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Ashley’s Story


Our beautiful daughter, Ashley, was born with Neurofibromatosis Type 1.  Ashley lives with chronic pain from tumors that grow on the nerves throughout her body.  Please read more about neurofibromatosis at:  www.ctf.org

Ashley was born with a genetic disorder called Neurofibromatosis (NF). You can read more about NF at : www.ctf.org This disorder has caused numerous tumors to grow internally on Ashleys nerves. Ashley has tumors throughout her body, including her extremities. These tumors cause Ashley to have chronic pain, and she has had several surgeries to debulk the most dangerous and painful tumors. There is no treatment at this time except surgery, which often cannot be performed because surgery results in dysfunction because nerves have to be cut to remove the tumors. We are committed as a family to fund research for Neurofibromatosis until treatments and a cure are found, and we have faith that that will happen in Ashley's lifetime.

Latest Journal Update

Happy Memorial Day!

Dear Family and friends,
Ashley is frequently reading about and talking about past wars and current wars, and has always been proud of her country, and the men and women, past and present, who make America truly free!  We all want to recognize and thank our family members, those who have served, and those currently serving, this great country that we live in.  Although we all have different thoughts, hopes and desires, the ability to express those thoughts and live our lives in freedom from persecution is more valuable than any disagreement.  From our family to yours, we send our deepest appreciation and prayers for our country!  God bless the USA.
Enjoy and appreciate your Memorial Day!

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Comments

1 Comment

Linda Lee
By Linda Lee
Ashley, I appreciate your patriotism! We live in a time when wars are not as clearly defined as in former eras.
I also enjoy reading about our military and their past victories and lives. One book I recently completed is titled, "Unbroken, A WWII Story of Survival, Resilience and . . . " by Laura Hillenbrand. It is mostly about one man, his friends and crew mates aboard a bomber, and his family back home. I recommend it highly. I read it on Kindle, using their Unlimited book loans feature.
My father, brother, 5 uncles, my father-in-law, my husband, his 3 uncles and our two sons all served in the military. One son went to Afghanistan shortly after 9-11. He is an engineer and evaluated airfields damaged by bombs for repair purposes. People asked me if I was frightened that our son was in a war zone. I told them if I trusted God to protect him in his sporty red car in our country, I could do no less when he was in harm's way. Either I trusted God with his life or I did not. We were thankful he came back alive and with very little harm. Our eldest son served aboard US Aircraft Carriers as a nuclear electrician. All my relatives survived, including my father-in-law, a pilot, who was shot down in the Pacific. He did not get captured. My husband is now an US Navy retiree. I appreciate all their man years of service. With Love, Linda
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