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Angel’s Story

Angel underwent surgery 3/10/10 and 3/26/12 for a large brain tumor in the cerebellum and brainstem.  Chemo completed 10/13 after 18 month regimen. Tumor remains at this point. Doctors removed 95% of the tumor.  Diagnosis is "juvenile pylocytic astrocytoma." (FYI - "Tribute donations" on this page support the amazing work of Caring Bridge. Many have asked about donations specifically to Angel's account...this can be done at http://www.colespages.org/angelthompson/donations/view or at Fifth Third bank in Concord, NC - Angel Thompson Benefit Fund)

"It is a big tumor...it will require surgery...it is likely cancer...it is not  a good prognosis."  These are the things that strike fear in the heart of any parent.  This is what we heard about our wonderful five year old daughter Angel on Monday after a visit to the ER and ensuing transfer.  Last week she began having headaches and problems with her eyes going crossed.  We had a few MD visits and were leaning toward vision problems.  Thanks be to God for the wonderful staff at CMC-Northeast ER who caught the tumor and immediately arranged transfer to CMC-Main Levine Childrens Hospital.  We have met with pediatric neurosurgeons and pediatric oncologists.  The tumor is in the cerebellum exerting pressure on the brainstem with increased intracranial pressure.  It is a large tumor with anticipated difficulty removing it.  There is significant potential of complication associated with removal and most likely will result in cerebral shunt placement.  Surgery is scheduled for 3-10-10 at 6 am.  We know that miracles happen and that God still performs miracles.  We know this is possible through prayer and the mighty hand of God who already has his hands at work in Angel's healing.  Words cannot express our fear and anxiety.  Knowing tomorrow will be different in some way brings pain...we try to remain strong in our faith because we know that God is near.  Thanks go out to all who have prayed, sent gifts, visits, and supported.

Jump forward to August 2011. The tumor has new activity with some growth but more seriously, pressure being exerted in the brain. Headaches and neurological symptoms have increased. Angel has continued frequent physical and occupational therapy since her surgery. Additional surgery and chemotherapy are now being discussed. We praise God for the blessing of these days and for the awesome support network we have in our family, friends, church, co-workers, and prayer warriors.

March 2012 the tumor has grown back into the cerebellum in the old areas as well as a new area hidden by scar tissue from the previous surgery, Surgery performed again on 3/26/12 with all tumor removed from the cerebellum, however, the brain stem portion of the tumor remains. Chemotherapy regimen of 60 months to begin 2-3 weeks post surgery.

Latest Journal Update

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Today was the normal monthly oncology evaluation. Things continue to go as expected with the next MRI to be in October. Angel has been experiencing chronic fatigue, some of which was associated with a lingering viral infection to which we really never got a diagnosis. Her immune system continues to be suppressed. If it comes along she most likely will get whatever it is. She even battled strep throat a few days already. On top of it all, she continues to be miss adventurous.  A few days ago she decided to try her luck at balancing on a plastic insert used for boot packing...it did not end well. She is now in a hard splint with a broken wrist after convincing the orthopedic physician a cast would not be acceptable with her hunting habits.  She is struggling a good bit with school this year which really comes as no surprise. The neuropsychiatry report indicated she would experience more challenges as she advanced in school because of the physical and cognitive effect of surgery and chemotherapy. We continue to make memories each day and enjoy the days as we receive them. We praise God for the miracles that have brought us to this point and the opportunity to look forward to each day. We thank you for your continued love and support.
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Comments

4 Comments

donna bolles
By
Thank you for the update on Angel. I will pray her wrist heals, she stays bug free, and her energy returns. Prayers continue for strength for all of you. Donna Bolles > Madelyn and Avery's Very Proud Nana. Always Trusting, Believing, and Staying Forever Faithful to God. With HOPE for a cure for all childhood cancer.
caringbridge.org/visit/averyevans ~ back in the fight again
Pfeiffer Lacrosse
By Pfeiffer Women's Lacrosse
The Pfeiffer Lacrosse team sends well wishes to Angel and the entire Thompson family! We would love to have Angel come spend some time with us and play some games outside as soon as she's feeling up to it. Keeping Angel in our thoughts and prayers!
Terry Blovsky
By TERRY FROM LAKE PLACID FL
THANK YOU FOR THE UPDATE, ANGEL IS IN MY PRAYERS EVERY DAY.
Susan Williams
By
I pray God gives Angel healing and protects her from any germs or viruses that try to infect her. I love to see the pictures of her hunting. She is such a special girl. My daughter is cancer free for 3 years now and we know what it's like to hold your breath each time they run the tests. She has been extremely tired lately and falls asleep on the couch the minute she comes home from work. Her feet and legs have been swelling too so she went to see her doctor. He reminded her that the chemo pill she has to take daily has all those side effects but she has to take the medicine to keep the cancer from recurring. It's a battle once you have that diagnosis and except for the side effects right now she's winning. I pray the same for Angel. I just lost my uncle and my cousin from cancer within one week of each other. I'm praying God will send a cure for these awful diseases.
You are all loved by many who are keeping you in thought and prayer.