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Angel’s Story

Angel underwent surgery 3/10/10 and 3/26/12 for a large brain tumor in the cerebellum and brainstem.  Chemo completed 10/13 after 18 month regimen. Tumor remains at this point. Doctors removed 95% of the tumor.  Diagnosis is "juvenile pylocytic astrocytoma." (FYI - "Tribute donations" on this page support the amazing work of Caring Bridge. Many have asked about donations specifically to Angel's account...this can be done at http://www.colespages.org/angelthompson/donations/view or at Fifth Third bank in Concord, NC - Angel Thompson Benefit Fund)

"It is a big tumor...it will require surgery...it is likely cancer...it is not  a good prognosis."  These are the things that strike fear in the heart of any parent.  This is what we heard about our wonderful five year old daughter Angel on Monday after a visit to the ER and ensuing transfer.  Last week she began having headaches and problems with her eyes going crossed.  We had a few MD visits and were leaning toward vision problems.  Thanks be to God for the wonderful staff at CMC-Northeast ER who caught the tumor and immediately arranged transfer to CMC-Main Levine Childrens Hospital.  We have met with pediatric neurosurgeons and pediatric oncologists.  The tumor is in the cerebellum exerting pressure on the brainstem with increased intracranial pressure.  It is a large tumor with anticipated difficulty removing it.  There is significant potential of complication associated with removal and most likely will result in cerebral shunt placement.  Surgery is scheduled for 3-10-10 at 6 am.  We know that miracles happen and that God still performs miracles.  We know this is possible through prayer and the mighty hand of God who already has his hands at work in Angel's healing.  Words cannot express our fear and anxiety.  Knowing tomorrow will be different in some way brings pain...we try to remain strong in our faith because we know that God is near.  Thanks go out to all who have prayed, sent gifts, visits, and supported.

Jump forward to August 2011. The tumor has new activity with some growth but more seriously, pressure being exerted in the brain. Headaches and neurological symptoms have increased. Angel has continued frequent physical and occupational therapy since her surgery. Additional surgery and chemotherapy are now being discussed. We praise God for the blessing of these days and for the awesome support network we have in our family, friends, church, co-workers, and prayer warriors.

March 2012 the tumor has grown back into the cerebellum in the old areas as well as a new area hidden by scar tissue from the previous surgery, Surgery performed again on 3/26/12 with all tumor removed from the cerebellum, however, the brain stem portion of the tumor remains. Chemotherapy regimen of 60 months to begin 2-3 weeks post surgery.

Latest Journal Update

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The implications of Angel's tumors and associated treatment (and effect) gave us a little reminder on Friday. Angel had been experiencing some pretty severe abdominal pain for several days. She has an area of dysplasia in her abdomen they continue to monitor...most likely a side effect of the chemo that has the potential to develop into something. We went to her pediatrician after finding a small mass in her stomach. A stat CT scan and blood work followed resulting in about seven hours of doctor and hospital time on Friday.  Praise God they do not believe the small mass is a tumor. They did find some abnormalities around her spleen and appendix they are going to evaluate further...still waiting on final test results. Continuing to pray and thankful for the support of so many.
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Comments

9 Comments

Annette Howell
By Annette
I am still praying for Angel. All of your strength is an encouragement to so many. God is Faithful
Thelma Reynolds
By Thelma Reynolds
We're so sorry to hear this news, but glad that you are always on top of any changes. Stay strong together - we send all our love and support.
Aunt Thelma, Uncle Paul, Paul Jr and Emily
donna bolles
By donna bolles
Thank you for the update. Dear Lord, please make sure Angel does not have any problems elsewhere in her body with tumors, and I humbly ask you to give her earthly healing. In your holy name...Amen ~ Donna Bolles
Erin Hanks
By Erin Hanks
Think of sweet Angel often and happy to have updates. Eliza is going to Camp Care for the first time this summer and we requested Angel as her bunk-mate. They said she wasn't on the list to attend. Eliza would love some time with your girl! :) Praying and always holding Angel near our hearts.
judy miranda
By Judij Prayup
Our Prayer Group is lifting Angel in prayers of healing and for pain to be removed from her abdominal area-prayers that the areas of concern resolve with no intervention required.. .... Judij.....
Janice Wensil
By Janice and Ronnie Wensil
We continue to pray for Angel and each of you. Your faith has kept you strong as you hurdle obstacles that fall your way. Angel has a legacy of love and faith that she has built and shares. We diligently continue to pray and we love you dearly as so many others.
Jennifer Green
By Jennifer Green
Praying that the abnormalities that have the potential to become anything disappear quickly.
Jennifer Green
c.o.l.e's prayer team
www.colesfoundation.org/
Terry Blovsky
By TERRY FROM LAKE PLACID FL
Angel is always in my daily prayers. May HE give you the strength.
Claudia Ketcham
By Claudia Ketcham
You are in my thoughts and prayers, Angel.