Amanda Babyar's Journal
12/21/13 Day +274
Written Dec 21, 2013 4:22pmAnother Dr. appointment and bone marrow biopsy and all is well. 12/16/13 was her biopsy. Things went smoothly, although, Dr. Diamond was having a hard time because her bones are so strong! YAY! That is the polish in Amanda being strong and sturdy. I received the best Christmas present yesterday in the form of a voice mail from Dr. Diamond who happily reported the results of Amanda's latest biopsy as ALL CLEAR. NO BCR-ABL found. Clean as a whistle, inside and out! Amanda is 4 for 4 in the biopsy department since the transplant, and that was a collective swoosh, nothing but net report.
I was looking at photos from about a year ago. A year ago, we didn't know it, but Amanda's body (kidneys) was failing her. A year ago, that stinking leukemic chromosomal disease was growing more and more each day, we didn't know it. That seems so far away now. Amanda has come so far. She is looking so good, and feeling good too. At our latest visit, we did learn, and it was confirmed, Amanda is in pre-mature ovarian failure due to the radiation and chemotherapy. She has some new pills to take to help with her overall health. When she was diagnosed, we knew this was a possibility. We know all things are possible with God, so if she is meant to be a biological mom one day, that will happen ~ by God's grace. If not, and if Amanda wants to be a mom of a human two legged person, opposed to the four legged fury ones, she has always said she would adopt. The girl has got her bases covered. I hope if there are any other health issues to contend with, they be of the minor easy version and not the serious life threatening version.
This holiday season, I am so thankful for Amanda's overall health, Amanda pursuing her future in school (at Second City and college) to one day capture everyone with her smile, sparkle, shine...and take care of her mama ;) I am thankful my mother is doing well and hanging tough with her treatments and I am thankful that she did not have anything more seriously wrong. Our friend Kate celebrated her one year BMT birthday on 12/12/13 and Kate is doing wonderfully! A freshman in HS and going to compete in a gymnastics meet coming up. She is amazing! Cute little Austin is doing awesome enjoying school! And thank you to the warriors praying for my friend Patty too...she had no more brain tumors at the last scan! Her lungs and bones are still hanging in there. They did not get any worse, so that is a miracle too. Keep praying for all of the healing!
MERRY CHRISTMAS AND HAPPY NEW YEAR TO EVERYONE! Tie a knot at the end of your rope and hang on. Attitude is everything and remember, things will always get better. Amanda, Kate, Austin, Patty and my mom are living proof!
Blessings and love to all!
11/25/13 Day +254
Written Nov 25, 2013 11:43amLong time no speak!
No news, is good news y'all.
Another monthly check-up for Amanda has come and gone (11/22), and ALL IS WELL! Next one, 12/16, will yield another bone marrow biopsy, and other appointments that need to get taken care of, to ensure a life of healthy living. All of her blood numbers/kidney numbers are smashingly wonderful and we all couldn't be more pleased by the news.
Amanda started, and has been busy with her Second City Improv classes. She is LOVING THEM and already signed up for the next semester of classes. Any type of "schooling" that does not involve her: a) sitting still in a seat b) mathmatics or science c)homework (with a paper/pen), Amanda will suceed. Throw in the fact she now gets to TALK, act, TALK, sing, TALK, pretend, TALK, immitate, and TALK...TOUCHDOWN! We have found the golden ticket. She was showing off her skills the other night for me...singing spanish words over the performers song...almost the entire song...on the XFactor...very entertaining....had to be there.
On a side note, Amanda has decided she will reluctantly take one... maybe two classes...to also accomplish the PLAN B of her PLAN A/PLAN B should PLAN A not work out for her. I am hoping and praying PLAN A will work out for her, so I can fulfill and live out my dream of being the main housekeeper of her Hawaiian home.
Amanda has been keeping herself busy...notice the new picture of us meeting Pink and attending her concert. We were so excited and greatful for the opportunity to meet her. She was lovely and her concert was phenomenal! Amanda attended weddings, having her cousin come and stay for the weekend, bumming with her, catching a little cold along the way, which is scary for the first time. She scared the bajeezus out of me and called me at....3:30 a.m. one day worried and crying because she had a fever and thought she had to go to the hospital. We just had to talk things through and learn that she is not immune to sickness, and actually more prone because of her brand new immune system. Three days later, she was back to healthy, no fever, etc. :) All is well.
On a side note, about a month ago, my mom, Amanda's favorite g-ma, was diagnosed with leukemia. We are/were none too pleased with this news. Since I am practically an expert on leukemia because of all the reading I've done, I was much relieved to learn she has CLL - the chronic kind. So...this screwed up my poor mom's tropical cruise she was supposed to go on with her sister, but....better to care for it now, then it get out of hand. My mom will have 6-8 months of one week chemo/three weeks off...she is a good sturdy polish woman...a stomach of steal to handle that chemo....and we were all much relieved to finally find out what she had going on, so the good doctors can make her feel better. ;)
Please pray for my mom...Phyllis....my friend Patty battling cancer....my mom is working on getting that clean bill of health...Patty is looking good and our other friends Kate, Austin and Greg are doing well too.
There is so much to be Thankful for this Thanksgiving! Sometimes, you might have to look a little harder to find that glimmer and to find that rainbow in your storm, but I promise you...it is there! Give thanks to the Lord for he is good, always and in every circumstance!
09/19/13 Day +180
Written Sep 19, 2013 8:05amDr. Diamond called to report and confirm:
NO leukemic cells in blood or bone marrow.
NO BCR-ABL cells in blood or bone marrow.
ALL CLEAR. Amanda is 3 for 3 so far in the bone marrow biopsy department!
We are blessed!
:) Next appointment. October 18th.