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Angel’s Story

Angel underwent surgery 3/10/10 and 3/26/12 for a large brain tumor in the cerebellum and brainstem.  Chemo completed 10/13 after 18 month regimen. Tumor remains at this point. Doctors removed 95% of the tumor.  Diagnosis is "juvenile pylocytic astrocytoma." (FYI - "Tribute donations" on this page support the amazing work of Caring Bridge. Many have asked about donations specifically to Angel's account...this can be done at http://www.colespages.org/angelthompson/donations/view or at Fifth Third bank in Concord, NC - Angel Thompson Benefit Fund)

"It is a big tumor...it will require surgery...it is likely cancer...it is not  a good prognosis."  These are the things that strike fear in the heart of any parent.  This is what we heard about our wonderful five year old daughter Angel on Monday after a visit to the ER and ensuing transfer.  Last week she began having headaches and problems with her eyes going crossed.  We had a few MD visits and were leaning toward vision problems.  Thanks be to God for the wonderful staff at CMC-Northeast ER who caught the tumor and immediately arranged transfer to CMC-Main Levine Childrens Hospital.  We have met with pediatric neurosurgeons and pediatric oncologists.  The tumor is in the cerebellum exerting pressure on the brainstem with increased intracranial pressure.  It is a large tumor with anticipated difficulty removing it.  There is significant potential of complication associated with removal and most likely will result in cerebral shunt placement.  Surgery is scheduled for 3-10-10 at 6 am.  We know that miracles happen and that God still performs miracles.  We know this is possible through prayer and the mighty hand of God who already has his hands at work in Angel's healing.  Words cannot express our fear and anxiety.  Knowing tomorrow will be different in some way brings pain...we try to remain strong in our faith because we know that God is near.  Thanks go out to all who have prayed, sent gifts, visits, and supported.

Jump forward to August 2011. The tumor has new activity with some growth but more seriously, pressure being exerted in the brain. Headaches and neurological symptoms have increased. Angel has continued frequent physical and occupational therapy since her surgery. Additional surgery and chemotherapy are now being discussed. We praise God for the blessing of these days and for the awesome support network we have in our family, friends, church, co-workers, and prayer warriors.

March 2012 the tumor has grown back into the cerebellum in the old areas as well as a new area hidden by scar tissue from the previous surgery, Surgery performed again on 3/26/12 with all tumor removed from the cerebellum, however, the brain stem portion of the tumor remains. Chemotherapy regimen of 60 months to begin 2-3 weeks post surgery.

Latest Journal Update

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Angel has been sick on and off now for what feels like months with relatively minor things. Her ability to fight off infections has been severely compromised. The last week has brought a combination of viral and bacterial infections. She was recently diagnosed with pneumonia, microplasmic infections, viral infections, and bilateral sinus infections. Initial discussions with her doctors considered hospitalization; however, they opted to treat her at home due to the potential to be exposed to other infections. Her immune system has not been fighting as it should in a normal child. They have run additional tests and blood work for some questionable findings with her liver and spleen. Unfortunately, some of the medications they would normally use to treat her condition are contraindicated because of her exposures and reactions during chemotherapy. The first part of the school year started off pretty well (except for the focus issues due to previous treatments)...the second part has started with several missed days from school.

We thank all of those who have been praying and continue to pray for her and thank those who have been keeping her close in your thoughts. She is a tough girl but unfortunately she also has come to an understanding of the reality that she must continue to fight through the things small and big.

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Comments

11 Comments

Jeanne Fontenot
By Jeanne Fontenot, Mandeville, LA
Keeping all of you lifted in prayer. Stay strong sweet girl....you've got this! <3
donna bolles
By donna bolles
I am so sorry to hear that Angel has not been feeling well. I pray God will lay His hand on her and heal her. She has fought so hard. God bless your family. Donna Bolles
Brenda Crowell
By
We weren't aware of Angel's fight since starting school. Will be praying that Angel will give each physical battle to the Lord daily or even moment to moment! Tell her she is a star & to shine!
Nancy LeQuire
By Blessings, Jerry and Nancy LeQuire
All of you continue in our thoughts and prayers.
Cindi Boger
By Cindi Boger
I do not know Angel, or her family, but wish to offer my prayers for you all. God is a mighty God and yes, still performs miricles of healing. I am so sorry that Angel has been so sick. I will be praying for this sweet child and for her whole family. Love and HUGS from Alabama.
Lori Shue
By Lori Shue — last edited
I love you sweet girl. I'm praying for you to have some relief real soon!
Terry Blovsky
By TERRY FROM LAKE PLACID FL
Angel is the first on my prayer list every morning, so sorry she is having some tough times again. God Bless her and get her well.
Kathy Martel-Sileno
By Kathy Martel-Sileno
Count me among all those praying. Poor kid - I hate what this disease does to our little ones. Robs them of a childhood that should be rightfully theirs.
from angel Johnny Sileno's proud grandma, Kathy
Angela Harkey
By Angela Harkey — last edited
Continued love and prayers! She is one tough little cookie and with God's help will continue to have the courage of a lion! I think of you all, often!
Dovie Goodnight
By
Alan, Bless her...I know she is trying so hard to be strong and to go to school every day. It is hard for children to understand when they shouldn't go to school. Thank goodness she is a responsible young lady and she just wants to be "normal" and do what all the other kids do. She wants to be well so bad and so many people want her totally well and healed.. I pray for her daily and will continue to do so...I love her, she has such a sweet spirit....praying for you and Myra as well....