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Angel’s Story

Angel underwent surgery 3/10/10 and 3/26/12 for a large brain tumor in the cerebellum and brainstem.  Chemo completed 10/13 after 18 month regimen. Tumor remains at this point. Doctors removed 95% of the tumor.  Diagnosis is "juvenile pylocytic astrocytoma." (FYI - "Tribute donations" on this page support the amazing work of Caring Bridge. Many have asked about donations specifically to Angel's account...this can be done at http://www.colespages.org/angelthompson/donations/view or at Fifth Third bank in Concord, NC - Angel Thompson Benefit Fund)

"It is a big tumor...it will require surgery...it is likely cancer...it is not  a good prognosis."  These are the things that strike fear in the heart of any parent.  This is what we heard about our wonderful five year old daughter Angel on Monday after a visit to the ER and ensuing transfer.  Last week she began having headaches and problems with her eyes going crossed.  We had a few MD visits and were leaning toward vision problems.  Thanks be to God for the wonderful staff at CMC-Northeast ER who caught the tumor and immediately arranged transfer to CMC-Main Levine Childrens Hospital.  We have met with pediatric neurosurgeons and pediatric oncologists.  The tumor is in the cerebellum exerting pressure on the brainstem with increased intracranial pressure.  It is a large tumor with anticipated difficulty removing it.  There is significant potential of complication associated with removal and most likely will result in cerebral shunt placement.  Surgery is scheduled for 3-10-10 at 6 am.  We know that miracles happen and that God still performs miracles.  We know this is possible through prayer and the mighty hand of God who already has his hands at work in Angel's healing.  Words cannot express our fear and anxiety.  Knowing tomorrow will be different in some way brings pain...we try to remain strong in our faith because we know that God is near.  Thanks go out to all who have prayed, sent gifts, visits, and supported.

Jump forward to August 2011. The tumor has new activity with some growth but more seriously, pressure being exerted in the brain. Headaches and neurological symptoms have increased. Angel has continued frequent physical and occupational therapy since her surgery. Additional surgery and chemotherapy are now being discussed. We praise God for the blessing of these days and for the awesome support network we have in our family, friends, church, co-workers, and prayer warriors.

March 2012 the tumor has grown back into the cerebellum in the old areas as well as a new area hidden by scar tissue from the previous surgery, Surgery performed again on 3/26/12 with all tumor removed from the cerebellum, however, the brain stem portion of the tumor remains. Chemotherapy regimen of 60 months to begin 2-3 weeks post surgery.

Latest Journal Update

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Angel had her normal MRI she gets every three months to monitor her tumors today. Praise the Lord for good news. Two tumors are still there; however, there is no new growth at this point. While they are not dormant, they are not growing presently. The oncologists have suggested it could be months to years before she may have new growth; although the unfortunate part is they will grow again since they cannot be completely removed. The good news with no new growth also comes with the decision to move MRIs to every four months and oncology to every two months. The neurology appointment yesterday also went well with no current evidence of seizures. They do plan to do bone density testing due to the several fractures she has had over the last two years as the chemotherapy could have caused that. They have no answers at present on the fatigue, chronic fevers, and walking challenges. Thanks for your continued support, love, and prayers.
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Comments

2 Comments

Brenda Crowell
By Brenda Crowell
Praise Our Lord for this news!
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donna bolles
By
Thank you for the update on Angel. I am happy to hear that her tumor are stable with no new growth. One day at a time is how we have to live. Enjoying each moment that we have. I pray that Angel's issues with walking, fevers, and fatigue will go away. God bless all of you. Donna Bolles> Madelyn and Avery's Very Proud Nana. Always Trusting, Believing, and Staying Forever Faithful to God. With HOPE for a cure for all childhood cancer.
caringbridge.org/visit/averyevans
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