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In Honor of Ariel Rose

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Ariel Rose’s Story

Please note, donations made to Caring Bride do NOT go to Ariel directly. If you would like to donate to help with Ariel's growing medical expenses you can do so at  http://www.teamariel.com/donate

Thank You! 

Ariel Rose Gariano came into my life on August 19, 1998. One of a set of twins she was already extraordinary from the moment she came into this world, but I couldn't in my wildest imagination begin to realise just how special, just how brave, just how inspiring my little girl has proven to be.

Ariel - her name means 'Lioness of God'. It's a name she would live up to within days of her birth. At the great age of 3 days Ariel was diagnosed with a laryngeal cleft, a rare airway birth defect in which her trachea and esophagus were not completely divided. Ariel would undergo multiple surgeries at two medical institutions, Children’s Hospital Oakland and Children’s Medical Center Cincinnati. We had been warned from the beginning that Ariel faced many challenges and the odds were stacked against her.
But Ariel is a fighter like few can imagine and she came out of her surgeries with amazing results. As she grew older we realized in spite of the multiple occassionas that she had been oxygen deprived while aspirating she was in tact and very much a normal little girl. We really began to believe we had escaped our worst nightmares as Ariel grew into a beautiful, healthy little girl.

 On October 26, 2007, however, the nightmares came back, only this time they were scarier than anything we had previously imagined.

Ariel was diagnosed with a rare form of cancer, Rhabdomyosarcoma, when a large tumor was found in her sinus cavity and was encroaching on her right eye.

She would endure a year of chemotherapy, radiation, multiple surgeries and in August of 2008 she was declared disease free.

Ariel has been cancer free for 30 months and she's blossomed into a lovely young lady. Smart, Funny, Compassionate, Fearess she is so full  of life it seems incomprehensible that we would be told the cancer appears to have returned.

We are beginning our next fight and we are clinging to our girl, her fighting spirit and are holding to our hearts the knowledge that nobody likes to defy the odds quite like Ariel.

She's been doing it since birth and hopefully she can do it again.

Latest Journal Update

Photograph....Thank You Ariel. (I miss you so much)

As a rule I avoid sad songs especially at work.
P!NK's 'Try' will punch me in the gut. So do Journey's 'Don't Stop Believing' and Taylor Swifts 'Ronan', hearing these songs is just like having the wind knocked out of me. 
People who know me, know I'm a music junkie, and can most often be found earbuds in, bouncing around. Life requires a soundtrack in my opinion.
Not long ago, I was looking at my favorite photograph of the kids and rubbing the charm necklace Ariel gave me for my last birthday with her (her reminder to me that forever 'BRAVE' is OUR story - hers and mine.) when a song by Ed Sheeran came on, a song I had somehow never heard before.
As I listened, I went cold, shaking hearing the lyrics, knowing in my heart this was Ariel singing to me. 
I miss you so much my brave and beautiful girl and this past weekend was so much a celebration of you, there aren't words to convey it all. But I know this was your way of reminding me to keep waiting, I'll be with you again. Soon.
Mommy

"Photograph" Ed Sheeran

Loving can hurt
Loving can hurt sometimes
But it's the only thing that I know
When it gets hard
You know it can get hard sometimes
It is the only thing that makes us feel alive

We keep this love in a photograph
We made these memories for ourselves
Where our eyes are never closing
Hearts are never broken
Times forever frozen still

So you can keep me
Inside the pocket
Of your ripped jeans
Holdin' me closer
'Til our eyes meet
You won't ever be alone
Wait for me to come home

Loving can heal
Loving can mend your soul
And it's the only thing that I know (know)
I swear it will get easier
Remember that with every piece of ya
And it's the only thing we take with us when we die

We keep this love in this photograph
We made these memories for ourselves
Where our eyes are never closing
Our hearts were never broken
Times forever frozen still

So you can keep me
Inside the pocket
Of your ripped jeans
Holdin' me closer
'Til our eyes meet
You won't ever be alone

And if you hurt me
That's OK, baby, only words bleed
Inside these pages you just hold me
And I won't ever let you go

Wait for me to come home [4x]

Oh you can fit me
Inside the necklace you got when you were 16
Next to your heartbeat
Where I should be
Keep it deep within your soul

And if you hurt me
Well, that's OK, baby, only words bleed
Inside these pages you just hold me
And I won't ever let you go

When I'm away
I will remember how you kissed me
Under the lamppost
Back on 6th street
Hearing you whisper through the phone,
"Wait for me to come home."




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Comentarios

5 Comentarios

amy Taylor
By amy Taylor
Beautiful
Julie Richison
By Julie Richison
You continue to be in my thoughts and prayers Crystal! The words to this song are awesome and really hit a chord with myself too. It just seems to fit Ariel so perfectly. May God continue to wrap his loving arms around you and speak to you through the music. Keep the journals coming, I enjoy reading your posts.
Joyce Nosker
By Joyce Nosker
The song is certainly a gift! Prayers for you.
Beverly Reed
By
Gracious God,

Continue to comfort this family and to speak to them through the memories, through music, and the many other ways you touch our lives. Thank you for the gift Ariel was to all of us and for using her to show us your love, the strength you give, and the stamina each of us has access to through your spirit. Thank you most for Jesus and for his victory over sin and death, which promises us the same victory. b
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