low which is a concern. So our team decided to stop the cellcept completely. We will watch her closely and check her heart out by doing the biopsy on March 1st. Our team doesn't believe she will show any signs of rejection. They truly believe this will help her over all feel better.

I will admit this news scared me very much, but I do think this is the best decision for Autumn. Please say some extra prayers for Autumn. We want her to adjust to this change well.

Also, as most of you know. Autumn will be a big sister very soon! I could have blessing number 4 anytime now! We are very excited and getting everything ready the best we can.

Thank you for all the love and prayers! We appreciate them more than you know!❤️❤️❤️❤️