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Welcome to our CaringBridge site. It has been created to keep friends and family updated about our loved one.
My Story is the introduction to our CaringBridge site.
Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.
We had Andrea home for 10 days before we realized she was ill. She had stopped eating and was very fussy through the whole night. We tried to wait until the doctor's office opened in the morning before taking her anywhere but when we felt her head and she was cold we knew we had to take her to the ER. Her temperture was only 90 degrees when we got her there. We were later told by the doctor if we had waited any longer she may not be with us. I saw them do things in that ER that I could never have imagined. It was all very traumatic for her and also for us. Her condition is called Cardiomyopathy and basically that is an enlarged heart. The left ventricle of her heart is not pumping blood out the way it should be. She was admitted into the hospital on November 7, 2007. She was on the ventilator for 11 days before coming off. They thought she was doing so well. Every ECHO that they did looked better each time. We really thought it may be possible for her to go home with us on medication for her condition. All of that changed on Thanksgiving day, 5 days after being extubated. Her breathing was not good and she was not comfortable. Every time we brought it to the doctor's attention he shrugged it off as if it were not a big deal and we had no choice but to believe him. Later that evening she took a turn for the worse. They did not feel she was getting enough oxygen from the nasal canula so they wanted to put her CPAP, that did not work and she wound up having to be reintubated. That was horrible. Since it was an emergency, Reggie and I were there and basically watched the whole thing. At 5:00 am the next morning she had a bad reaction when they tried to give her a blood transfusion and they knew there was no more they could do for her at that particular hospital, so they transferred her to UVa Children's Hospital. That morning Andrea had her first helicopter ride here to UVa and we have been here ever since. On December 6 she had surgery to receive a Berlin Heart. The Berlin Heart is an external pump that is attached into her own heart. It is doing the work that her own left ventricle could not perform. It seems to be doing what it is supposed to. It should help her to hold on until a heart becomes available for her.
I am going to be shutting this page down but I wanted to explain why. It is not for lack of love for you, that could never be. It is not because your sister is now with us and I have forgotten you, again that is impossible. It is simply because it is time. Sadly, there are no more milestones to alert people of. The people who matter the most know when your special days are and they will celebrate you on those days the way they see fit. I think of you everyday and some days I do come here and read over your story, even though I lived it. I read over the entries from all your family and friends and shed tears over how much everyone loved you and how much your life affected others. It's easy to forget those things as life continues to move on. I will now save these memories on our bookshelf at home.
I look at Aliyah and see you all the time. She brings me so much joy but I have to admit that sometimes I shed tears thinking about what could have been, excuse me, what should have been.
Please forgive me if I don't get by as often to bring you flowers, that gesture in no way can measure my love for you, or how much I think of you. Quite frankly going there is sad and only reminds me of the finality of everything. However, I do know it is the only physical way I can show my love. Just know that I love you, nothing and noone can ever change that.