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Amelia’s Story

Welcome to Amelia's CaringBridge site. Amelia was diagnosed with opsoclonus-myoclonus syndrome on September 18, 2013. On October 14, 2013, Amelia had a golf-ball size tumor removed from her abdomen which turned out to be cancer (ganglio-neuroblastoma).

Latest Journal Update

One Year Since Surgery

It has been exactly one year since Amelia had her ganglioneuroblastoma removed. We were spending our first night wrestling with the tubes and lines trying to comfort a drugged up and very sick little girl. At that time, she had barely started treatment for OMS and still couldn't walk and was having terrible rages. It was still a couple days before we would find out that tumor was indeed cancer, and a few weeks before we found out that the cancer had been fully contained and removed with the tumor. Amelia has come so far since then! She regained her ability to walk last December, and although she still gets wobbly sometimes, overall she is running, walking, and playing like any other 3 year old. She even attends Head Start! She gets two monthly infusions at the hospital, Rituximab and IVIG, and she gets a shot at home every other day. If things continue the way they have been, she'll be done with shots in December! She'll continue with the infusions well into next year for sure. Amelia will have her one year post surgery scan and labs next week, so we'll be praying for the "all clear" once again! This is a one day at a time deal and we are so thankful for our great local doctors and nurses, and all the supportive people we have around us. We couldn't do it without you.
5 people hearted this



Bernie Kline
By Bernie and Dick Kline
What great news! I have Amelia's smiling face on the side of the refrigerator along with pixs of our grand kids. It's wonderful to hear of her progress. Just think about everything you all have been through...amazing! Hope the coming months bring continued good health to one spunky little girl!
Shirley Owens
So glad to hear how well you are doing. I'm sitting here with a smile on my face, picturing you at Head Start, having fun with the other kids and learning so much. I'll continue to keep you and your mommy & daddy in prayer. LOVE - Aunt Shirley
Kathy Baker
Good going Amelia! God's speed and keep moving like you are !

We Love You !!

Hugs and Kisses always
Grandma and Grandpa Baker
Fluffy Aerts
Prayers still coming your way. Thanks for keeping all of us in the loop and taking your journey with you. Amelia is a strong girl, just like her mommy. God Bless you all.
Joyce Tassinari
By Gramma Joyce
What a difficult year for all of you! But little Amelia has come so far and doing so well! She is amazing! One very strong and determined little girl. And so are her momma and daddy. I will be praying for
the "all clear" on her tests! Sending love and hugs! Gramma Joyce
Marlene Case
By Marlene Case
What a wonderful milestone. I'm happy for your family and hope and pray everything turns out well next week.