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Ashley’s Story

Our beautiful daughter, Ashley, was born with Neurofibromatosis Type 1.  Ashley lives with chronic pain from tumors that grow on the nerves throughout her body.  Please read more about neurofibromatosis at:  www.ctf.org

Ashley was born with a genetic disorder called Neurofibromatosis (NF). You can read more about NF at : www.ctf.org This disorder has caused numerous tumors to grow internally on Ashleys nerves. Ashley has tumors throughout her body, including her extremities. These tumors cause Ashley to have chronic pain, and she has had several surgeries to debulk the most dangerous and painful tumors. There is no treatment at this time except surgery, which often cannot be performed because surgery results in dysfunction because nerves have to be cut to remove the tumors. We are committed as a family to fund research for Neurofibromatosis until treatments and a cure are found, and we have faith that that will happen in Ashley's lifetime.

Latest Journal Update

Merry Christmas!

Ashley wishes a very Merry Christmas to all of our family and friends!
Ashley was admitted to the local hospital again earlier this month, and after a couple of tough procedures, was back home with us after four days.  It was a blessing for her to be so close to home this time, and we were so grateful for the care that she received.  There may not be a diagnosis yet, but more questions have been answered.  Frankly, watching Ashley go through all of the questioning, poking and more poking is awful.  Sometimes, she talks about giving up, but then she rallies, and we know, by the grace of God, that she keeps fighting!
Each one of you is a precious gift to our daughter, and we pray for all of you to have continued good health, prosperity in all areas of your lives, and the Lord's  peace in your heart.  
Every good gift and every perfect gift is from above.......James 1:17