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My Story


Our beautiful daughter, Ashley, was born with Neurofibromatosis Type 1.  Ashley lives with chronic pain from tumors that grow on the nerves throughout her body.  Please read more about neurofibromatosis at:  www.ctf.org

Ashley was born with a genetic disorder called Neurofibromatosis (NF). You can read more about NF at : www.ctf.org This disorder has caused numerous tumors to grow internally on Ashleys nerves. Ashley has tumors throughout her body, including her extremities. These tumors cause Ashley to have chronic pain, and she has had several surgeries to debulk the most dangerous and painful tumors. There is no treatment at this time except surgery, which often cannot be performed because surgery results in dysfunction because nerves have to be cut to remove the tumors. We are committed as a family to fund research for Neurofibromatosis until treatments and a cure are found, and we have faith that that will happen in Ashley's lifetime.

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Becky Vacanti posted a new journal entry, "Happy Birthday Ashley!!".

Happy Birthday beautiful daughter!  May your special day be as sweet and lovely as you are to us.  We love you so very much, and are so happy to celebrate another ... Read more

Becky Vacanti added a new photo.

Becky Vacanti added a new photo.

Becky Vacanti added a new photo.

Becky Vacanti posted a new journal entry, "Home sweet home".

Dear Family and friends,      We brought our sweet daughter home on Saturday, with mixed emotions.  We are so glad that Ashley is home where we can give her our ... Read more

Becky Vacanti posted a new journal entry, "Back to the hospital ):".

Dear Family and friends,Ashley came home from the hospital on Saturday, not feeling great, but the doctors believed that the infection they diagnosed while Ashley was in ... Read more

Linda Lee signed Ashley's Guestbook.

Hi Ashley,I hope you can come home soon. I pray for a cure for NF. I have a young friend who has the same thing. What do you like to do in summer? Can you do outdoor ... Read more

Becky Vacanti posted a new journal entry, "Day Twelve.........!".

Dear Family and friends,It is day twelve, as of today, and Ashley is still in the hospital, trying to recover so that she feels well enough to come home.  We miss her, ... Read more

Becky Vacanti added a new photo.

Becky Vacanti posted a new journal entry, "Hospital update".

Dear Family and friends,Ashley made it to Portland, but during the night prior to Van's Warped Tour, became very ill and we had to return home the next day.  Ashley was ... Read more

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