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Our beautiful daughter, Ashley, was born with Neurofibromatosis Type 1.  Ashley lives with chronic pain from tumors that grow on the nerves throughout her body.  Please read more about neurofibromatosis at:  www.ctf.org

Ashley was born with a genetic disorder called Neurofibromatosis (NF). You can read more about NF at : www.ctf.org This disorder has caused numerous tumors to grow internally on Ashleys nerves. Ashley has tumors throughout her body, including her extremities. These tumors cause Ashley to have chronic pain, and she has had several surgeries to debulk the most dangerous and painful tumors. There is no treatment at this time except surgery, which often cannot be performed because surgery results in dysfunction because nerves have to be cut to remove the tumors. We are committed as a family to fund research for Neurofibromatosis until treatments and a cure are found, and we have faith that that will happen in Ashley's lifetime.

Fuente

Becky Vacanti posted a new journal entry, "Cannon Beach!".

Dear Family and friends, Let us thank you all so much for your donations to the Cupid's Undie Run this year, as team 'skivvies4Ashley' raised $10,530, the top team in ... Lea más

Becky Vacanti added a new photo.

Becky Vacanti added a new photo.

Trish Wilcox signed Ashley's Guestbook.

Ashley,You are in my continued prayers.  Stay strong....thinking about you....Cousin Trish Lea más

Carri Siebenmark signed Ashley's Guestbook.

Im so proud of her determined spirit! We will pray for some relief. Much love, The Siebenmarks Lea más

Dawn Lowell signed Ashley's Guestbook.

Ashley we are routing for you out here in California!  Your mom has been such an inspiration to my family!!  Much love coming your way girl.  xoxoxoxoxo  The Lowell ... Lea más

susan white signed Ashley's Guestbook.

You are amazing Ashley and so glad you got to visit Cannon Beach.  We love the magic of that place too and Pig n' Pancake is the best!  Wish we had one here!  Praying ... Lea más

Claudia Siebenmark signed Ashley's Guestbook.

You are an amazing young lady Ashley. With an amazing and wonderful family. In my heart and prayers always. Much love and hugs,Claudia Lea más

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