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In Honor of Angel

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Angel’s Story

Angel underwent surgery 3/10/10 and 3/26/12 for a large brain tumor in the cerebellum and brainstem.  Chemo completed 10/13 after 18 month regimen. Tumor remains at this point. Doctors removed 95% of the tumor.  Diagnosis is "juvenile pylocytic astrocytoma." (FYI - "Tribute donations" on this page support the amazing work of Caring Bridge. Many have asked about donations specifically to Angel's account...this can be done at http://www.colespages.org/angelthompson/donations/view or at Fifth Third bank in Concord, NC - Angel Thompson Benefit Fund)

"It is a big tumor...it will require surgery...it is likely cancer...it is not  a good prognosis."  These are the things that strike fear in the heart of any parent.  This is what we heard about our wonderful five year old daughter Angel on Monday after a visit to the ER and ensuing transfer.  Last week she began having headaches and problems with her eyes going crossed.  We had a few MD visits and were leaning toward vision problems.  Thanks be to God for the wonderful staff at CMC-Northeast ER who caught the tumor and immediately arranged transfer to CMC-Main Levine Childrens Hospital.  We have met with pediatric neurosurgeons and pediatric oncologists.  The tumor is in the cerebellum exerting pressure on the brainstem with increased intracranial pressure.  It is a large tumor with anticipated difficulty removing it.  There is significant potential of complication associated with removal and most likely will result in cerebral shunt placement.  Surgery is scheduled for 3-10-10 at 6 am.  We know that miracles happen and that God still performs miracles.  We know this is possible through prayer and the mighty hand of God who already has his hands at work in Angel's healing.  Words cannot express our fear and anxiety.  Knowing tomorrow will be different in some way brings pain...we try to remain strong in our faith because we know that God is near.  Thanks go out to all who have prayed, sent gifts, visits, and supported.

Jump forward to August 2011. The tumor has new activity with some growth but more seriously, pressure being exerted in the brain. Headaches and neurological symptoms have increased. Angel has continued frequent physical and occupational therapy since her surgery. Additional surgery and chemotherapy are now being discussed. We praise God for the blessing of these days and for the awesome support network we have in our family, friends, church, co-workers, and prayer warriors.

March 2012 the tumor has grown back into the cerebellum in the old areas as well as a new area hidden by scar tissue from the previous surgery, Surgery performed again on 3/26/12 with all tumor removed from the cerebellum, however, the brain stem portion of the tumor remains. Chemotherapy regimen of 60 months to begin 2-3 weeks post surgery.

Latest Journal Update

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Praise God for great news at Angel's most recent MRI and testing. The seizure studies were normal and the MRI showed no new activity for the tumors. There are still two tumors on the brain stem and one area of dysplasia in the right side of the brain, however, they have now been inactive with no signs of growth since she stopped chemotherapy in October 2013. They have stopped short of saying she is in remission; however, the doctors report they are close to making that declaration. She has now gone to a 4 month cycle on MRI with plans to go to 6 month cycles in the near future. The problem with JPA tumors is they are likely to grow again at some point but we simply praise God now that they are pretty much dormant. Thank you all for your continued prayers, love, and support. It is hard to believe it has now been nearly 5 1/2 years since her diagnosis.  What a blessing it is to be at this point.
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Comments

8 Comments

Tim Blackwell
By Tim,Trisha, Raelynn, and Ada Blackwell
Praise God! Angel is always in my prayers, as well as your whole family. My God bless Angel with healing and the gift of blessing others as she always does.
donna bolles
By donna bolles
I am praising and thanking God for the results of Angel's last MRI and testing. This is wonderful news! I am so happy for all of you. Blessings, and thank you for the update. Donna Bolles > Madelyn and Avery's Very Proud Nana. Always Trusting, Believing, and Staying Forever Faithful to God. With HOPE for a cure for all childhood cancer.
caringbridge.org/visit/averyevans
Michelle Bridgins
By Michelle and Jesse Bridgins
Praise God, so glad you got this wonderful news. I will keep Angel in my prayers but I am happy everything is looking good for her!!! :)
Claudia Ketcham
By Claudia Ketcham
I am so happy for you. I am continuing to pray for you.
Joan Godwin
By Joan Godwin
How wonderful!!!!! Continued prayers for complete remission ❤️
Terry Blovsky
By TERRY FROM LAKE PLACID FL
Praise the LORD!
Stephany Farquhar
By Stephany
Wonderful news!
Dovie Goodnight
By Dovie Goodnight
Praise God !!! So very happy to hear this.....she is such an amazing young girl and has captured the hearts of so many people. Everyone loves her....keeping your family in my thoughts and prayers.....
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