We were scheduled to have an EUA this last Wednesday (every four weeks) but it was postponed due to a scheduling mishap, i.e. the hospital forgot to schedule it. We've had very few bad experiences at Children's Hospital overall and they reassured me that it will be okay to go ahead with it next Wednesday. Still, it's an emotional rollercoaster going into these EUA's because we never know what we'll find out. Best case scenario is that everything looks stable--no new tumor growth. If there is a change, we would have to lazer it and take away more of the little vision she has. Worst case scenario is that we'd have to remove the left eye for some reason. I start to get pretty anxious a few days before these EUA's and to have to go through that again next week is a bummer...but I keep reminding myself that we've been though the worst of it and just to be thankful for how good things are right now. On a happy note, Amelia and I made our first trip down to the Washington Talking Book and Braille Library in downtown Seattle today. I signed her up to receive braille board books automatically through the mail. We took a couple today and then just mail them back in a little sack they provided. Then they'll send a couple more. We're really lucky to live in a city that has some good resources and services. Even though she's obviously not reading yet, touching the braille is an important pre-reading skill. I also try to find books with texture or high contrast/bright colors--and they had a good selection at the braille library. Currently, her favorite book is one called "Little Feet Like..." that grandma Windy gave her. In it she touches her feet to different fabrics (i.e. sandpaper is supposed to be sand, etc.). We'll post an entry again when we have news after the EUA on Wednesday. Happy weekend to all--Gail
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