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susan white
susan white
You are amazing Ashley and so glad you got to visit Cannon Beach.  We love the magic of that place too and Pig n' Pancake is the best!  Wish we had one here!  Praying for you every day and sending you lots of love and patience to continually work with your doctors to keep you safe and better.

Love,

Susan and Gene
Marcy Andre
Marcy Andre
Thank you, Ashley and family for this wonderful description of NF as a disorder and not a disease.  May I copy and paste your entry to Jay's CB page to help others understand what Ashley is going through and how NF affects her?  You can let me know via FB if you wish or by responding to Jay's CB guest book.


Sherri Silesky
Sherri
Hi Ashley!  I read your last entry but did not sign.  I hope you are doing well; I know it's tough.  Just remember to breathe (a needed reminder for me as well) and I know it's hard to do in pain.  I find I tighten my legs in pain, which makes it worse.  So I guess paying attention to your muscles helps too.

So much to remember....hang in there!
Cheryle Noble
Cheryle

It's not just Harborview that ignores HEPA.... I've had awful experiences with doc offices and ER's that do that. How awful to go through that with all the pain and discomfort Ash was feeling! Good docs & hospitals are a rare commodity these days.... and worse for those with NF. I have been treated very poorly at Good Sam & St. Francis over the years. I am so glad to hear that Ashley had nothing like an appendicitis, etc. but so sad to hear how she was treated so poorly.

Hang in there! I wanna punch NF in its big fat mouth too!!

Cheryle 


Marcy Andre
Marcy Andre
Uhg....twelve hours on a gurney is very uncomfortable when one is not in pain so I can't even begin to imagine what it would be like with the pain you were having.  It is disappointing that they did admit you but that is now water under the bridge.  (Don't you hate clichés?)

Like others, you are and will continue to be one of my NF Heroes.

Becky, thank you for your words of encouragement on Jay's CB page. Arizona State has an undie run but it isn't a Cupid Undie Run although it is for charity.   Looks like Phoenix is not an NF destination.

Thank you for all that your family does to spread awareness about NF.

www.caringbridge.org/visit/jayandre
Sherri Silesky
Sherri
Hi Ashley!  I read your last entry but did not sign.  I hope you are doing well; I know it's tough.  Just remember to breathe (a needed reminder for me as well) and I know it's hard to do in pain.  I find I tighten my legs in pain, which makes it worse.  So I guess paying attention to your muscles helps too.

So much to remember....hang in there!
Marcy Andre
Marcy Andre
Uhg....twelve hours on a gurney is very uncomfortable when one is not in pain so I can't even begin to imagine what it would be like with the pain you were having.  It is disappointing that they did admit you but that is now water under the bridge.  (Don't you hate clichés?)

Like others, you are and will continue to be one of my NF Heroes.

Becky, thank you for your words of encouragement on Jay's CB page. Arizona State has an undie run but it isn't a Cupid Undie Run although it is for charity.   Looks like Phoenix is not an NF destination.

Thank you for all that your family does to spread awareness about NF.

www.caringbridge.org/visit/jayandre
susan white
susan white
You are amazing Ashley and so glad you got to visit Cannon Beach.  We love the magic of that place too and Pig n' Pancake is the best!  Wish we had one here!  Praying for you every day and sending you lots of love and patience to continually work with your doctors to keep you safe and better.

Love,

Susan and Gene
Marcy Andre
Marcy Andre
Thank you, Ashley and family for this wonderful description of NF as a disorder and not a disease.  May I copy and paste your entry to Jay's CB page to help others understand what Ashley is going through and how NF affects her?  You can let me know via FB if you wish or by responding to Jay's CB guest book.


Cheryle Noble
Cheryle

It's not just Harborview that ignores HEPA.... I've had awful experiences with doc offices and ER's that do that. How awful to go through that with all the pain and discomfort Ash was feeling! Good docs & hospitals are a rare commodity these days.... and worse for those with NF. I have been treated very poorly at Good Sam & St. Francis over the years. I am so glad to hear that Ashley had nothing like an appendicitis, etc. but so sad to hear how she was treated so poorly.

Hang in there! I wanna punch NF in its big fat mouth too!!

Cheryle 


Sherri Silesky
Sherri
Hi Ashley!  I read your last entry but did not sign.  I hope you are doing well; I know it's tough.  Just remember to breathe (a needed reminder for me as well) and I know it's hard to do in pain.  I find I tighten my legs in pain, which makes it worse.  So I guess paying attention to your muscles helps too.

So much to remember....hang in there!
Cheryle Noble
Cheryle

It's not just Harborview that ignores HEPA.... I've had awful experiences with doc offices and ER's that do that. How awful to go through that with all the pain and discomfort Ash was feeling! Good docs & hospitals are a rare commodity these days.... and worse for those with NF. I have been treated very poorly at Good Sam & St. Francis over the years. I am so glad to hear that Ashley had nothing like an appendicitis, etc. but so sad to hear how she was treated so poorly.

Hang in there! I wanna punch NF in its big fat mouth too!!

Cheryle 


Marcy Andre
Marcy Andre
Uhg....twelve hours on a gurney is very uncomfortable when one is not in pain so I can't even begin to imagine what it would be like with the pain you were having.  It is disappointing that they did admit you but that is now water under the bridge.  (Don't you hate clichés?)

Like others, you are and will continue to be one of my NF Heroes.

Becky, thank you for your words of encouragement on Jay's CB page. Arizona State has an undie run but it isn't a Cupid Undie Run although it is for charity.   Looks like Phoenix is not an NF destination.

Thank you for all that your family does to spread awareness about NF.

www.caringbridge.org/visit/jayandre
susan white
susan white
You are amazing Ashley and so glad you got to visit Cannon Beach.  We love the magic of that place too and Pig n' Pancake is the best!  Wish we had one here!  Praying for you every day and sending you lots of love and patience to continually work with your doctors to keep you safe and better.

Love,

Susan and Gene
Marcy Andre
Marcy Andre
Thank you, Ashley and family for this wonderful description of NF as a disorder and not a disease.  May I copy and paste your entry to Jay's CB page to help others understand what Ashley is going through and how NF affects her?  You can let me know via FB if you wish or by responding to Jay's CB guest book.