My Story

Our lives changed on May 20, 2005 when Alyssa was dx. with standard risk Medulloblastoma (Brain cancer) More @ www.thedennewitzs.com

Luke 18:27
And He said, the things which are impossible with men are possible with God.

Journal

Saturday, July 4, 2009 10:20 AM, CDT


Beware not so upbeat for a holiday…….

I have been lax on doing an update. Feeling a bit down this week. Alyssa awoke last Sunday morning with a bad headache. We were sad that we missed the Kick-It event for Brian Montgomery. We were really looking forward to seeing his family. Alyssa’s headaches have continued off and on throughout the week. I even called Oncology on Wednesday and talked to a nurse. (7/01). The doc was not in so they told me to call back the next day and we could discuss. Of course, if anything weird happened there was always the ER visit option. Thursday, Alyssa did not complain of a headache nor did she complain about a headache Friday until late last night. *Sigh!* So I had not called the doc. I am not sure what to think. It is frightening to think that our life’s could change in a minute. She has come so far. I hate this whole kid’s cancer thing and some days I wish I could wipe it from my mind. Not only my child but other children. It’s just so horrible to see the children and the families and what we all go through. No one can know unless they have lived it. For me, there are some days when the thoughts of all of it really brings me down. You can’t imagine days where just cleaning out a drawer can get emotional. Thoughts of how I would feel going through Lys’s things if…….Can’t even go there…I think of the parents that have lost their children and how hard it must be to get through their days. Ever since Alyssa has been feeling better (excluding this week) we have been trying to get some things reorganized around the house. My mom has been helping all along and is always here to help despite the fact that she has her own new condo that she has things to do in. (She’s been so great! Can’t thank her enough!) We were cleaning out a drawer the other day, and I was sifting through the contents of it and came across a little pocket calendar that said 2004. It had Alyssa’s name on it with her little preschool handwriting and had days marked and her scribbling’s all on it that she had drawn. I said to my mom that it is as if time had just stood still. As we have been going through things for the last year or so we find things like that… like they have been left untouched since 2005. It is so hard. Ok, I am not saying that I haven’t cleaned anything since then. I mean that would just be gross. But there are just places in your house that may not get used as frequently as the others and when you go in to reorganize some of those places it is just like OMG, 2005!

So, today we will see what it brings. We pray for no headache for Alyssa and that if the headaches continue that it is something easily treatable.

I have to give another “shout out” to the COLES FOUNDATION!! They have been soooo awesome to us. This week, Alyssa received in the mail, a BIG box from a member of their Prayer Team. Thanks MJ Cain!!! You made one little girl very happy. She really enjoyed opening the box and seeing all the surprises inside.

Please pray for a beautiful little 5 year old girl named Kate that is newly dx. with a brain tumor. She just had surgery yesterday and they await pathology to see what they are up against. Her parents made a video on YouTube to plead with people to pray for their little girl. It is all so new and scary for them. http://www.youtube.com/watch?v=ese3zYZ-NA4

Follow her story: http://www.caringbridge.org/visit/mcraekate

Also, pray for Alexa:

http://www.caringbridge.org/visit/alexabrown


Have a Happy 4th of July! Make some memories and hug your kids. You never know what tomorrow may bring.

God bless,

Debbie


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HOSPITAL INFORMATION

Akron Children's Hospital
One Perkins Sqaure
Akron, OH 44308
(800) 262-0333