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My Story

Andreas was diagnosed with metastatic osteosarcoma~ July 8, 2009...

In April 2009, Andreas complained of pain in his left leg above the knee.  He had been skiing and cycling alot, so we thought this was an orthopedic issue.  We took Andreas to the orthopedic surgeon for x-rays & nothing was found.   4 wks. of physical therapy, ice, and ibuprofin were prescribed, then an MRI if pain hadn't dissipated.  Pain decreased, so we thought p.t. was helping; in fact, a tumor had broken out of the bone, which can relieve pain.  3 wks. after seeing the orthopedist, at a routine visit to the pediatrician, Andreas was advised to get the MRI.  On July 6th, the scan revealed a mass in his left distal femur;  within 2 hours he was admitted to CHLA.  At the age of 13, on July 8, 2009, Andreas was diagnosed with metastatic osteosarcoma (bone cancer).  A single, marble-sized tumor was also found and removed by thoracoscopy from his left lung.  Andreas completed 6 MAP treatments, then had surgery to remove the tumor on his leg on October 2, 2009.  The femur was replaced with a Compress prosthesis and artificial knee.  Pathology was 75% necrosis; clear margins.  18 total chemo treatments were completed Feb. 28, 2010, with no evidence of disease (NED).

June, 2010, Andreas had a boating accident at camp. 
July 5, 2010 he had a complete revision of the prosthesis (July 5, 2010). 

September 14, 2010 6 mo. scans revealed a tumor in upper left lung.  Sept. 20, 2010-  thoracotomy; total of 4 tumors found, 3 in the pleural cavity; clear margins.  Treatment consisted of 10 rounds chemo (Ifosfomide, Etoposide), the trial drug L-MTP-PE, and radiation to the lung.  Completed: May 15, 2011- Ifos/ Etop; June 24, 2011- radiation; & L-MTP-PE- June 28, 2011.

July 16, 2012- 15 mo. scans reveal 2 cm. tumor in lower right lung.  July 22, 2012- thorocotomy; 2 tumors found;  lobectomy of lower right lung; clear margins. Gemcitabine/Docetaxel completed January 2013.

February 2013 began Hu3F8/IL-2 trial at MSKCC in New York.

We can't begin to express our gratitude for all the messages of support we've received!

Debbie, Roy, Andreas, and Bo Knickman




 

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Roy Knickman posted a new journal entry, "Moving Forward".

Andreas had his first chemo Wednesday at Children's. There were delays because of insurance issues and a lack of a road map (procedure for pediatric Osteo use), but all of ... Read more

Shelley Verses signed Andreas's Guestbook.

Hi Andreas,I reeeeally miss you! I think you should practice your driving skills!! Have Roy take a nice relaxing rest while YOU drive yourself up tp Santa Barbara for your ... Read more

Bill Scott signed Andreas's Guestbook.

Hi Knickmans,Thinking of you and adding to the prayers and support from all.be "Andreas Strong!"  Read more

Bethany Lovegrove signed Andreas's Guestbook.

Your pain and emotional turmoil are real and warranted.  But I have faith and will pray that the fighting and overcomer spirit we have seen over and over and over will ... Read more

Roy Knickman posted a new journal entry, "New Plan".

It has been a while since I have written. It has been rough for all of us. Andreas was tired with pain post surgery and it the fatigue never left. It put him in a bad ... Read more

Bethany Lovegrove signed Andreas's Guestbook.

Hang in there. I hope you are healing and doing well.  May you have much joy and strength and fun times. Read more

Valerie and Carl Armstrong signed Andreas's Guestbook.

AndreasYou are an inspiration to all of US. Keep fighting and you will win this battle, weLove You and wish you the Best.  God Bless Read more

ann zambetti signed Andreas's Guestbook.

Prayers and peace for the journey, and praise to all for seeking LIFE - normal life!   Read more

Roy Knickman posted a new journal entry, "Home".

I got Andreas home last night at 9:30 PM. Better late then another day at the hospital. The drive home was rough as Andreas got really nauseous and we had to park on the ... Read more

Bill Scott signed Andreas's Guestbook.

Andreas and family ... Small blip on the path to a great summer coming up! Fight on and know all are with you in thoughts and prayers. Read more

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