A quick update. Andrew had his last ECP (photopherisis) treatment at City of Hope a couple of weeks ago. This ends a little over a year since the beginning the treatment. It's been a long process and he has weathered it well. We saw Dr. Ball at UCSD today and Andrew is going to finally get his Hickman line out! Two years with that in his chest. This is truly thrilling. He also took Andrew off his last antibiotic. We also saw his orthopedist who took x-rays of Andrew's ankle, shoulder and hips. His bones continue to degenerate and his joints are squared off. The bone can't be replaced but exercise can help round out his joints. It will take time, but he can heal.
The other good news is that we have found a room for Andrew to rent in Rancho Bernardo for the summer, thanks to Mary Jo. It is a wonderful set-up and he is only 3 miles away. We are so grateful and blessed to have found such a wonderful person for him to live with.
Andrew is also looking at attending UC Riverside instead of Cal State Fullerton. It's still close to home and it's a wonderful school.
It's hard to believe that it was one year ago I was at City of Hope with the doctors telling me to "make arrangements" for Andrew since he probably only had a couple of more weeks to live. I spent Mother's Day and my birthday alternately crying in the hallway then going back into his room to boost his spirits to have him fight for his life. Now hear he is talking of college and getting ready to move out. God is truly wonderful and Andrew is our living miracle. His attitude is mainly positive these days, and we see more and more of our quick-witted, happy son.
At the end of May there is a Relay for Life being held at Lake Poway, and our team is walking in honor of Andrew, Lexi, Caroline & Grant. If you feel led to donate you can go to http://main.acsevents.org/site/TR?pg=entry&fr_id=13756. We are team Cure for Kids. I have signed up as a participant, but you can pick any team member's name for the donation.