×

CaringBridge Is Funded by People Like You

Make a donation to CaringBridge

Honor Ashley with a tax-deductible contribution to CaringBridge today.

Click here to make your donation.

My Story


Our beautiful daughter, Ashley, was born with Neurofibromatosis Type 1.  Ashley lives with chronic pain from tumors that grow on the nerves throughout her body.  Please read more about neurofibromatosis at:  www.ctf.org

Ashley was born with a genetic disorder called Neurofibromatosis (NF). You can read more about NF at : www.ctf.org This disorder has caused numerous tumors to grow internally on Ashleys nerves. Ashley has tumors throughout her body, including her extremities. These tumors cause Ashley to have chronic pain, and she has had several surgeries to debulk the most dangerous and painful tumors. There is no treatment at this time except surgery, which often cannot be performed because surgery results in dysfunction because nerves have to be cut to remove the tumors. We are committed as a family to fund research for Neurofibromatosis until treatments and a cure are found, and we have faith that that will happen in Ashley's lifetime.

Feed

Becky Vacanti added a new photo.

Becky Vacanti posted a new journal entry, "HOPE".

Happy spring to our family and friends, Numerous times over the years, we have heard the remarks, ‘I NF but NF does not have me’.  I’ve tried to reconcile that ... Read more

Becky Vacanti added a new photo.

Becky Vacanti added a new photo.

Becky Vacanti added a new photo.

Trish Wilcox signed Ashley's Guestbook.

Ashley,You are in my continued prayers.  Stay strong....thinking about you....Cousin Trish Read more

Carri Siebenmark signed Ashley's Guestbook.

Im so proud of her determined spirit! We will pray for some relief. Much love, The Siebenmarks Read more

Dawn Lowell signed Ashley's Guestbook.

Ashley we are routing for you out here in California!  Your mom has been such an inspiration to my family!!  Much love coming your way girl.  xoxoxoxoxo  The Lowell ... Read more

Show more recent activity