My Story

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My Story is the introduction to our CaringBridge site.

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.On Jan. 20,2006, my wife decided to take Amaya, our three year old daughter, to the doctor because she was losing her balance and not running around like a madwoman as usual. Our pediatrician was worried after seeing her walk to another room, and by the pressure she saw behind her eyes. After hearing this I was scared as well, since the pediatrician decided to send her to a neurologist on Jan. 24 of that same year. The PA did several tests and then told us that he needed to consult with someone else before telling us his diagnosis. Then, our lives changed forever, the PA came back in with 2 other doctors. One of the doctors let us know that our daughter had a brain tumor. I do not think I have ever been so scared in my life. My first thought was that she was going to die in a month. We were sent over to CHKD for a CT SCAN and to be admitted into the hospital. The very next morning she had a surgery to put an EVD in place. This device is used to take the extra spinal fluid caused by the tumor out of the body. Two days later she had her first MRI. We had to wait a couple days to get the results back, and then we found out that it was indeed a cancerous tumor that could not be taken out with surgery. The doctor was not sure what level of cancer it was so a biopsy had to be done. After the biopsy, a part of the tumor was sent to the Mayo Clinic in order for us to get the exact level of the cancer. Before we found out about the level of cancer, she had to have an internal shunt inserted into her head. This would take the place of the EVD. After an agonizing week, we were told that she had the lowest level of cancer and chemotherapy could possibly work for her. Radiation would not be used because of her age, and the placement of the tumor made surgery impossible. We would like to thank all of our family and friends for their support during the past 7 years.
Amaya passed away on march 18, 2013.
If you would like to donate:
Sims family fund at any Towne Bank

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Ron Sims posted a new journal entry, "First Angelversary".

I want to thank everyone who helped out with donations for St. Baldricks.  It was a success.  It's especially awesome when I get hang out with the members of the ... Read more

Danielle Fortuna signed Amaya's Guestbook.

What a wonderful tribute to Amaya! And don't worry- I watched Frozen for you last night! :) Love & prayers always, Dani Read more

XO The Koerners signed Amaya's Guestbook.

Dear Sims Family,What a beautiful way to spend the day.  You continue to inspire me with your message of love.  Please know that Amaya remains in our prayers. Read more

Bobby and Dawn Norman signed Amaya's Guestbook.

Praying for you guys today!!!!! So glad you got to enjoy just some time together doing special activities and remembering your sweet girl!!!! Read more

Marion Swaim signed Amaya's Guestbook.

I thought about you all alot today, about Amaya and about the journey this life has given you.  I know Amaya is smiling down at you and  while your time apart seems like ... Read more

Ron Sims added a new photo.

Kathy Barrett signed Amaya's Guestbook.

Hi Sims Family! I am thinking of you and your dear, sweet Amaya this week. When I lost my mom, and people would say to me, "Wow, it's been a year already?" I would well ... Read more

XO The Koerners signed Amaya's Guestbook.

Dear Sims Family,I love that you are seeing Amaya everywhere.  I feel like i see her too.  We are expecting our very first grandchild in March, and it is a girl after ... Read more

Marion Swaim signed Amaya's Guestbook.

 I carried you guys in my heart this holiday, knowing there would be lots of rough patches. Yes Amaya is here in your hearts and in lots of other people's hearts as ... Read more

Remembering sweet Amaya, signed Amaya's Guestbook.

Dear Sims Family - I have thought about you a lot through this holiday season. You try to be happy - but it's just so hard. Michelle and Simon were the reason we ... Read more

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