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Anya’s Story

Welcome to our CaringBridge website. We've created it to keep friends and family updated about our little Anya.

Visit often to read the latest journal entries, visit the photo gallery, and write us a note in our guestbook.

 Anya approached her Mom and Dad in early April 2012 complaining of stomach pain and a pain in her side. She asked for some kind of medicine to help her tummy ache. She tried TUMS, which soon changed to Childrens Tylenol to cope with the pains. She never displayed a temperature or anything more than simple aches and pains of a growing nine year old child. After a few more nights of concerns and complaints of tummy pains though, Anya asked to see the family doctor. We took her to the Doctors office the next morning.

When we got to the Doctors office we discovered that she needed an x-ray to determine what was bugging her. When the X-ray came back we looked at it together and there was a strange shape to her left hip bone. The Doctor ordered an MRI to be done at Children's Hospital in St. Paul.

Anya and Dad went to the hospital. She did great in the tube, but her nerves were getting to her as she reached the half way point. Anya asked that Dad would sit in the room and hold her hand while she finished the test. It was a really special moment for Dad.

Dad recieved a call from the doctor's office that there was some sort of adnormality on the scans and that the doctor wanted to meet with Mom and Dad the following day. When we went to the office the next morning the Doctor confirmed that Anya has a tumor 4cm X 5cm X 5cm. Our worst nightmare confirmed. The Doctor said that most likely it is Ewings sarcoma, but further testing would need to be done to absolutely confirm the results. She stated that our Oncology team from Anya's brother was already alerted and working on the problem.

Latest Journal Update

Break away from endurance.

Just before we sail away to Anya's Make a Wish trip, I wanted just to leave a short message on her site.

Christmas was great. We got to go ice skating on Christmas Eve. It was Evans first time all together and Anya's first time since 2012 when she was diagnosed for the first time. I was grateful to have Peter there helping our fearless Evan, who actually did quite well for his first time, and Nadia helping Anya, who was really nervous but did pretty well all things considered.

The highlight of gifts for Anya was not having chemo that was suppose to run through that week. The team was generous to allow chemo to be pushed a week later. Which means that New Year celebration was not as exciting, but sparkling cider was a must and Evan actually stayed up for the first time. And Anya got through chemo with minimal side effects. Grandma Sue was visiting us. It was nice to visit with her for a whole week!:)

And of course, after holidays we started the countdown to our eastern carribean cruise:))) We were a little challenged to find any summer items at the store, so, thanks to Amazon prime, and multiple packages going back and forth if the sizes didn't work, I think we are finally set:)

Our vacation will start this Friday, at 5:30 am when a limousine will arrive at our house to take us to airport. We'll be in Florida Friday afternoon till Saturday afternoon when we get to board Royal Carribean cruise ship and spend the next 8 days in, hopefully,paradise.:) Please pray for us to be followed by only good weather. Even though, I'd be okay if it's raining too.... As soon as it is 70 degrees;) Oh, what a reward it is going to be for us to leave this negative temperatures at least for a week.

I will not update while we are gone, for WIFI I hear is crazy expensive. On a flip side, it'd be okay if we all be off our devices.;)

On a medical note. We had a scare of shortage of breath, and since that X-ray that gave us no bad news, but nothing better either, we had no news. Dr. McAllister suggested not to have MRI till we get back from our trip. She thinks we should just go and have fun. And that's exactly what we are going to do.:) Scans will just wait till February 6th..

Blessings

Zhenya


P.s. Want to thank above and beyond our anonymous donors who covered nearly the entire bill for Evan's Preschool through the end of this school year....I wish I could thank you personally and I hope that someday I'll be able to pay you back!!!!! #forevergrateful


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Comentarios

8 Comentarios

jenny groskopf
By Jenny Groskopf
So excited for you all! Have a wonderful trip and escape from the cold temps and weight of all that you have endured. I hope is it paradise for all 6 of you for the full 9 days. Thanks for letting us celebrate with you last week. Prayers offered for weather, safe travels and absolute bliss!! We'll catch up when you return to hear all about it!
Jan Rice
By Anna Rice and Family
DeVols, we hope you have a fantastic time away! We will be thinking and praying for you! :)

Rices
Scott Korfhage
By — last edited
Zenya, you will have a blast on your trip. We took a Royal Carribean Cruise once with the kids. The ship was amazing. One of the coolest things was our housekeeper would shape towels into different animals every night. We were always excited to see what each night's creation was going to be.Be sure to enjoy the pools, a sunset, a sunrise, a stroll to the nose of the ship, and a dinner in the formal dining hall.

Enjoy and RELAX!

Love,The Korfhage Family
Tom Dodge
By Tom Dodge
You guys enjoys the trip. You ALL have earned it and deseve the break. Also tell Anya this June/July we will have a total of 3 kids we will need her to babysit for in the future!!!!
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Jenny Wazlawik
By Jenny Wazlawik
DeVol family, enjoy each moment and each memory that you make on your cruise! Can't wait to see some picture highlights on Anya's CaringBridge site when you return.
Safe travels,
Jenny
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Bev Shankland
By Bev
Have a wonderful time! Love you all!
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DeeAnn Havican
By Art and DeeAnn Havican
Have a wonderful trip! You deserve it. God bless you all.
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Lori Tierney
By Lori Tierney
Wow! I wish you all a beautiful "Make A Wish" trip! How nice for Anya and your whole family! What special memories. I will keep you in my prayers! Enjoy each moment! Bon Voyage!
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