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Mi historia

Emma was diagnosed with metastatic Osteosarcoma~ July 8, 2009...

In April 2009, Emma complained of pain in his left leg above the knee.  She had been skiing and cycling alot, so we thought this was an orthopedic issue.  We took Emma to the orthopedic surgeon for x-rays & nothing was found.   4 wks. of physical therapy, ice, and ibuprofin were prescribed, then an MRI if pain hadn't dissipated.  Pain decreased, so we thought p.t. was helping; in fact, a tumor had broken out of the bone, which can relieve pain.  3 wks. after seeing the orthopedist, at a routine visit to the pediatrician, Emma was advised to get the MRI.  On July 6th, the scan revealed a mass in her left distal femur;  within 2 hours she was admitted to CHLA.  At the age of 13, on July 8, 2009, Emma was diagnosed with metastatic osteosarcoma (bone cancer).  A single, marble-sized tumor was also found and removed by thoracoscopy from his left lung.  Emma completed 6 MAP treatments, then had surgery to remove the tumor on her leg on October 2, 2009.  The femur was replaced with a Compress prosthesis and artificial knee.  Pathology was 75% necrosis; clear margins.  18 total chemo treatments were completed Feb. 28, 2010, with no evidence of disease (NED).

June, 2010, 
Emma had a boating accident at camp.  July 5, 2010 he had a complete revision of the prosthesis (July 5, 2010). 

September 14, 2010 6 mo. scans revealed a tumor in upper left lung.  Sept. 20, 2010-  thoracotomy; total of 4 tumors found, 3 in the pleural cavity; clear margins.  Treatment consisted of 10 rounds chemo (Ifosfomide, Etoposide), the trial drug L-MTP-PE, and radiation to the lung.  Completed: May 15, 2011- Ifos/ Etop; June 24, 2011- radiation; & L-MTP-PE- June 28, 2011.

July 16, 2012- 15 mo. scans reveal 2 cm. tumor in lower right lung.  July 22, 2012- thorocotomy; 2 tumors found;  lobectomy of lower right lung; clear margins. Gemcitabine/Docetaxel completed January 2013.

February 2013 began Hu3F8/IL-2 trial at MSKCC in New York.

We can't begin to express our gratitude for all the messages of support we've received!

Debbie, Roy, 
Emma, and Bo Knickman




 

Fuente

Roy Knickman posted a new journal entry, "Clear Scans".

Scans clear today. Another month of chemo down. Many more to still to come. ANC is still down so chemo will be backed up one week. Making the 6 month mark since the last ... Lea más

Gary Edwards signed Emma's Guestbook.

Roy, You numbers of chemos, recurrences, surgeries , et al , are hauntingly similar to a path that our family walked and fortunately we live in a very sweet season now. My ... Lea más

Jacqueline Morstad signed Emma's Guestbook.

Wishing you all the best, Emma as you continue every aspect of your journey. You are beautiful and amazing! 😊 Lea más

MARY CALLENDER signed Emma's Guestbook.

DEAR EMMA,  STAY STRONG,RESTED AS YOU CONTINUE YOUR FIGHT WITH HOPE, FAITH, BELIEF AND ENCOURAGEMENT.WANTED TO SHARE WITH YOU NICK'S STORY AS HIS DOCTOR THINKS OUTSIDE ... Lea más

Shelley Verses signed Emma's Guestbook.

Hi Emma! Have you gone swimming yet this summer? I bet that would help refresh you:) You deserve to feel refreshed and rejuvenated everyday lovey. When you feel more ... Lea más

Roy Knickman posted a new journal entry, "Treatment".

Treatment continues. Three week cycles with Emma having the usual fatigue and body aches and pain. The repeated recurrences / setbacks, along with the constant fatigue and ... Lea más

Sophia Andrade signed Emma's Guestbook.

Wishing you all the love and happiness of being you, Emma. 💛 You are beautiful. Lea más

Tami Kittinger signed Emma's Guestbook.

Emma,I wish you all the happiness life can offer.  You are an amazing person. Lea más

Uncle Butch signed Emma's Guestbook.

HAPPY BIRTHDAY,I hope this day brings you peace, happiness, and most of all, GOODHEALTH. Lea más

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