My Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about Amelia's struggles with Diamond Blackfan Anemia (DBA).

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.

Journal

Friday, June 12, 2009 9:11 AM, CDT


2nd Update for Today: 

In honor of Amelia's birthday, I just signed up to join the bone marrow registry.  From now until June 22nd they are waiving their typical registration fee of $100.  What could be better than to say you saved someone's life?  There are three DBA kids undergoing a bone marrow transplant right now and all are unrelated donors...people like you and me who took the time to send in their samples.  All it takes is a few minutes to fill out some questions on line and they will send you your kit in the mail.  You simply just swab the inside of your cheek and send it back.  Here's the link to learn more:  www.marrow.org

Be the match!



HAPPY BIRTHDAY AMELIA!

We love you so much and are so thankful that God chose us to be your Mommy & Daddy.  You are the light of our lives (along with your brother) and bring much happiness and laughter everywhere you go.  Thank you for teaching us what really matters in life and for being so strong and brave.  We really couldn't ask for anything more. 

Hope you have lots of fun tomorrow at your party with all your friends.  Keep up that fighting spirit...God has big plans for you!

Lots of hugs & kisses-

Mom & Dad 


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HOSPITAL INFORMATION

Children's Mercy Hospital
2401 Gillham
Kansas City, MO 64108