Andrea Bozzi's Journal
Written Nov 4, 2013 1:49pm by Andrea BozziThe above says it all. I am a very happy lady today. My next appointment is in one month.
I will still be on an inhibitor and some other drugs. I will manage through graft vs. host, but its much easier knowing I am disease free for 'hopefully' forever!
Thanks for all of the prayers and support. God is good to me.
Peace, love and hope always,
Written Oct 29, 2013 7:01am by Andrea BozziHi all,
Well, I thought I would have had a biopsy update by now, however, another curve ball. Apparently, there was a problem with the biopsy sample two weeks ago and it needed to be repeated. I had another biopsy last week ( not the most fun I have had). What I know, is that the second sample "looks good" and I am 100% donor marrow. I cannot speak to the genetics or the flt3 mutation.
I still deal with some graft vs. host disease issues and have had some bad days, but I feel good this week, so far. I am thankful for the good days. I am hoping to get out a bit more in the coming weeks, however I am still asked to stay away from large crowds since I have lost my childhood immunization protection. I think I start getting shots in January again. Also, my hair has grown back and so are my eyebrows!! seems silly to mention, but its important to me.
The Light the Night Walk was amazing and I was overwhelmed with the number of people at the Art Museum all coming together for one cause. I was surrounded myself, by family and friends and although I had a hard time completing the walk, I had John and my friend Vicki as bookends, supporting me and holding me to the finish. My friends Rob and Beth and their daughter walked with us as well
Alex and Eric, as well as their friends also came. They too were surprised at the number of people supporting the mission. My sister Rita made the trip from western Penna as well and in true Rita spirit was my cheerleader all the way! Love her. I still have two groups fundraising for me including Eric's high school and Rita's culinary school. I am collecting funds until December and then will break and decide how to raise more money and awareness for next fall.
I will post the outcome of my biopsy next week. Here's hoping for the best.
I hope you are all well. I am praying for many blessing for all of my family and friends during the upcoming Thanksgiving Day celebration. Be thankful for life - we only get one shot. Don't waste time on anger and hatred.
peace, love and hope always,
LLS Light the Night
Written Sep 27, 2013 1:38pm by Andrea BozziAll,
my last round of chemo was the worst i had so far in terms of side effects since over a year ago, so we are doing a bone marrow biopsy in the next two weeks and will see the progress. i will update you. otherwise, i am plugging along. i do have graft vs. host disease, but its Grade I and II and I am coping.
Family and Friends,I am asking your help once again. This not for a bone marrow donation, but as important.I have formed a team for The Leukemia & Lymphoma Society's (LLS) Light The Night Walk, and I hope you will join me. Light The Night Walk is LLS's annual walk and fundraising event and the nation's night to pay tribute and bring hope to people battling cancer. Teams of friends and families or co-workers raise funds for cancer research and to provide services in their communities. Walkers carry illuminated balloons-white for survivors, red for supporters and gold for those who have lost a loved one to blood cancer. As you may know, I have a blood cancer, AML, that I have been fighting for over one year now. I have benefited directly from the research when I had a clinical trial drug bring me to remission and ready me for a bone marrow transplant. I am on standby for another clinical trial drug, depending on the outcome of my next bone marrow biopsy in10 days. As many of you know, I continue chemotherapy for some residual disease. Some of these new medications are more easily tolerated and do not make us as sick.LLS also provides copay assistance and travel expenses to patients requiring these services. I have met and now know many patients suffering from blood cancers, including the many leukemias, lymphoma, anemia, etc. I am fortunate to have facilities nearby and have not needed this service.Your help will make a difference. Please consider helping me to raise funds. If you support other causes, I completely understand, if you can donate even one dollar, I would be grateful. For more information or to donate online, visit :Here are some facts about the upcoming Walk:When: Saturday, October 26th,Where: The Philadelphia Museum of Art at Eakins OvalThank you for your support.You will not receive any other emails from me. It is difficult for me to even ask, but so many of you have personally asked what you can do and this benefits me and others.Peace & love,