Amber’s Story

Site created on September 2, 2009

Welcome to my CaringBridge site! Thank you SO much for your thoughts and prayers and keep them coming!

Love,
Amber, Michael, and Avigail

I was diagnosed with cancer on July 31, 2009.

Here is my story:

I had an emergency appendectomy on July 24th and everything went really good. I didn’t even go in for pain on my right side. I went for pain on my left side w/ Kidney Stone/Ovarian Cysts problems. Truth is, I’ve been battling pain, non-stop, for the last year or so and it’s always associated to my Ovary problems… Well, I got my pathology results from surgery on July 31st…and it wasn’t good. My “appendicitis” wasn’t really appendicitis. I had a tumor growing on my appendix…that tumor grew and grew and ruptured “mucin” into my peritoneal cavity (abdominal cavity) and now that mucus is floating around in my abdominal wall, slowly attaching itself to my organs and the possibility of producing other tumors.

I found out during an exploratory surgery on September 23rd that the mucin had spread all over my abdominal cavaty and was creating small, dime size, tumors all over. Mostly dominant in my right quadrant.

I underwent my first "debulking" surgery and chemotherapy on November 9th. It was a 3 week stay in the hospital and and 2 more weeks in nurses care at a condo in Houston.

Update November 2018:
We currently live in Minneapolis, MN - where we homeschool our 10 1/2 year old daughter, Avigail... Mike and I are in full-time ministry (www.bainfamilyministry.com)... and we are going hard after health and fitness! I have had a hard 9 years since cancer, with several complications and bowel obstructions from the 11 partial/full organ removal. For more up to date adventures on us, check me out on Facebook or at www.bainfamilyministry.com

Love you all,
Amber

For more information on my type of cancer; you may visit this link: http://www.appendix-cancer.com/Mucinous%20Adenocarcinoma%20of%20the%20Appendix.htm I have the "Mucinous Adenocarcinoma"

Newest Update

Journal entry by Amber Bain

10 years ago today, I had Cytoreduction Surgery with HIPEC chemo bath (about 50 rounds of chemo heated to 120°+F dumped directly into abdomen while you are shaken by doctors for 90 minutes) - the surgery removed 11 full/partial organs, and my prognosis wasn’t good. I was only given a few months to live, and told there’s only about 20% of patients who make it past 30 days after the surgery... and less than 7% make it a year without a return of cancer and eventually death. 
 
We made all of my funeral arrangements, put together the final touches on my advanced directive, and made sure we said HAPPY goodbyes... just Incase. It was agonizing. 
 
But then I woke up. Then I didn’t die. Then we made it a year with no return. Then 5, 8, and now 10. 
 
We beat the odds. We beat Mucinous Adenocarcinoma with Pseudomyoxoma Peritonei (a big fancy word for an aggressive type of Appendix Cancer.). 
 
Though I still have some unsettling complications with my now shortened bowels, my uncooperative bladder, restless kidneys, and the scarring that has marked me for life - some of which lands me in the hospital for weeks on end, I am so happy. 
 
Happy I get to see Avigail grow up, in ALL her breathtaking beauty. 
 
Happy I get to laugh, kiss, and love on my husband. 
 
Happy we get to live life together, serve the Lord in missions in our joyous work, have a tribe of friends who are true lifers, touch and smell the earth that God so lovingly created for us to live, breathe in air that comes with no explanation except a loving Creator. 
 
Every single thing we try not to take for granted. 
 
Babe, we beat the odds. They’re no longer stacked against us. We are survivors. 👏🏻❤️🙌🏻
 
 
***MOST people I know in this journey, have lost their fight (either themselves or their loved ones)... and though days like today are hard for me to celebrate so publicly, without feeling crippling survivors guilt. It’s a very real thing... Appendix Cancer family, my heart is with you, we pray for you often, and know we will fight together. ❤️
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