My Story

Emma was diagnosed with metastatic Osteosarcoma~ July 8, 2009...

In April 2009, Emma complained of pain in his left leg above the knee.  She had been skiing and cycling alot, so we thought this was an orthopedic issue.  We took Emma to the orthopedic surgeon for x-rays & nothing was found.   4 wks. of physical therapy, ice, and ibuprofin were prescribed, then an MRI if pain hadn't dissipated.  Pain decreased, so we thought p.t. was helping; in fact, a tumor had broken out of the bone, which can relieve pain.  3 wks. after seeing the orthopedist, at a routine visit to the pediatrician, Emma was advised to get the MRI.  On July 6th, the scan revealed a mass in her left distal femur;  within 2 hours she was admitted to CHLA.  At the age of 13, on July 8, 2009, Emma was diagnosed with metastatic osteosarcoma (bone cancer).  A single, marble-sized tumor was also found and removed by thoracoscopy from his left lung.  Emma completed 6 MAP treatments, then had surgery to remove the tumor on her leg on October 2, 2009.  The femur was replaced with a Compress prosthesis and artificial knee.  Pathology was 75% necrosis; clear margins.  18 total chemo treatments were completed Feb. 28, 2010, with no evidence of disease (NED).

June, 2010, 
Emma had a boating accident at camp.  July 5, 2010 he had a complete revision of the prosthesis (July 5, 2010). 

September 14, 2010 6 mo. scans revealed a tumor in upper left lung.  Sept. 20, 2010-  thoracotomy; total of 4 tumors found, 3 in the pleural cavity; clear margins.  Treatment consisted of 10 rounds chemo (Ifosfomide, Etoposide), the trial drug L-MTP-PE, and radiation to the lung.  Completed: May 15, 2011- Ifos/ Etop; June 24, 2011- radiation; & L-MTP-PE- June 28, 2011.

July 16, 2012- 15 mo. scans reveal 2 cm. tumor in lower right lung.  July 22, 2012- thorocotomy; 2 tumors found;  lobectomy of lower right lung; clear margins. Gemcitabine/Docetaxel completed January 2013.

February 2013 began Hu3F8/IL-2 trial at MSKCC in New York.

We can't begin to express our gratitude for all the messages of support we've received!

Debbie, Roy, 
Emma, and Bo Knickman




 

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Gary Edwards signed Emma's Guestbook.

Much love to each of you in your treatments to eradicate sarcoma in this precious one, You are most worthy of our sincere prayers and love because you are God's child. ... Read more

love from, Cindy, Chris, Mckay and Riley (Vezina) signed Emma's Guestbook.

Emma … sending you a note to let you know how much your courage and determination inspires us!  We hope you found happiness today and that you will continue to find it ... Read more

Candida Stoutenborough signed Emma's Guestbook.

Dearest Roy, Deb, Emma, and Bo:  Life has not been an easy road for any of you.  You all have been put to the test with huge circumstances to deal with.  First, I am so ... Read more

Shelley Verses signed Emma's Guestbook.

Hi Emma! I miss you  and can't wait to catch up. Hopefully we can get you on the book for a healing massage sometime this summer. Adam and I love you so much. Have fun at ... Read more

Aunt Jeri signed Emma's Guestbook.

Dearest Emma,I am so proud of you! I have always been impressed by your courage and strength with your fight with cancer, I am even more so knowing you were battling an ... Read more

Suzette Ayotte signed Emma's Guestbook.

Emma, Your strength and courage, and the strength of your Dad and Mom and Bo, will never ever cease to amaze me.  I can only imagine how difficult it has been to count ... Read more

Gary Bonacker signed Emma's Guestbook.

Emma, you are brave and will not have to hide who you are. I know this will give you even more strength than you have ever had.Be well,Gary Bonacker (Bend, Oregon) Read more

Roma Hanlon signed Emma's Guestbook.

We supported you as Andreas, and now we support you as Emma!  With the number of followers you have, it's a good opportunity for so many to become educated on an ... Read more

Emma Knickman added a new photo.

Emma Knickman added a new photo.

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