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My Story

Welcome to our CaringBridge website. We've created it to keep friends and family updated about our little Anya.

Visit often to read the latest journal entries, visit the photo gallery, and write us a note in our guestbook.



 Anya approached her Mom and Dad in early April 2012 complaining of stomach pain and a pain in her side. She asked for some kind of medicine to help her tummy ache. She tried TUMS, which soon changed to Childrens Tylenol to cope with the pains. She never displayed a temperature or anything more than simple aches and pains of a growing nine year old child. After a few more nights of concerns and complaints of tummy pains though, Anya asked to see the family doctor. We took her to the Doctors office the next morning.

When we got to the Doctors office we discovered that she needed an x-ray to determine what was bugging her. When the X-ray came back we looked at it together and there was a strange shape to her left hip bone. The Doctor ordered an MRI to be done at Children's Hospital in St. Paul.

Anya and Dad went to the hospital. She did great in the tube, but her nerves were getting to her as she reached the half way point. Anya asked that Dad would sit in the room and hold her hand while she finished the test. It was a really special moment for Dad.

Dad recieved a call from the doctor's office that there was some sort of adnormality on the scans and that the doctor wanted to meet with Mom and Dad the following day. When we went to the office the next morning the Doctor confirmed that Anya has a tumor 4cm X 5cm X 5cm. Our worst nightmare confirmed. The Doctor said that most likely it is Ewings sarcoma, but further testing would need to be done to absolutely confirm the results. She stated that our Oncology team from Anya's brother was already alerted and working on the problem.


Journal

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The port is out!

June 16, 2013 11:40pm

We had an eventful but wonderful week. It started with Anya going back to school for summer school. She was very nervous on Sunday night but on Monday she felt better after coming into class. Everyone was very welcoming and helpful. And even though Anya was overwhelmed with amount of math she has to catch up with, I am grateful for the effort that teachers put in helping Anya out. What a blessing it is to be surrounded by such wonderful people in Prescott!! Tuesday we got to see Dr. Clohisy, Anya's surgeon. He was that last piece in deciphering the scans and their reading. He was so excited to see Anya with only one crutch. She had another X-ray done in his clinic. And according to him, even though the bone is not completely healed, Anya is doing great. 99.9% in infinity, in his words. After the appointment we went to children's to pick up some medicine and to see Lynn( one of the physical therapists in the hemothology clinic overlooking Anya's progress) We were in the waiting room when Dr. McAllister came out with Cindy and started asking us about the appointment with Clohisy. I told her that he sent her a text. She went to check it, and when she came back with her thumbs up and gave me a hug, it finally hit me that we were done. I needed this hug from her to have this overwhelming feeling of relief, to finally know that we witnessed another miracle of healing. Immediately there we scheduled a port removal surgery.. On Friday Anya and I headed to Children's. And it made me tear up a little that the surgeon was Dr. Rustad, who was originally on the team that performed biopsy on Evan 2.5 years ago... We truly have come full circle. Did I forget to mention that my van broke down again on Monday? I was on the way to take kids to summer camp and it started smoking. The big difference this time was I did not panic. I only panicked about how I would get the kids to their destination. But the car did not raise my stress level any higher. The van was toast. 50,000 miles in one year is a lot, sometimes We can fix things, sometimes we can't right? We got rid of that van the next day and made decision to get a more reliable vehicle.We figured, it was good time to let go of our past and start new and fresh... Today we received a special witness, a very special conference in our area and for our congregation. A modern day Apostle of God, Jeffrey R. Holland came to our area with a special message. The church house was packed. And what made it even more special is that in the middle of conference our stake president invited Nadia to come to the pulpit to share her testimony with everyone. She was shocked, but when I saw her up there, she was glowing:))) After the conference Peter escorted Anya to see Elder Holland. He was so sweet with her. He said that she was beautiful and he liked her "haircut":))) Last night I prayed that Anya would have this special opportunity to shake hand with this remarkable man. He extended a special blessing today to those who were in need of healing. I have no fear that Anya is going to be alright. I will start with having a desire to believe that my children will never again be afflicted by cancer. And I will rejoice in this miracle of healing and will strive to help Anya to completely recover. She has her physical therapy 3 times a week and we love it so far. She connected really well with her new therapists and she works hard during sessions. We won't know how her left hip is going to grow yet, but we will face those challenges as they present themselves. We are so thrilled to see Anya getting her color back, her pretty eyelashes and eyebrows are growing. She even has a little peach fuss on her head. She got to swim a few times last week. I was so worried her first time. But as soon as she got in the water, she was in her element, just like a fish. I cannot even express how happy we are nowadays. Very busy, but regaining the normalcy and recovering from all the pain of last year. Forgot to mention that on Thursday we had our first meeting with "Make a wish" representative. Anya got to make a wish:) We are all very excited about it and will keep you posted on that development. We are forever grateful for each one of you, our angels, who's been always supportive in so many ways: kind words, prayers, smiles, financial support, gifts, rides, visits, food. The list can go on. You will never be forgotten, even if we never met you in person.. Hope someday we can pay it forward.. God bless Zhenya

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Healthcare Facility

Children's Hospitals and Clinics of Minnesota

MN
United States