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Latest Journal Update
Since I have last posted Andrew has started seeing a functional neurologist, he is a chiropractor doctor who has gone through a lengthy process to get the education and training to become certified as such. It is amazing the completely different therapy Andrew is receiving and how receptive he is to the treatment. We have been going three days a week, for a double appointment for the past three weeks. It is in the Chicago suburbs about 1 1/2 hours from home, in no traffic. Jim has taken vacation days so he can go with, as well as friends have given up whole days to accompany Andrew and I. With the lift and getting in and out of the van it really is a two person job, especially in this cold and snowy weather.
This therapy is all new to us, which is exactly what we were looking for. They focus on the nerves, trying to "wake up" the atrophied nerves especially in his right cortex which control his left arm and leg. The doctors can tell what was effective in the brain from the injury by looking at the patients eyes. Andrew has nystagmus or jumping eye very prominent in his right eye and a little in his left, as well as his eye gaze was not straight ahead or conjugate. Now his right eye looks 100% better than his first visit! This week we are going down to two days a week, still doing the double sessions. As wonderful as this therapy is, it is very tiring for Andrew. We are gone for nine hours, and other than getting out of his chair at lunch for an hour he is cooped up in the chair for the day. Which means no p.t. or o.t. the days we go to Wood Dale. It definitely is worth it, and I wouldn't change a thing but I think two days a week will be optimum for Andrew. Are days will be a little bit longer since they will be doing the gait protocol in both the a.m. and p.m. session. This is where they put the electrical stimulation to the nerves in three or more spots in Andrews legs. They also use the ESTEM for other nerves in Andrew's left arm and the right side of his face. They also use sound, electronics, eye exercises and other avenues but Andrew is not there yet. I also have been instructed for Andrew to listen to Baroque music like Vivaldi in his left ear only, some days Andrew will make it the whole 15 minutes without pulling out the ear bud, other days I just give up after putting the bud back in 5 or 6 times in 10 minutes. Some days you just can't get your Baroque on.....
March 1st gives us hope that we made it through winter(even though it has been snowing nonstop today) with more daylight and warmer days, It will make it easier to take Andrew places and get outside. Last week our new septic system was installed, very exciting! It looks like this spring our addition can begin and Andrew is one huge step closer to getting his own bedroom/workout space!!!!!!!!!!!!!
We continue to pray for Andrew's progress, for new connections and pathways, for positive response to his new therapies, for Andrew to find his voice, for finding the right people, doctors, and therapist to help Andrew on his journey of recovery, amen.