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Anya’s Story

Welcome to our CaringBridge website. We've created it to keep friends and family updated about our little Anya.

Visit often to read the latest journal entries, visit the photo gallery, and write us a note in our guestbook.

 Anya approached her Mom and Dad in early April 2012 complaining of stomach pain and a pain in her side. She asked for some kind of medicine to help her tummy ache. She tried TUMS, which soon changed to Childrens Tylenol to cope with the pains. She never displayed a temperature or anything more than simple aches and pains of a growing nine year old child. After a few more nights of concerns and complaints of tummy pains though, Anya asked to see the family doctor. We took her to the Doctors office the next morning.

When we got to the Doctors office we discovered that she needed an x-ray to determine what was bugging her. When the X-ray came back we looked at it together and there was a strange shape to her left hip bone. The Doctor ordered an MRI to be done at Children's Hospital in St. Paul.

Anya and Dad went to the hospital. She did great in the tube, but her nerves were getting to her as she reached the half way point. Anya asked that Dad would sit in the room and hold her hand while she finished the test. It was a really special moment for Dad.

Dad recieved a call from the doctor's office that there was some sort of adnormality on the scans and that the doctor wanted to meet with Mom and Dad the following day. When we went to the office the next morning the Doctor confirmed that Anya has a tumor 4cm X 5cm X 5cm. Our worst nightmare confirmed. The Doctor said that most likely it is Ewings sarcoma, but further testing would need to be done to absolutely confirm the results. She stated that our Oncology team from Anya's brother was already alerted and working on the problem.

Latest Journal Update

Season of tender hearts...

It is not so exciting to update when there are no great news. But since there are no bad news, that's good already, right?

As we approach Christmas time, time for family, time to enjoy home, time for our children, we are always hoping for some sort of Christmas miracle.. Well, Heavenly Father is wise in teaching us patience. Anya's chemo was done last week. We felt quite independent in administering it in convenience of our home. Things went from very busy, being in Minneapolis every day, being under watchful eye of doctors to being at home and counting days till our next appointment. Anya had no X-rays scheduled and we discovered freedom. Wouldn't you think it's good? That's what I thought.. But, Anya got kinda sad, stayed in her room all day, her appetite has significantly changed. And to top it off, she complained about having a shortage of breath. My "bugs" in my head went crazy.. I called Cindy, my favorite "Zhenya whisperer":) She immediately said to bring her in. Worry was trying to settle in me once more. On Friday we went to a "tune up" appointment . Bad news: the Timor size didn't change... Good news: the tumor size didn't change... Dr. McAllister was assuring us that she would know anything till next set of scans, and that's not till January. What do we do in the meantime? Enjoy Christmas.. Anya got a gift from the doctors to not have chemo over Christmas week. So, we will try to do just that by remembering and celebrating the gift of our Savior that was given to all of us from our Heavenly Father. We hope we can be together as a family, being off work and school and maybe, just maybe, enjoy each other's company and reconnect.

Another exciting and now very real event is happening in a month is Anya's Make a Wish trip. We've never done anything like this as a family... We are going on Eastern Carribean cruise on January 16th!!!!! It's all booked and we still can't believe it's happening. It's so refreshing to look forward to something happy for a change:) And again, Anya's care team being very proactive in making sure that it is going to happen and Anya feels good on this trip. We are SO blessed to have such wonderful team of doctors and nurses who are experts in what they do, but at the same time have such angelic personalities and make our journey so much more bearable...

I feel that we can't possibly reach out to absolutely everyone to wish you happy holidays. So, if you are reading this update, please know that our hearts are full of gratitude for your friendship.. We wish you all to have a very merry Christmas. Let the light of Christ's birth illuminate your lives and empower you yet for another year.. With much love💕


Blessings be poured over you

Zhenya
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Comentarios

4 Comentarios

Colleen Miklya
By Colleen Miklya
Have a wonderful Christmas and a fantastic trip! Much love to you all
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1 person hearted this
DeeAnn Havican
By
God bless you this Christmas season and always. All our love. The Havican's.
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1 person hearted this
Tari Larson
By Tari Larson
Wishing you peace this season, and more peace, and then more peace, DeVol Family. Love you all so much and miss you terribly!
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1 person hearted this
Michelle Miller
By Michelle Miller
Love you all so much! I hope your Christmas is filled with the Peace the Savior brings ... Merry Christmas to all.
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1 person hearted this