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Ashley’s Story


Our beautiful daughter, Ashley, was born with Neurofibromatosis Type 1.  Ashley lives with chronic pain from tumors that grow on the nerves throughout her body.  Please read more about neurofibromatosis at:  www.ctf.org

Ashley was born with a genetic disorder called Neurofibromatosis (NF). You can read more about NF at : www.ctf.org This disorder has caused numerous tumors to grow internally on Ashleys nerves. Ashley has tumors throughout her body, including her extremities. These tumors cause Ashley to have chronic pain, and she has had several surgeries to debulk the most dangerous and painful tumors. There is no treatment at this time except surgery, which often cannot be performed because surgery results in dysfunction because nerves have to be cut to remove the tumors. We are committed as a family to fund research for Neurofibromatosis until treatments and a cure are found, and we have faith that that will happen in Ashley's lifetime.

Latest Journal Update

Cupids and a Cure!

Hello to all!
February has become an important month in our family, as one of the most successful fundraising events for Neurofibromatosis (NF) happens around Valentine's day nationwide; the Cupid's Undie Run, which benefits the Children's Tumor Foundation (CTF).  CTF is the star of hope in our lives, funding clinical trials and research for NF!  Please help us keep the HOPE alive, and you CAN help with any donation, or joining in on the fun by starting or joining and Cupid's Undie Run Team in your area.  We are truly grateful for all of you!
If you would like to make a donation to Ashley's Team, the link is:

https://my.cupids.org/teampage.asp?fundid=17643&_ga=1.246300039.243499385.1444872789
To donate to Ashley's team, please scroll down and click on any team member to make a donation-thank you!

Ashley would like you all to know her greatest desire begins with regaining her strength and having no pain from the relentless tumors, because she has hopes and dreams for her future days.  She will tell you that she dreams of having her own family one day, so we ask you to join us to make these hopes and dreams possible!  Our hearts thank you with the deepest sincerity!