My Story

Welcome to Anisa's website. It has been created to keep our family and friends up to date with her medical adventures while receiving treatment for a very rare disease called Mucopolysaccharide Storage Disorder.

Please make sure you check in on Anisa frequently as she is growing stronger and busier everyday.

Journal

Sunday, June 21, 2009 2:46 PM, CDT


Soooooo....ummmmm, kinda fell off the update train.  It's been a little bit of a screwy month for us here in Peterborough, but that is no excuse for not updating Miss Anisa's site!

So we will just start at the beginning!  Anisa is doing well and is growing like a weed!  The last couple of infusions have gone swell with nothing too crazy out of the ordinary.  A couple of weeks ago, we had the rough access and that made Anisa pretty apprehensive for a few weeks.  The last two accesses have been a-ok and we seem to be back on track.
  We missed an infusion at the beginning of the month as Anisa had a cough that turned into a bit of a chest infection.  It's hard to miss the infusion when she isn't "sick", but it's also hard to argue "not sick, but required antibiotics".  So, you just take the day and enjoy not having to wake up but still had to travel to Sick Kids the next day for an eye clinic followup with Dr. Ali!!  Now that is just plain funny!!!

  David is back to work if I hadn't already updated that.  Things are going well there for him!

  Anisa and I have a new buddy to accompany us on our early morning trips!  Tee Tee Sarah comes with us every Tuesday to keep us company.  Sarah and I aren't working currently and are enjoying this extra time together!

  Anisa's eyes are still on the waiting list for her strabismus repair.  In the interim, Dr. Ali has changed her lens script and we have reduced her patching down to 2 hours.  We will continue to see the orthoptic clinic and Dr.Ali every 2 months for follow up.

Alrighty...that's about as exciting as I can make it for now!!  I will keep everyone updated on Tuesday's adventure when we get home!

**Just a reminder for anyone who is thinking about doing the Scotia Run this year....you should start thinking about your training-tune ups now!!
  I am training for the half marathon this year and am SUPER excited!!  David and Poppy (my dad) I believe are committing to the 5km Charity Challenge.
 

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E-MAIL AUTHOR

jennelder_7@hotmail.com

HOSPITAL INFORMATION

Toronto Hospital for Sick Children
Toronto, ON