Amanda’s Story

Site created on October 22, 2015

Welcome to my CaringBridge site. I've created it to keep friends and family updated. I appreciate your support and words of hope and encouragement during this time when it matters most.



I've been ill since 1999 when I was diagnosed with psychotic depression and was taken in to hospital on Christmas Day 2002 where I spent a week in ICU, a couple of weeks in High Dependency and almost 3 months on the Neurology ward.


I came out of hospital in mid-March 2003 with a diagnosis of non-alcoholic Wernicke-Korsakov encephalopathy, brain damage and a dairy allergy which I've been struggling with ever since!  


I saw the Neurologist who diagnosed me again in 2021 and he said that I'd reached a plateau with my memory so basically I'll never be able to remember further back than 30 seconds for the rest of my life.


I've also been diagnosed with a peppermint allergy because it makes me hyperactive which is the last thing I need when I'm this unsteady on my feet so I've been avoiding it for more than two decades.


I've got smaller things like Endometriosis and I'm petite at only 152cm but they have been with me since puberty, so I don't tend to think or worry about them any more.


Newest Update

Just pondering on something...

Journal entry by Amanda George —

Yesterday lunchtime's carer asked if I thought I still needed carers to come in and I said that I did, but I've got through today without a carer and I've been safe and coped OK and even had a solid lunch instead of my usual mug of soup.

 

All I really need is someone to say "have you got washed yet?" which would prompt me to get washed and changed if I hadn't already.  I just need someone to remind me is all and knowing that I've got a carer coming to spend 18 minutes with me before leaving for her next client is all that has been needed so far.

 

I'm into the routine of having a bath after lunch on a Saturday 'cos I know that I'll be around people on the Sunday and I don't want to stink... I just need a similar motivation each morning is all.

 

I'm into a routine now so I'm wondering if I really do need them after all now?

 

Read More of the journal titled "Just pondering on something..."
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