Andrea Bozzi's Journal
Written Nov 8, 2013 3:49pm by Andrea BozziI rec'd word this afternoon on the final testing. The FLT3 mutation that made my leukemia so aggressive was still around after transplant, hence we added a few rounds of chemo as you all know.
Initially, the biopsy came back indeterminate for the mutation so it was sent again. Today, the results came back that I am flt3 negative. A blessing.
This is just added assurance to me that God has a plan for me in this world, unfulfilled. I will continue to work through my physical issues, get stronger, get immunized and then re-emerge stronger from this experience.
Peace, love and hope always,
Written Nov 4, 2013 1:49pm by Andrea BozziThe above says it all. I am a very happy lady today. My next appointment is in one month.
I will still be on an inhibitor and some other drugs. I will manage through graft vs. host, but its much easier knowing I am disease free for 'hopefully' forever!
Thanks for all of the prayers and support. God is good to me.
Peace, love and hope always,
Written Oct 29, 2013 7:01am by Andrea BozziHi all,
Well, I thought I would have had a biopsy update by now, however, another curve ball. Apparently, there was a problem with the biopsy sample two weeks ago and it needed to be repeated. I had another biopsy last week ( not the most fun I have had). What I know, is that the second sample "looks good" and I am 100% donor marrow. I cannot speak to the genetics or the flt3 mutation.
I still deal with some graft vs. host disease issues and have had some bad days, but I feel good this week, so far. I am thankful for the good days. I am hoping to get out a bit more in the coming weeks, however I am still asked to stay away from large crowds since I have lost my childhood immunization protection. I think I start getting shots in January again. Also, my hair has grown back and so are my eyebrows!! seems silly to mention, but its important to me.
The Light the Night Walk was amazing and I was overwhelmed with the number of people at the Art Museum all coming together for one cause. I was surrounded myself, by family and friends and although I had a hard time completing the walk, I had John and my friend Vicki as bookends, supporting me and holding me to the finish. My friends Rob and Beth and their daughter walked with us as well
Alex and Eric, as well as their friends also came. They too were surprised at the number of people supporting the mission. My sister Rita made the trip from western Penna as well and in true Rita spirit was my cheerleader all the way! Love her. I still have two groups fundraising for me including Eric's high school and Rita's culinary school. I am collecting funds until December and then will break and decide how to raise more money and awareness for next fall.
I will post the outcome of my biopsy next week. Here's hoping for the best.
I hope you are all well. I am praying for many blessing for all of my family and friends during the upcoming Thanksgiving Day celebration. Be thankful for life - we only get one shot. Don't waste time on anger and hatred.
peace, love and hope always,