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Autumn’s Story

Autumn Elizabeth Markos was born at 2:56 pm on October 1, 2012. She is 5 lbs 7.5 oz and 17.25 inches long.

Autumn was born with a heart condition called Ebstein's Anomaly. Ebstein's anomaly is a condition in which the tricuspid valve between your right heart chambers is malformed and sits lower than normal in the lower-right ventricle.

Autumn heart was too weak from multiple surgeries and she also has a clotting disorder, because of this Autumn received a heart transplant from her angel on 2/3/13.

Alan and I found out about Autumn's heart condition at a 24 week ultrasound. God was already working in our lives because at my 20 week ultrasound the doctor did not find anything wrong with Autumn's heart. Everything looked normal and she was healthy. Our little angel just happened to be moving around so much we couldn't get good pictures of her heart and the circulation in my placenta (because I had high blood pressure with Aiden) so he had asked me come back at 24 weeks. I said of course; I wanted to see that little girl and get more pictures! Two weeks later I got a phone call from my doctor that changed our lives forever.

That is when we were told that I had to see a specialist at Children's because of this rare heart condition. This is and will be a long journey, but we are grateful for so many things. We are grateful we knew about this condition before she was born, we are grateful we made it to 37 weeks-full term, we are grateful she is a good eater and loves to suck on her nuk, we are so grateful for all of our friends and family who are willing to help us with Alexis and Aiden, food, essentials for Autumn, and so much more.

Thank you so much for the and please pray for us. Thank you very much for your generosity. God Bless!

Latest Journal Update

The Latest Update

I am so sorry I haven't been doing a good job updating you all on Autumn. Most of you know the latest updates by looking at Autumn's Facebook page called Autumn's Battle.

Autumn recently spent 4 days in the hospital. She had a bad virus, ear infection, and a stomach bug. She wasn't nearly eating and drinking like she should be so she had to get admitted for dehydration. Her anti rejection medicine levels were extremely high; more than three times what they should be. That was extremely scary and overwhelming, but so far her heart looks fine. We were more concerned about her kidneys and how dry she was. Autumns kidneys have to go through a lot of work, since they have to filter so many strong medicines (her 2 rejection meds).

Autumn had to get IV fluids and she also was put on some antibiotics. We are carefully watching her blood levels and checking her kidneys. We had blood work last Wednesday, Friday, and today. We were told we are extremely lucky she didn't go into kidney failure...that's how dehydrated she was. I was a little frustrated with that comment, because it took me 3 different doctor visits for her to get seen by our transplant team. I knew she was so sick and it was getting worse, BUT now she is eating like crazy, happy, and playing.

Autumn is slowly walking and standing on her own. She gets tired easily and prefers to crawl. It's taking her a bit to feel comfortable moving on her own. We have our first physical therapy session this Friday. We are also hoping next week to do two sessions. Autumn needs it!

Last Wednesday, Autumn turned 2! I still can't believe it. And on Friday we celebrated 20 months post transplant! Amazing! Grateful for everyday that God has given us.